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"But researchers are pressing ahead with new clinical trials for more targeted treatments built on advances in our understanding of #LongCovid. There’s now a large body of research on the condition." 'It is absolutely not mysterious,'” — Hannah Davis washingtonpost.com/wellness/2025/…

I thought I would repost this to highlight again some of the many varied symptoms that can be found in #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome Particularly relevant when similarities with the #LongCovid presentation in some people are being missed #MEcfs #CFS #PwLC 1/

A bittersweet moment. Thank you The Press Awards for recognising the plight of hundreds of thousands of people who struggle daily with this debilitating and brutal illness

🧵1/ 📢 Attention researchers & advocates! The Department of Defense’s CDMRP has announced its FY25 funding opportunities—and is hosting a webinar on May 28, 2025 (12–1pm ET) to walk through what’s new. Join live or catch the recording later. 👇

Today is the last day to sign up for Solve’s Virtual Advocacy Week (June 23-27) and educate Congress about #MECFS! Sign up at MEForward.org (or click the link below). Please share! ow.ly/mCKu50VhCcY #MEForward #Advocacy

Register for our July 31 @ 12 pm PT / 3 pm ET webinar w/ #MECFS Catalyst Award winner Prof. Akiko Iwasaki (Yale School of Medicine). Dr. Iwasaki will discuss her study, “Probing Functional Autoantibodies in Patients with ME/CFS.” 👉ow.ly/eVNv50VReaH #MEAwarenessHour #MECFS

ICYMI: Click the link below to learn about some of the #MECFS and #LongCovid clinical trials we’re watching now, and consider joining those that are right for you. ow.ly/8jYa50VVSoB #MECFS #LongCovid

ICYMI: Solve CEO Emily Taylor spoke at the #MIllionsMissing #DisabilitySOS event hosted by @meactnet in DC today. She reflected on her journey as a caregiver & announced our #MECFS Catalyst Award funding for a study by Dr. Akiko Iwasaki. ow.ly/Jzx550VRqz3 #MEAwarenessHour

Register today for EmPOWER M.E: "Pacing: Power in Slowing Down." Experts & #MECFS patient leaders will discuss strategies for pacing in public spaces and at home. Join us on Friday, June 27th @ 10 am PT / 1 pm ET by registering here: ow.ly/a2T850W4c4H #MEAwarenessHour

Read the summary of our Webinar “Immune Dysfunction & T-Cell Exhaustion via Single Cell Immune Profiling in #MECFS & #LongCOVID,” featuring panelists from Selin Lab and HiFiBiO Therapeutics w/ patient advocates Rivka and Megan L. Fitzgerald. ow.ly/N1zL50VWGqN #MEAwarenessHour

In our #rapamycin pilot, we developed 2 biomarkers to measure autophagy function & showed that they correlate to positive response in #MECFS. Our bold goal is to generate a biomarker test to predict likely responders to rapamycin. We’re on our way to a 1st for #ME: test-to-treat!

🚨 CDMRP funding was cut by 57% & #MECFS research is at risk! The Medical Research for Our Troops Act restores those funds & protects research on diseases impacting vets & civilians. 📢 Ask your Reps to sign on by June 11! ow.ly/becO50W6xCI #FundCDMRP #CongressionalAsk

ICYMI: Check out this interview with Solve Ramsay Research Grant winner Rob Wüst. He talks to davidtuller about his pre-print study comparing the results of exercise in people with #LongCovid & #MECFS patients to the results from healthy people who spent 60 days bedridden.

Register today for EmPOWER M.E: "Pacing: Power in Slowing Down." Experts & #MECFS patient leaders will discuss strategies for pacing in public spaces and at home. Join us on Friday, June 27th @ 10 am PT / 1 pm ET by registering here: ow.ly/a2T850W4c4H #MEAwarenessHour

Advocates pushed back against threatened funding cuts and won continued support for #LongCOVID work in the Minnesota legislature’s final 2026–27 budget. bit.ly/4jH4rLX

📢CDMRP funding cut by 57% & #MECFS research is at risk! The Medical Research for Our Troops Act restores funds & protects research on diseases impacting vets & civilians. 🚨 DEADLINE TO SIGN ON IS TODAY - JUNE 11!🚨 ow.ly/becO50W6xCI #MEAwarenessHour

ICYMI: Check out this interview with Kim Moy of Caregiver Wisdom. She talks about her experience as a caregiver to a loved one with #MECFS & why she changed careers to become a caregiving coach to help fellow chronic illness caregivers. ow.ly/Slcz50W7t6t #MEAwarenessHour

🔬 Free #MECFS samples from the UK ME/CFS Biobank are available to early-career researchers 📨 We’re seeking applications from across the world to support #ECRs take their next steps in #MECFSResearch Find out how you can get free samples ➡️ bit.ly/MECFS-samples

Big congrats to #MECFS researcher Dr. Maureen Hanson—member of Solve M.E.’s Research Advisory Council—on receiving the 2025 SUNY Chancellor’s Award for Excellence! Her groundbreaking work bridges plant science and #MECFS at Cornell University. 👏🧬 news.cornell.edu/stories/2025/0…

Sign up for our June 27th EmPOWER M.E. event "Pacing: Power in Slowing Down"! Our panel of experts will discuss how & why pacing works, pacing in public spaces & communicating needs to caregivers. Register today! ow.ly/hg6450Wafkt