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Welcome to Twitter NEEMO! 👋 👋 👆Definitely worth a follow for updates on understanding the role of inhaled therapies for people with #cysticfibrosis on modulator treatments Cystic Fibrosis Trust Cystic Fibrosis Foundation cf/Aware

NEEMO is part of CFHealthHub #LearningHealthSystem. The 19-centre, 607-patient RCT to support treatment-taking in adults with #cysticfibrosis is published in May ThoraxBMJ. Fantastic to find ways to increase #Adherence while decreasing perceived #TreatmentBurden. Link⬇️

Being part of a #learninghealthsystem means that data gathered by technology is built into routine CF care. This enables the delivery of projects such as NEEMO, a real-time health technology assessment of Kaftrio, as well as other systems optimisation projects. The Health Foundation 3/3

This is fantastic CFHealthHub Congratulations #CFHealthHub team! Sharing with our a few of U.S. learning network colleagues ImproveCareNow™ IROC - Improving Renal Outcomes Collaborative All Children Thrive ACTION T1D Exchange CMLannon Learning Health Networks Aricca Van Citters TDI Coproduction Laboratory Quynh Tran #CFQI Cystic Fibrosis Foundation

The #LearningHealthSystem makes our NEEMO research possible. Have a look at this accessible & quick to read The Health Foundation report to understand more about CFHealthHub and learning health systems.

Fantastic to see NEEMO highlighted as part of the discussion around the need for preventative inhaled therapies alongside #CFTRmodulator treatment. Thanks to Maggie McIlwaine for including our study in this #NACFC2022 session. More information here: cfhealthhub.com/resources/effi…

Exciting developments in mRNA therapies for #CysticFibrosis and a reminder that understanding and supporting adherence to inhaled therapy remains important as new therapies develop NEEMO CFHealthHub #NACFC2022

Morning #nacfc2022. Interested in impacts of preventative inhaled therapy on outcomes with #ETI #Trikafta? Visit NEEMO at poster 301, follow NEEMO CFHealthHub, visit our website cfhealthhub.com or dm me if you’d like to chat or retweet to let your colleagues know.

Attending #NACFC2022 and want to know more about NEEMO CFHealthHub? Have a look at our pinned tweet for info: x.com/neemocf/status…

We’ve made a few changes to our website recently like adding our recent #Awards and some new #Team members. We’ve also updated the NEEMO page! Go check it out to find out more about what we do 👉 CFHealthHub.com

#Adherence to inhaled therapies remains an important issue in the post CFTRm era. The NEEMO research programme is designed to better understand the impacts of the choices of pwCF to stop or continue nebs when taking CFTRm. #ECFS2023

Come and chat to us about @Neemocf at poster 147 tomorrow at 2pm. #ECFS2023

“The lung function is still higher than before”. Using a framework to help pwCF & clinicians to pay attention to drops in lung function post CFTRm may be helpful. Hear about the PLUTO framework within the CFHealthHub programme at poster 209. #ECFS2023

Thanks to Karen Bon Berg for highlighting NEEMO as one of the studies working to answer the question of how much inhaled therapy is needed alongside CFTR modulators. Find out more #NACFC2023 on Saturday in session W53 or at poster 613.