Hot off the press:A refresh of the top10 research priorities in #cysticfibrosis thorax.bmj.com/content/early/… Great work from Question CF Cystic Fibrosis Trust Nottingham Research James Lind Alliance Nicola Rowbotham highlighting patients', carers' &clinicians' CF priorities 5 years after their 1st prioritisation

Thanks Alan Smyth for presenting the Question CF priority refresh poster & adding many links to the newly published poster! I’m so sad to be missing #ECFS2023 in #Vienna but enjoying reading everyone’s Twitter posts. Poster 089 if anyone wants to visit.

Just in case anyone missed the link 😉 A refresh of the top 10 research priorities in cystic fibrosis thorax.bmj.com/content/early/…

Great talk on multisystem MRI scanning by Alex Yule from the University of Nottingham at #ECFS2023 ⁦Question CF⁩ ⁦Cystic Fibrosis Trust⁩ ⁦Evidence Based Child Health⁩ ⁦cf/Aware⁩

Kudos to Florence Lockwood, medical student at UoN, for a beautiful explanation of faster orocaecal transit time in cystic fibrosis during ETI treatment @ECFS2023 Part of the GIFT-CF 3 study. ⁦Evidence Based Child Health⁩ ⁦cf/Aware⁩ ⁦Question CF⁩

Not the meds? Dr Helen Love warms up her audience with a programme of stretches prior to her giving a great talk at #ECFS2023! ⁦Question CF⁩ @cfaware ⁦Evidence Based Child Health⁩

Great to see this systematic review of gut symptoms in cystic fibrosis published open access today. Flatulence, bloating and fatty stool are the major culprits! tandfonline.com/doi/full/10.10… Evidence Based Child Health Question CF cf/Aware

A big thank you to the CF Trust for supporting the GRAMPUS-CF Strategic Research Centre! ⁦cf/Aware⁩ ⁦Question CF⁩ ⁦Evidence Based Child Health⁩ ⁦Cystic Fibrosis Trust⁩ ⁦Cystic Fibrosis Foundation⁩ cysticfibrosis.org.uk/news/this-is-s…

Hi everyone, recruitment is still open. If you are an adult with CF and cannot benefit from Kaftrio/Trikafta due to genetic factors, please consider participating. For further information, please contact me via email ([email protected]) or DM. Dr Catherine O'Leary Cystic Fibrosis Trust

1. Addressing tummy symptoms that matter to YOU! Cystic fibrosis (CF) is not just about the lungs! Tummy symptoms are increasingly recognised as having a big impact on people with CF. tandfonline.com/doi/full/10.10… @questionCf cf/Aware

Said "au revoir" to Nottingham colleagues this week after 27 years in the city. Thanks to the best research group in the world for the kind gifts (including crocheted lungs) and the aeroplane cake! Evidence Based Child Health cf/Aware Question CF ThoraxBMJ

Question CF I'd love to see more research into the mental health issues in families of children with cf. How can we help parents and siblings? Because as a daddy of a CFer, it's freaking hard!

Brilliant day facilitating the Cystic Fibrosis Trust research conference. So many talented researchers working in true partnership with the CF community. Also great to see how the James Lind Alliance Question CF refreshed priorities are shaping the research agenda #ukcfc

Start tracking your tummy symptoms now to help the #CF community with gastrointestinal issues! Only 15 spots left, so go to Cftummytracker.org to register on our app cf/Aware Question CF Thank you to all participants and Cystic Fibrosis Trust Cystic Fibrosis Aust Cystic Fibrosis Foundation

Great plenary talk from Luke Hoffman at #NACFC2023 emphasising the importance of better antibiotic therapy to patients with cystic fibrosis. Cystic Fibrosis Trust Cystic Fibrosis Foundation Question CF cf/Aware

Thanks to Belinda Cupid for a great article on the use of apps in cystic fibrosis care including CF Tummy Tracker! cysticfibrosis.org.uk/news/using-app… cftummytracker.org Question CF

Calling parents, children and young people who have been seen in a hospital emergency department. The James Lind group for children's emergency medicine want to know your research priorities. Take the survey! Question CF @RCPCHPresident redcap.liverpool.ac.uk/surveys/?s=9RD…

Great to see the James Lind Alliance refresh for Cystic Fibrosis getting a shout out from @Paula_Sommer at #CFGI24. Research priorities for CF jointly agreed by people with CF and clinicians. cf/Aware Question CF Cystic Fibrosis Trust Cystic Fibrosis Foundation

We are delighted to announce that we only have 20 participants left to recruit! ✨Can you help us reach our goal by the end of July so we can finally answer this important research question? CF STORM Jay Ortiz Liverpool Clinical Trials Centre (LCTC) Gwyneth Davies #cysticfibrosis

UK #CysticFibrosis community! Tell us about your thoughts on inhaled meds & interacting with your care providers post-Kaftrio in this anonymous 5-10 min research survey. Your voice matters! Please share! [shef.qualtrics.com/jfe/form/SV_6V…] #CF