You don't want to miss this webinar by our very own Donald J. Bearden! He will be discussing neuropsychology's evolving role in functional mapping using SEEG. Register now at massneuropsych.org

We're hiring! We're looking for a part-time Chief Scientific Officer to expand the ASXL collaborative research network, lead our research strategy, and manage our research-related initiatives. More info/apply at arrefoundation.org/hiring

Announcing the DRAGONFLY Study, a global registry! This is the next step in our efforts to combine ALL patient data on #SCN2A. The Foundation recently shared its SCN2A CTRS data with the Critical Path Institute (C-Path)'s RDCA-DAP. Thank you National Organization for Rare Disorders (NORD) scn2a.org/pdf/EINPresswi…

NEWS: We have been selected as a partner for a Rare Epilepsy Partnership Award by @CUREEPILEPSY! We are now eligible to co-fund a grant focused on the ARRE Foundation’s research priorities to accelerate progress in ASXL research. Stay tuned for a future request for application!

🕓 Time is running out to sign up for the BITSY SIG webinar THIS Thursday 4/25 at 4pm EST! Renée Lajiness-O'Neill, PhD will present A Novel Method to Longitudinally Track Infant and Toddler Developmental Status: PediaTrac buff.ly/4b8jdHE

Join us for the INS BITSY SIG webinar on 4/25 at 4 PM Eastern: bit.ly/49zS13z

Important tumor screening guidelines for those with ASXL1-related disorder

Join us to discuss #clinicaloutcomes in #raredisease with speakers from UCLA, Nationwide Children's Hospital, and Newcastle University. #Genetics #Research

Congrats on this amazing grant @calliopeholing!!! Can’t wait to see all that will come from this research!!!

🚨Important Rescheduling Alert - INS BITSY SIG webinar with #DrGwenGerner to October 24th at 4pm!

There is one week left to vote for INS Board of Directors! I am running for North American Member at Large. Read my full bio and vision here: the-ins.org/current-member…

The BITSY SIG is hosting three webinars this fall! First up is Launching the NIH Baby Toolbox: A New Developmental Assessment for Infants and Toddlers on Oct 10 at 4 PM EST! Register at BIT.LY/NIH_BABY_TOOLB… 🍂 Check out the full fall webinar series in the attached image

The fall BITSY SIG webinar series continues with a BITSY Case Conference on October 24th at 4pm EST! Don't miss Gwendolyn Gerner, Psy.D.'s presentation! Register today at buff.ly/4h3EINV

Attention #BITSYSIG members attending INS #INS2025inNOLA! For planning purposes, would you attend a Social Hour on Thursday, Feb 13th at 1:15pm? Please like this tweet if you’re in! More details to follow.