Nikola Brigden (@nikolabrigden) 's Twitter Profile
Nikola Brigden

@nikolabrigden

Straight talking Yorkshire Lass, Wife of a Stem Cell Transplant Warrior, Mother and Campaigner for the roll out of protection for forgottenlives.uk

ID: 1529473641536274435

linkhttps://forgottenlives.uk calendar_today25-05-2022 14:45:19

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Nikola Brigden (@nikolabrigden) 's Twitter Profile Photo

Please add your voice to ours and help us grow in numbers. We NEED your help to get #evusheld4theuk rolled out. facebook.com/groups/6929496…

Dr Lennard Lee (Oxford University) (@drlennardlee) 's Twitter Profile Photo

1/x *** New Research ***. 😀What can be done to protect immunocompromised patients? New press release from AstraZeneca. astrazeneca.com/media-centre/p…, and it's about a therapy called Sipavibart, the successor to Evusheld.

1/x *** New Research ***. 😀What can be done to protect immunocompromised patients? New press release from <a href="/AstraZeneca/">AstraZeneca</a>. astrazeneca.com/media-centre/p…, and it's about a therapy called Sipavibart, the successor to Evusheld.
Dr Lennard Lee (Oxford University) (@drlennardlee) 's Twitter Profile Photo

2/x. What is the background? Some individuals in our community are more prone to infections, they are called immunocomromised. There are ~ 500,000-1.5M with these conditions. When they get infections, they can fight it less well. 🙄 And the pandemic hit, this was a problem.

Dr Lennard Lee (Oxford University) (@drlennardlee) 's Twitter Profile Photo

3/x It includes renal transplant patients, primary immunodeficiencies, those with cancer & blood cancers, kidney disease, and those with primary immunodeficiencies. It's a fair number. Most doctors want to protect these patients from infectious diseases by what ever means 😇

Dr Lennard Lee (Oxford University) (@drlennardlee) 's Twitter Profile Photo

4/x In 2021, for those that didn't get enough protection from their COVID-19 vaccines, most countries gave additional protection to those patients, by an antibody, called Evusheld. It helped over that winter and reduced severity of infectious for many many people. 👍

Dr Lennard Lee (Oxford University) (@drlennardlee) 's Twitter Profile Photo

5/x Whilst most companies stopped developing protective drugs. One manufacturer kept going, and they did all the trials required. The trial in immunocompromised patients was called SUPERNOVA.

Forgotten Lives Uk (@4gottenlivesuk) 's Twitter Profile Photo

We came to you in our hour of need Rishi Sunak and the silence from you and your ministers was deafening. After being abandoned for over 4 years, the immunocompromised and their families WILL have the chance for their say tomorrow.

Forgotten Lives Uk (@4gottenlivesuk) 's Twitter Profile Photo

Pleased to launch our new website as a key tool and resource in the campaign for protection for immunocompromised. Thanks to all those involved in creating it. Wes Streeting Department of Health and Social Care NICE MHRAgovuk forgottenlives.uk//

Pleased to launch our new website as a key tool and resource in the campaign for protection for immunocompromised. Thanks to all those involved in creating it.
<a href="/wesstreeting/">Wes Streeting</a> <a href="/DHSCgovuk/">Department of Health and Social Care</a> <a href="/NICEComms/">NICE</a> <a href="/MHRAgovuk/">MHRAgovuk</a> 

forgottenlives.uk//
Mark Oakley (@markoak04974342) 's Twitter Profile Photo

You'll be in no doubt how the immuncompromised have been forgotten and affected after visiting our new website Time for #Change to happen. Waited 4 years too long Lets start making the change now forgottenlives.uk Andrew Gwynne MP Wes Streeting @dhsc NICE MHRAgovuk

You'll be in no doubt how the immuncompromised have been forgotten and affected after visiting our new website

Time for #Change to happen. Waited 4 years too long

Lets start making the change now

forgottenlives.uk

<a href="/GwynneMP/">Andrew Gwynne MP</a> <a href="/wesstreeting/">Wes Streeting</a> @dhsc <a href="/NICEComms/">NICE</a> <a href="/MHRAgovuk/">MHRAgovuk</a>
Eileen Molloy (@dirtybird12345) 's Twitter Profile Photo

Thanks to Nikola Brigden Mark Oakley Martin Paul Eve for your relentless efforts in supporting & providing invaluable info for the 1.8m still with no protection from Covid. Also the team who have produced our new website. Thank you David Smith for your ongoing support.

Thanks to <a href="/NikolaBrigden/">Nikola Brigden</a> <a href="/MarkOak04974342/">Mark Oakley</a> <a href="/martin_eve/">Martin Paul Eve</a> for your relentless efforts in supporting &amp; providing invaluable info for the 1.8m still with no protection from Covid. Also the team who have produced our new website. Thank you <a href="/DavidSmithWales/">David Smith</a> for your ongoing support.
Martin Paul Eve (@martin_eve) 's Twitter Profile Photo

We have a new website at forgottenlives.uk! Thanks to Nikola Brigden, Mark Oakley, @AmandaDantutma, Rob Boxall, Vivid Imagination who built the site pro bono, and Jess Burley, among others. The archived previous site is available here: github.com/MartinPaulEve/…

We have a new website at forgottenlives.uk!

Thanks to <a href="/NikolaBrigden/">Nikola Brigden</a>, <a href="/MarkOak04974342/">Mark Oakley</a>, @AmandaDantutma, Rob Boxall, Vivid Imagination who built the site pro bono, and Jess Burley, among others.

The archived previous site is available here: github.com/MartinPaulEve/…
Forgotten Lives Uk (@4gottenlivesuk) 's Twitter Profile Photo

Remember this Wes Streeting Andrew Gwynne MP You need to put your money where your mouth is. The 500k is now 1.8M and the situation is worse now than it was then If you have any integrity then please arrange a meeting so we can at least discuss the issues and help you find a solution

Remember this <a href="/wesstreeting/">Wes Streeting</a> <a href="/GwynneMP/">Andrew Gwynne MP</a> 

You need to put your money where your mouth is. The 500k is now 1.8M and the situation is worse now than it was then

If you have any integrity then please arrange a meeting so we can at least discuss the issues and help you find a solution
Forgotten Lives Uk (@4gottenlivesuk) 's Twitter Profile Photo

We Need Your Help!! If you are immunocompromised please take time to filling our important survey. Its you chance to have your say. Please see below 👇 forgottenlives.uk/we-need-your-h…

Forgotten Lives Uk (@4gottenlivesuk) 's Twitter Profile Photo

Thank you Andrew Gwynne MP for taking the time to meet with APPG on Vulnerable Groups to Pandemics Johanna Baxter MP and discussing the report we assisted in drafting. We look forward to positively enaging further to help improve the delivery of care for the immunocompromised community.

Thank you <a href="/GwynneMP/">Andrew Gwynne MP</a> for taking the time to meet with <a href="/APPG_VGP/">APPG on Vulnerable Groups to Pandemics</a> <a href="/JohannaBaxter/">Johanna Baxter MP</a> and discussing the report we assisted in drafting.

We look forward to positively enaging further to help improve the delivery of care for the immunocompromised community.
Forgotten Lives Uk (@4gottenlivesuk) 's Twitter Profile Photo

We are incredibly grateful to the ACP-UK for all of the hard work put into producing this important report into the mental health of immunocompromised patients at continued risk of COVID-19 acpuk.org.uk/still-shieldin…