Join SRF Nov. 30th in Orlando for a day-long science meeting. Register @ Syngap.Fund/Orlando Speaker: Jillian McKee, MD, PhD Children's Hospital Topic: A prospective natural history study in SYNGAP1 – first insights from ENDD Caregiver meeting the next day on Friday, Dec. 1

Yay!

A day late on this platform but everyday is worth warning about SUDEP awareness.

Congratulations Amanda! I am so lucky to work with you.

Save the date for our return to Vie by Cescaphe on Friday, March 1st! We cannot WAIT to welcome everyone back to Broad Street for an evening of dancing, celebration, and honoring our epilepsy community.

This year’s Mardi Gras Gala website is officially LIVE! Visit MardiGrasPhilly.org to purchase your tickets now! Join us for the event of the year to celebrate and honor our epilepsy community of eastern PA!

"Ketogenic diet (KD) appears to be effective in children w/various types of drug-resistant #epilepsy. A short KD maintenance treatment period & EEG abnormalities during follow-up were associated with an increased risk of seizure recurrence." Epileptic Disorders: doi.org/10.1002/epd2.2…

I just signed up to ride for SynGAP Research Fund (SRF). Link in bio to donate 💜.

SURPRISE! We have officially extended the deadline to buy your Mardi Gras tickets until next Saturday, February 17! 💜💚💛 Purchase your tickets now at: MardiGrasPhilly.org

#DidYouKnow we raise funds at the Mardi Gras Gala each year to continue to support our free programs & services! To join us for this year’s gala, don’t forget to purchase your tickets before this Saturday at MardiGrasPhilly.org.

Join us this August at Camp Achieve! We're looking for passionate individuals, ages 19+, to join the Camp Achieve team as Summer Camp Counselors. For more information, contact Andrew at (215) 629-5003 x103 or [email protected].

This year’s Mardi Gras Gala Silent Auction is officially LIVE! Whether you’re attending this year’s gala or hanging at home, you can still visit MardiGrasPhilly.org for your chance to win any of our incredible prizes!

TONIGHT IS THE NIGHT! Our Annual Mardi Gras Gala would not be possible without our incredible sponsors. Thank you all for your generous support of the EFEPA!

It’s #PurpleDay, a worldwide effort to get people talking about epilepsy through the color purple! If you are celebrating today, share with us how you’re rocking your purple by sending a photo to our social media channels.

While attending the Rare Disease Summit in Philadelphia, Team DSF met with Dr. Ingo Helbig and Dr. Ethan Goldberg (CHOP Research), whom DSF awarded a landmark $1M grant for a clinco-genomic data project on Dravet syndrome in 2023. Ethan Goldberg Ingo Helbig Veronica Hood

This week, we’re celebrating our awesome volunteers for Volunteer Appreciation Week! We are incredibly grateful for our community of volunteers who help us with any project or event that comes their way. Thank you all for your dedication to the EFEPA!

#TBT to last year’s Walk to END EPILEPSY - Philadelphia! We’re returning to Rose Tree Park this year for a fun-filled day of coming together, raising awareness, and supporting the EFEPA! Don’t forget to sign up and start forming your teams at epilepsywalkphl.org.

Community members across our 18 counties are meeting with local legislators to advocate for an increase in funding for Epilepsy Services in PA. If you would like to help the EFEPA in an effort for advocacy, save these social media graphics and share them to your network!

Aww that’s me! Sign up to walk today! It’s a short walk with lots of family friendly activities!

1 month away from Camp Achieve!! We are busy as we continue to prepare for our favorite week of the summer! If you would like to help us provide necessary supplies to camp, don’t forget to visit our Amazon Wishlist: tinyurl.com/CampAchieve024