It's out today!!!! Extraordinary person and athlete, Sophie Holmes. Read all about it and listen and watch the podcast. Watch on YouTube and listen wherever you get your podcasts. Copy post link laurabonnell.substack.com/p/a-cf-voice-s…

Youtube link: youtu.be/QqiafqcgYiY

Watching Bill Gates live talk about Women's Health, Unstuck. His Foundation committed 2.5 billion dollars to womens health thru 2030. Obstetric health/maternal immunization/contraception/Gynecologic & menstrual health/sexually transmitted disease. Bravo Bill. STAT hosting.

It was great to tour the newborn screening lab in Lansing,MI. Their work is critical in diagnosing infants genetic or life threatening diseases. #MIDHHS Every baby born has bloodspots taken unless parents opt out. Early detection is key. Don’t opt out. ⁦MichBio⁩ . Pictured

Pictured here are some of the Rare Disease Advisory Council members: from left: Amber, Stephen, me, Dan and Katie! The rest of our council tours Thursday!

This is not good news for anyone, especially the rare disease community. Robert F. Kennedy Jr. 2024 let’s talk. Please rethink this.

Join us for some fun and fundraising!!! We need you. email.marketing.godaddy.com/view/AVsD1jHg7…

Listen to WJR 760am with Paul W.Smith at 1:30. Laura will be talking about the impact of cut backs to mRNA vaccines. #scienceisGood

For the chronic illness community, and for anyone who’s ever been told “you can’t” — Julia Rae's story sings a different tune. She’s not just making music. She’s making it matter. Watch on YouTube or listen on Spotify on Monday, August 18th! Host: Laura Bonnell

“I’ve decided to devote all of Singing at the Top of My Lungs to music and creative art therapies... They are significantly underfunded, not covered by insurance, and they are often, honestly, the unsung heroes of children’s hospitals.” Tune in on 8/18 to learn more.

"$88 in the UK, $1,300 in the US — Why the Real Story on Drug Prices Is More Complicated" Laura Teicher Bonnell she/her read our OP-ED in The Detroit News detroitnews.com/story/opinion/…

“I always say that singing & performing was as much a part of my DNA as cystic fibrosis.” Julia Rae Julia's pull toward performance, was never just about the spotlight. The stage became her sanctuary, & later, her platform for purpose. Learn more about Julia's story on 8/18.

You have seen her on the big screen, now you can hear Julia Rae talk about CF. …vingwithcysticfibrosis.simplecast.com/episodes/julia…

New episode, out now! Today, you can listen to Laura and Julia discuss her many accomplishments, such as co-creating & hosting Making It Matter with the Boomer Esiason Foundation, leading Uncommon Lungs with Vertex Pharmaceuticals, and launching a podcast called A Deeper Look!

CF Loss: Remembering Jacob Venditti of Live Fearlessly Foundation. open.substack.com/pub/laurabonne…

Join us!!!!! Link in bio for tickets.

Instead of making Social Security benefits for people with #disabilities harder to get, we should be working to address its limitations. clients.tampabay.com/Videos/Spotlig…

Thanks to @voyagemichigan for featuring me in their magazine! #stories voyagemichigan.com/interview/meet… Laura Teicher Bonnell she/her

We agree. Thanks Partnership to Improve Patient Care (PIPC)

What if a scan could tell a story—not just show an image? Dr. Chris Flask is turning MRI into real-time data that could revolutionize care for kids with CF, PKD & more. No sedation. No radiation. Just innovation. Listen on Spotify or watch on YouTube on Monday, September 1st