Sara Stephens-Novy, PhD, MPH (@sarastephens29) 's Twitter Profile
Sara Stephens-Novy, PhD, MPH

@sarastephens29

pediatric epidemiologist | interests include #geneticepi, health outcomes research, maternal & child health, SDoH, advocacy | opinions are my own

ID: 1313205551854125058

linkhttp://sara-stephens.com calendar_today05-10-2020 19:53:07

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Na Li (李娜) Lab (@naliphd) 's Twitter Profile Photo

📣 Registration Still Open! An exciting lineup of speakers at the upcoming CVRI Symposium! Will continue the tradition of showcasing a wide range of basic and translational cardiovascular research activities happening at TMC. Featuring keynote speaker, Dr. Andrew Marks!

Katie Salciccioli, MD (@drkbsalc) 's Twitter Profile Photo

Future ACHD doc Paul Cooper sharing great work about trends in hospitalization over time for ACHD. We need more physicians to care for this growing group of patients and help with ensuring access to care! #acc24 TCH Heart Center TCH AdultCHD Program Keila Lopez MD, MPH 🫀 Sara Stephens-Novy, PhD, MPH

Future ACHD doc Paul Cooper sharing great work about trends in hospitalization over time for ACHD. We need more physicians to care for this growing group of patients and help with ensuring access to care! #acc24 <a href="/TCHheartcenter/">TCH Heart Center</a> <a href="/TCH_adultCHD/">TCH AdultCHD Program</a> <a href="/DrKeilaLopez/">Keila Lopez MD, MPH 🫀</a> <a href="/SaraStephens29/">Sara Stephens-Novy, PhD, MPH</a>
Katie Salciccioli, MD (@drkbsalc) 's Twitter Profile Photo

Rising ACHD all-star Ran Xiao, MD sharing critically important work about barriers in connecting patients with anxiety and depression to mental healthcare. Great discussion led by Fred Wu, MD 🫀 吳明杰 about how we use this data to improve care! #acc24 TCH Heart Center TCH AdultCHD Program Peter Ermis

Rising ACHD all-star <a href="/DrRanXiao/">Ran Xiao, MD</a> sharing critically important work about barriers in connecting patients with anxiety and depression to mental healthcare. Great discussion led by <a href="/FredWuMD/">Fred Wu, MD 🫀 吳明杰</a> about how we use this data to improve care! #acc24 <a href="/TCHheartcenter/">TCH Heart Center</a> <a href="/TCH_adultCHD/">TCH AdultCHD Program</a> <a href="/DrPeterTX/">Peter Ermis</a>
Dr Ellie Murray, ScD (@epiellie) 's Twitter Profile Photo

People often think the most important part of science is the statistical analysis. But they’re wrong. The most important part is understanding the data. Who collected it, when, where, why, how, and from whom? Who entered and cleaned it, when, where, why, how, and for whom?

People often think the most important part of science is the statistical analysis. 

But they’re wrong. 

The most important part is understanding the data. Who collected it, when, where, why, how, and from whom? Who entered and cleaned it, when, where, why, how, and for whom?
Keila Lopez MD, MPH 🫀 (@drkeilalopez) 's Twitter Profile Photo

NEW DATA: 1. Critical #CHDs are lifelong dzs & carry a longer burden of care than common CV dzs- on average six of the cCHDs have ~ 14x higher lifetime burden of medical costs than congestive heart failure (CHF), w/ lifetime indirect costs ~23X more. additionalventures.org/wp-content/upl…

Keila Lopez MD, MPH 🫀 (@drkeilalopez) 's Twitter Profile Photo

2. The AVERAGE lifespan for each critical CHD (cCHD- the number of life years req treatment & care) = FORTY SIX years. The average lifetime combined indirect & direct medical cost was $2,091,163 per pt. This means over the lifetime: cCHD healthcare is 14X more expensive than CHF.

JAHA (@jaha_aha) 's Twitter Profile Photo

Following negative Williams syndrome evaluation, genetic sequencing for probands with SVAS was diagnostic in 53%. Read more about how findings could aid pediatric clinicians. #AHAjournals Sara Stephens-Novy, PhD, MPH @ShaineMorris1 TCH Heart Center ahajrnls.org/44BeKv1

Following negative Williams syndrome evaluation, genetic sequencing for probands with SVAS was diagnostic in 53%. Read more about how findings could aid pediatric clinicians. #AHAjournals <a href="/SaraStephens29/">Sara Stephens-Novy, PhD, MPH</a> @ShaineMorris1 <a href="/TCHheartcenter/">TCH Heart Center</a> ahajrnls.org/44BeKv1
Katie Salciccioli, MD (@drkbsalc) 's Twitter Profile Photo

Genotype matters! Brilliant presentation by Dr. Sara Stephens-Novy, PhD, MPH about risk stratification based on both individual mutations and phenotype within the vEDS population TCH Heart Center @ShaineMorris1

Genotype matters! Brilliant presentation by Dr. <a href="/SaraStephens29/">Sara Stephens-Novy, PhD, MPH</a> about risk stratification based on both individual mutations and phenotype within the vEDS population <a href="/TCHheartcenter/">TCH Heart Center</a> @ShaineMorris1
Philip Lupo (@plupo1) 's Twitter Profile Photo

This was a 10-year long project with the Texas DSHS to determine associations between newborn screening measurements and birth defects - we found many novel patterns that point to the overlap among several conditions - I think this shows the power of #PublicHealth

Tam T Doan (@tamtdoan) 's Twitter Profile Photo

#AAP2024 2nd year ped card fellow Dr. Elliott Moss presenting on #mitralannulardisjunction is associated with clinical outcomes in pediatric Loeys-Dietz syndrome Santiago Valdes @ShaineMorris1 TCH Heart Center BCMHouston

#AAP2024 2nd year ped card fellow Dr. Elliott Moss presenting on #mitralannulardisjunction is associated with clinical outcomes in pediatric Loeys-Dietz syndrome <a href="/SantiagoPedsEP/">Santiago Valdes</a> @ShaineMorris1 <a href="/TCHheartcenter/">TCH Heart Center</a> <a href="/bcmhouston/">BCMHouston</a>