Join Genomics Education on 20 April for their next #LinkageExpertWebinar hosted by Dr Hassan Shakeel. In this broadcast, Hassan will describe his work repurposing drugs for rare disease: genomicseducation.hee.nhs.uk/events/linkage…

𝗥𝗮𝗿𝗲 𝗩𝗼𝗶𝗰𝗲𝘀 𝗔𝘂𝘀𝘁𝗿𝗮𝗹𝗶𝗮’𝘀 (𝗥𝗩𝗔) 𝗢𝗻𝗹𝗶𝗻𝗲 𝗘𝗱𝘂𝗰𝗮𝘁𝗶𝗼𝗻 𝗣𝗼𝗿𝘁𝗮𝗹 complements the workshops, webinars & customised mentoring support provided to RVA Partner organisations through our Education Program. More: education.rarevoices.org.au #RareDisease

Don't forget to join our webinar on whole of life care in #raredisease tomorrow! Register here: airtable.com/shrxKxtkOMZKjL… 💧Rachael Havrlant 🐝🐝 NSW Agency for Clinical Innovation Silvana Techera telethonkids

Interested in culturally appropriate whole of life care for #raredisease? Our RArEST ProjectECHO next interactive webinar for health professionals is happening tomorrow! Join for free: airtable.com/shrxKxtkOMZKjL…

Advances in rare disease genomics can significantly help GPs access diagnoses. Ongoing developments in research and advanced therapeutics continue to provide hope for patients. Read more... zurl.co/KjD5 Yvonne Zurynski Rare Voices Australia (Elizabeth) Emma Palmer (she / her) michelle farrar

Researchers from the University of Queensland are seeking participants to complete an online survey about their views on genomic technologies & their impact on people with disability: bit.ly/3nf9igc #Research

For all those interested in #rare and #undiagnosed diseases the undiagnosed disease day global webinar can be watched here undiagnosed-day.org A huge thank you to the Wilhelm Foundation for organising and especially to all the brave patients and families who spoke

We are hiring! Passionate about #RareDisease ? Program manager skills? Check out this position and feel free to reach out to me with any questions Rare Voices Australia RArEST ProjectECHO Human Genetics Society of Australasia Australian Genomics UNSW Medicine & Health 🔽🔽 external-careers.jobs.unsw.edu.au/cw/en/job/5170…

Fantastic news, we're running another round of #raredisease webinars 🥳 New topics, improved format, same great community building! rarevoices.org.au/new-rare-disea…

Did you know GPs see about 70 people living with a rare disease in their practice? Join our next round of Rare Disease ECHO sessions to learn how to care for these patients: tinyurl.com/rarecare (Elizabeth) Emma Palmer (she / her) Lauren McKnight Rare Voices Australia Project ECHO

We are excited to launch another round of interactive educational sessions to share knowledge and partner with #raredisease patient groups. Lets reduce low-value healthcare and promote equitable person-centred high-quality #rarecare UNSW Medicine & Health Randwick Health & Innovation Precinct Australian Genomics

Just 1 more sleep to go...Join our #Transition Care Network webinar series to hear from Dr Elizabeth Emma Palmer on the #Transition for young people with a #raredisease. Tomorrow Wednesday 12th July, 12:30-1:30pm. To register please visit: aci.health.nsw.gov.au/networks/trans…

With 95% of #RareDisease having no approved treatments it is critical to know how to embed clinical research safely into our health care practice. Hearing fromthe incredible Dr Falak Helwani from Rare Voices Australia learn more about our Rare RArEST ProjectECHO sessions rarevoices.org.au/rare-disease-p…

Wow this looks fabulous! Rare Voices Australia RArEST ProjectECHO michelle farrar

A really interesting talk from Gemma Chandratillake at #ICG2023 highlighting advances in genomic education to support safe mainstreaming including one of my personal favourite approaches - communities of clinical learning practice - like our Rare ECHO rarevoices.org.au/rare-disease-p… RArEST ProjectECHO

Join a special, family-friendly #RareDiseaseDay event to connect with other people living with a rare disease, researchers and clinicians tinyurl.com/RDFUTURE UNSW 22q Foundation Australia and New Zealand Genetic Alliance AU Rick Guidotti

Rare Disease Day-themed free event for people living with a rare disease and their families on Saturday, 1 March at the Sydney Children's Hospital.🎉👨‍👩‍👦 Learn more and register: tinyurl.com/RDFuture

Sydney Children's Hospital is hosting a clinical education day to celebrate Rare Disease Day on 28 February at Sydney's Children Hospital. The event is for health professionals who have an interest in rare disease. Register: tinyurl.com/RDClinical