medicalmomma (@prk2) 's Twitter Profile
medicalmomma

@prk2

Speaker, Rare disease pt/caregiver, CMMRD/mismatch repair EPCAM Gene family. Medically complex family who travel for medical care

ID: 898927062

calendar_today23-10-2012 02:01:39

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Fight Colorectal Cancer (@fightcrc) 's Twitter Profile Photo

We are proud to announce that the #FightCRC Genetics and Family History Advisory Council is leading an initiative, alongside nearly 150 patient advocacy organizations, medical societies, and medical professionals, to submit an application to the International Classification of

We are proud to announce that the #FightCRC Genetics and Family History Advisory Council is leading an initiative, alongside nearly 150 patient advocacy organizations, medical societies, and medical professionals, to submit an application to the International Classification of
Heather Hampel (@hhampel1) 's Twitter Profile Photo

This is so important. Very proud to be a member of this group and to be part of this effort to get ICD10 codes specific for Lynch Syndrome (by gene)! #ColorectalCancerAwarenessMonth

Fight Colorectal Cancer (@fightcrc) 's Twitter Profile Photo

It's #LynchSyndromeAwarenessDay, we are joining forces with AliveAndKickn and Colon Cancer Coalition to raise awareness for #LynchSyndrome! What is Lynch Syndrome❓ Lynch syndrome is the most common form of hereditary #ColorectalCancer affecting more than 1.2 million people in the

It's #LynchSyndromeAwarenessDay, we are joining forces with <a href="/Alive_And_Kickn/">AliveAndKickn</a> and <a href="/ColonCancerCoal/">Colon Cancer Coalition</a> to raise awareness for #LynchSyndrome! 

What is Lynch Syndrome❓
Lynch syndrome is the most common form of hereditary #ColorectalCancer affecting more than 1.2 million people in the
Matt Yurgelun, MD (@mattyurgelun) 's Twitter Profile Photo

What do we know about the gut microbiome and how that influences cancer in #LynchSyndrome ? Andy Chan discusses at the Dana-Farber #LynchSyndromeAwarenessDay Scientific Symposium

What do we know about the gut microbiome and how that influences cancer in #LynchSyndrome ? <a href="/AndyChanMD/">Andy Chan</a> discusses at the <a href="/DanaFarber/">Dana-Farber</a> #LynchSyndromeAwarenessDay Scientific Symposium
Matt Yurgelun, MD (@mattyurgelun) 's Twitter Profile Photo

Immunotherapy works well to treat many #LynchSyndrome cancers, what what can patient immune factors help us understand about cancer risk stratification? Dr. Ayden Ahadova explains Dana-Farber #LynchSyndromeAwarenessDay

Immunotherapy works well to treat many #LynchSyndrome cancers, what what can patient immune factors help us understand about cancer risk stratification? Dr. Ayden Ahadova explains <a href="/DanaFarber/">Dana-Farber</a> #LynchSyndromeAwarenessDay
Heather Hampel (@hhampel1) 's Twitter Profile Photo

For #LynchSyndromeAwarenessDay this is your reminder that: 💠 Lynch syndrome is common (1:279 individuals) 💠 Lynch syndrome is actionable (increased surveillance/prevention options lead to better outcomes) 💠 Lynch syndrome is underdiagnosed (most people are not aware that they

For #LynchSyndromeAwarenessDay this is your reminder that:
💠 Lynch syndrome is common (1:279 individuals)
💠 Lynch syndrome is actionable (increased surveillance/prevention options lead to better outcomes)
💠 Lynch syndrome is underdiagnosed (most people are not aware that they
Matt Yurgelun, MD (@mattyurgelun) 's Twitter Profile Photo

Exercise is good for you! 🏃🏼‍♂️ And we’re starting to understand how and why it may be of particular preventative benefit in #LynchSyndrome per Eduardo Vilar at the Dana-Farber #LynchSyndromeAwarenessDay Scientific Symposium

Exercise is good for you! 🏃🏼‍♂️

And we’re starting to understand how and why it may be of particular preventative benefit in #LynchSyndrome per <a href="/evilarsan/">Eduardo Vilar</a> at the <a href="/DanaFarber/">Dana-Farber</a> #LynchSyndromeAwarenessDay Scientific Symposium
Matt Yurgelun, MD (@mattyurgelun) 's Twitter Profile Photo

Not all colonoscopies are created equal. Francesc Balaguer helps us understand quality metrics in colonoscopies for those with #LynchSyndrome at Dana-Farber #LynchSyndromeAwarenessDay Scientific Symposium

Not all colonoscopies are created equal. <a href="/frankbalaguer/">Francesc Balaguer</a> helps us understand quality metrics in colonoscopies for those with #LynchSyndrome at <a href="/DanaFarber/">Dana-Farber</a> #LynchSyndromeAwarenessDay Scientific Symposium
neil ryan (@neilajryan) 's Twitter Profile Photo

On #lynchsyndrome day I pledge to help find the 95% of people who carry Lynch syndrome & don’t know they have it 1:300 of us have it Knowing is power By knowing we can help mitigate the cancer risk If you don’t know there is just risk Find out more Lynch Syndrome UK The Eve Appeal

On #lynchsyndrome day I pledge to help find the 95% of people who carry Lynch syndrome &amp; don’t know they have it 1:300 of us have it Knowing is power By knowing we can help mitigate the cancer risk If you don’t know there is just risk Find out more <a href="/LynchSyndromeUK/">Lynch Syndrome UK</a> <a href="/eveappeal/">The Eve Appeal</a>
Matt Yurgelun, MD (@mattyurgelun) 's Twitter Profile Photo

We need better urinary tract cancer surveillance in #LynchSyndrome. Dr. Richard Gallon is teaching about new advances trying to improve this at the Dana-Farber #LynchSyndromeAwarenessDay Scientific Symposium

We need better urinary tract cancer surveillance in #LynchSyndrome. Dr. Richard Gallon is teaching about new advances trying to improve this at the <a href="/DanaFarber/">Dana-Farber</a> #LynchSyndromeAwarenessDay Scientific Symposium
Matt Yurgelun, MD (@mattyurgelun) 's Twitter Profile Photo

How can we screen for cancer noninvasively in individuals with #LynchSyndrome ? Jewel Samadder discusses at the Dana-Farber #LynchSyndromeAwarenessDay Scientific Symposium

How can we screen for cancer noninvasively in individuals with #LynchSyndrome ? <a href="/J_Samadder/">Jewel Samadder</a> discusses at the <a href="/DanaFarber/">Dana-Farber</a> #LynchSyndromeAwarenessDay Scientific Symposium
AliveAndKickn (@alive_and_kickn) 's Twitter Profile Photo

This Lynch Syndrome Awareness Day, let's make a pledge to advocate for genetic testing and early detection. Knowledge is power, and in this case, it could be life-saving. #LynchSyndromeAwarenessDay #AwarenessSavesLives #LivingwithLynch #IamAliveandKickn

This Lynch Syndrome Awareness Day, let's make a pledge to advocate for genetic testing and early detection. Knowledge is power, and in this case, it could be life-saving. #LynchSyndromeAwarenessDay #AwarenessSavesLives #LivingwithLynch #IamAliveandKickn
Sam Alexandra Rose (@writersamr) 's Twitter Profile Photo

You'll have to find me on Instagram (Sam Alexandra Rose) for the full dorkiness of my #LynchSyndromeAwarenessDay video, but here's a taster #lynchsyndrome #CMMRD #cancer

lynch syndrome irl @lsireland.bsky.social (@lynchsyndromirl) 's Twitter Profile Photo

Best wishes to Lynch Syndrome UK for their annual patient conference today, bringing together experts and #LynchSyndrome families to share knowledge and learn the latest in research. Such events take a lot of work and are of huge importance to our community. Well done all 👏

Best wishes to <a href="/LynchSyndromeUK/">Lynch Syndrome UK</a> for their annual patient conference today, bringing together experts and #LynchSyndrome families to share knowledge and learn the latest in research. Such events take a lot of work and are of huge importance to our community. Well done all 👏
Catherine Stratton, MPH (@cathsmstratton) 's Twitter Profile Photo

It was wonderful to attend the International Pediatric Stroke Organization (IPSO) Congress with other members of the Moyamoya Foundation. We made so many wonderful connections with brilliant clinicians and researchers. #RareDiseaseTruth

It was wonderful to attend the International Pediatric Stroke Organization (<a href="/curekidstroke/">IPSO</a>) Congress with other members of the <a href="/moyamoyafdn/">Moyamoya Foundation</a>. We made so many wonderful connections with brilliant clinicians and researchers. #RareDiseaseTruth
The Lancet Oncology (@thelancetoncol) 's Twitter Profile Photo

NOW OF An International Replication Repair Deficiency Consortium cohort study aims to describe the clinical spectrum, cancer biology, and impact of genetics on patient survival in constitutional mismatch repair deficiency. thelancet.com/journals/lanon…

NOW OF

An International Replication Repair Deficiency Consortium cohort study aims to describe the clinical spectrum, cancer biology, and impact of genetics on patient survival in constitutional mismatch repair deficiency.

thelancet.com/journals/lanon…
Anant Madabhushi (@anantm) 's Twitter Profile Photo

Thrilled to share "Artificial intelligence in neuro-oncology: advances and challenges in brain tumor diagnosis, prognosis, & precision treatment" in npj Journals Precision Oncology. With Malak Althgafi, just featured on قناة السعودية for her brain tumor work. tinyurl.com/33yhmzpm

Thrilled to share "Artificial intelligence in neuro-oncology: advances and challenges in brain tumor diagnosis, prognosis, &amp; precision treatment" in <a href="/Nature_NPJ/">npj Journals</a> Precision Oncology. With <a href="/MalakAbed/">Malak Althgafi</a>, just featured on <a href="/saudiatv/">قناة السعودية</a> for her brain tumor work.
tinyurl.com/33yhmzpm
Evidence-Based GI: An ACG Publication (EBGI) (@acg_ebgi) 's Twitter Profile Photo

Watch ⭐️ #EBGI #SoMe ambassador Anoushka Dua, MD UCI Health Physicians as she walks us through the 2-day experience preparing and undergoing #colonoscopy in this sneak peak for #ColorectalCancerAwarenessMonth🎥 🎬 Full video: bit.ly/EBGIxCRC #GITwitter #GetScreened💙 #EBGIxCRC

Prof. Anil D'Cruz (@docdcruz) 's Twitter Profile Photo

Thank u, Hon. PM for this much needed initiative. Health indices are also important indicators of our country's growth. For a long time, many health leaders of our country did not believe in HPV vaccination. Union for International #CancerControl Pramesh CS PMO India World Health Organization (WHO)

Thank u, Hon. PM for this much needed initiative. Health indices are also important indicators of our country's growth. For a long time, many  health leaders of our country did not believe in HPV vaccination. <a href="/uicc/">Union for International #CancerControl</a> <a href="/cspramesh/">Pramesh CS</a> <a href="/PMOIndia/">PMO India</a> <a href="/WHO/">World Health Organization (WHO)</a>