LC Patients Illinois (@pwlcillinois) 's Twitter Profile
LC Patients Illinois

@pwlcillinois

Patient-Centric community platform for Long Covid patients in Illinois. Part of @CareConnectlc #longcovid #healthequity #healthjustice #dataprivacy

ID: 1650094028850085888

calendar_today23-04-2023 11:08:01

106 Tweet

110 Takipçi

124 Takip Edilen

Gwen B. with LC🦩🌺 (@pengwenwithlc) 's Twitter Profile Photo

When you wear a KN95, you're not just protecting yourself from COVID-19 - you're also protecting those around you. Let's make community care a priority by #MaskingUp with style and confidence. #SafeIsSexy #MasksAreEasier #LongCovid

When you wear a KN95, you're not just protecting yourself from COVID-19 - you're also protecting those around you. Let's make community care a priority by #MaskingUp with style and confidence. #SafeIsSexy #MasksAreEasier #LongCovid
Carol 🛌👩‍🦼😷 (@tickedoffcodess) 's Twitter Profile Photo

Because of #LongCovid and #SevereME, I lost myself, my career, my independence, and my friendships. I live confined within the 4 walls of my dark bedroom. I’ve missed out on things most take for granted like being able to sit to have dinner or being able to walk our 2 dogs. 2/

Carol 🛌👩‍🦼😷 (@tickedoffcodess) 's Twitter Profile Photo

I want our government to prioritize research funding for #MECFS & #LongCOVID. I want the FDA to prioritize clinical treatment trials that ease the burden of these debilitating diseases. 3/ #WorldMEDay2023

Carol 🛌👩‍🦼😷 (@tickedoffcodess) 's Twitter Profile Photo

Lastly, I want the NIH to ensure the RECOVER initiative doesn’t waste tax payers money on frivolous trials that are known to harm people with ME. 4/ #StillSickStillFighting #pwME #pwLC #CanYouSeeMeNow #NEISvoid #ChronicIllness #SpoonieLife

Carol 🛌👩‍🦼😷 (@tickedoffcodess) 's Twitter Profile Photo

Wilma Biddle Myalgic Encephalomyelitis - a neurological disease with symptoms in all body systems that affects people of all ages and backgrounds. Most cases of ME are triggered by infection.

Carol 🛌👩‍🦼😷 (@tickedoffcodess) 's Twitter Profile Photo

The 💉was not available to me until May 2021. My nurse, on the other hand, was eligible Jan 2021, and she chose to forego it. My infections had nothing to do with any vax. If anything, had the nurse gotten her damn vax perhaps she wouldn’t have brought 🦠to my home.

Rod Bishop (@rodbishop15) 's Twitter Profile Photo

You can blame mental health, back pain, long covid etc, but the reality is the benefit system in this country is too generous, the woke sense of entitlement too high, schools & unis churning out unemployables & we’re turning into an army of lazy baxxtards😡

You can blame mental health, back pain, long covid etc, but the reality is the benefit system in this country is too generous, the woke sense of entitlement too high, schools & unis churning out unemployables  & we’re turning into an army of lazy baxxtards😡
Prof Kathy Eagar AM @keagar.bsky.social (@k_eagar) 's Twitter Profile Photo

No one could have predicted this. COVID is much more dangerous than the flu. Now add long COVID into the equation. Disability, school absences, lost productivity, reduced quality of life. Makes me wonder whether we really should treat COVID as an exceptional disease? 👇

No one could have predicted this. COVID is much more dangerous than the flu. Now add long COVID into the equation. Disability, school absences, lost productivity, reduced quality of life. Makes me wonder whether we really should treat COVID as an exceptional disease? 👇
LC Patients Illinois (@pwlcillinois) 's Twitter Profile Photo

A Peoria-area study on Long COVID advances to the next stage of research, bringing hope for a deeper understanding of this condition. This local initiative contributes to the global effort in unraveling the complexities of Long COVID. nprillinois.org/illinois/2023-… #LongCovid #research

LC Patients Illinois (@pwlcillinois) 's Twitter Profile Photo

Inspirational battle! This article captures the challenges and resilience of individuals facing Long COVID. Let's support and raise awareness for better care. #LongCOVID #PatientStories illinoistimes.com/springfield/do… Care Connect for #pwLC

Long Covid SOS @longcovidsos.bsky.social (@longcovidsos) 's Twitter Profile Photo

Our KC Anthony Metzer speaking now UK Covid-19 Inquiry "People with #LongCovid deserve answers and deserve to know what the government knew about this pernicious disease and what steps if any it took when confronted with the reality of huge numbers of people not recovering from it"

Our KC Anthony Metzer speaking now <a href="/covidinquiryuk/">UK Covid-19 Inquiry</a> 

"People with #LongCovid deserve answers and deserve to know what the government knew about this pernicious disease and what steps if any it took when confronted with the reality of huge numbers of people not recovering from it"
Dame Sa 🐝 3.5% (@longcovidhell) 's Twitter Profile Photo

You know you’re in the Twilight Zone when GLAMOUR MAGAZINE knows more about #Covid immunity damage than your GP! 😵‍💫 "Covid is a challenge to our immune system because it triggers disease of the entire body with all organs inc nervous & vascular systems.” glamourmagazine.co.uk/article/why-im…

Compute Resistance™️🍉 (@mixtupmixy) 's Twitter Profile Photo

It *was* 1 in 20. Then it was 1 in 10. *Now* it’s ^^^ONE IN FIVE PPL^^^ that have #LongCovid. Do you really want to raw dog a novel SARS virus when we don’t really know the long term effects?!? #AvoidCovid cdc.gov/mmwr/volumes/7…

Tom Kindlon (@tomkindlon) 's Twitter Profile Photo

"Causal Effects between Gut Microbiome and #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome: A Two-Sample Mendelian Randomization Study" Abstract frontiersin.org/articles/10.33… Paraprevotella & Ruminococca-ceae_UCG_014 were positively associated with #MECFS risk (but ORs small?) #CFS

"Causal Effects between Gut Microbiome and #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome: A Two-Sample Mendelian Randomization Study"

Abstract
frontiersin.org/articles/10.33…

Paraprevotella &amp; Ruminococca-ceae_UCG_014 were positively associated with #MECFS risk
(but ORs small?)
#CFS