Myotonic Dystrophy Foundation (@myotonicstrong) 's Twitter Profile
Myotonic Dystrophy Foundation

@myotonicstrong

The world's largest patient organization focused solely on #myotonicDystrophy. Our mission is Community, Care, and a Cure.

ID: 57077248

linkhttp://www.myotonic.org calendar_today15-07-2009 17:25:38

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Dyne Therapeutics (@dyne_tx) 's Twitter Profile Photo

Our #Dynamos wore green in support of International #MyotonicDystrophy Awareness Day. Today and every day, we are inspired by our community, which fuels our efforts to deliver a potentially transformative therapeutic for individuals living with #DM1.

Our #Dynamos wore green in support of International #MyotonicDystrophy Awareness Day. Today and every day, we are inspired by our community, which fuels our efforts to deliver a potentially transformative therapeutic for individuals living with #DM1.
Myotonic Dystrophy Foundation (@myotonicstrong) 's Twitter Profile Photo

🔬Over 40 leading biopharmaceutical companies & institutions are racing to develop promising research which may lead to the first FDA-approved treatments & a cure for #MyotonicDystrophy. 🧬 Support DM research & drug development, raise awareness today! 💚🌍myotonic.org/international-…

🔬Over 40 leading biopharmaceutical companies & institutions are racing to develop promising research which may lead to the first FDA-approved treatments & a cure for #MyotonicDystrophy. 🧬 Support DM research & drug development, raise awareness today! 💚🌍myotonic.org/international-…
UAlbany Gov Relations (@ualbanygovrel) 's Twitter Profile Photo

Tonight, all across NYS, iconic landmarks like Niagara Falls, Empire State Plaza, Moynihan Train Hall, and the Gov. Mario M. Cuomo Bridge are being lit in green in recognition of International Myotonic Dystrophy Awareness Day. University at Albany The RNA Institute

Tonight, all across NYS, iconic landmarks like Niagara Falls, Empire State Plaza, Moynihan Train Hall, and the Gov. Mario M. Cuomo Bridge are being lit in green in recognition of International Myotonic Dystrophy Awareness Day. <a href="/ualbany/">University at Albany</a> <a href="/TheRNAInstitute/">The RNA Institute</a>
UAlbany Gov Relations (@ualbanygovrel) 's Twitter Profile Photo

Much love & appreciation to all the researchers at @UAlbany's The RNA Institute and elsewhere who are working tirelessly to put an end to this terrible disease.

Much love &amp; appreciation to all the researchers at @UAlbany's <a href="/TheRNAInstitute/">The RNA Institute</a> and elsewhere who are working tirelessly to put an end to this terrible disease.
Humphrey (@omeoga_humphrey) 's Twitter Profile Photo

In honor of International Myotonic Dystrophy Awareness Day, important landmarks e.g., The Egg and Empire State Plaza are lighted up green in Albany The RNA Institute

In honor of International Myotonic Dystrophy Awareness Day, important landmarks e.g., The Egg and Empire State Plaza are lighted up green in Albany <a href="/TheRNAInstitute/">The RNA Institute</a>
Kelly Morrison (@morrison4mn) 's Twitter Profile Photo

Today is International Myotonic Dystrophy Awareness Day. Thanks to the incredible Zabezhinsky family, buildings and bridges in Minneapolis are lighting up green tonight to honor the children and families impacted by this disease. cbsnews.com/minnesota/news…

The RNA Institute (@thernainstitute) 's Twitter Profile Photo

Lighting up NY landmarks in green in recognition of International Myotonic Dystrophy Awareness Day. Thanks to efforts from UAlbany Gov Relations team in making this possible #NiagaraFalls #EmpireStatePlaza #GovMarioCuomoBridge #AlfredESmithStateOffice #CarillonTower #ualbany

Lighting up NY landmarks in green in recognition of International Myotonic Dystrophy Awareness Day. Thanks to efforts from <a href="/UAlbanyGovRel/">UAlbany Gov Relations</a> team in making this possible
#NiagaraFalls #EmpireStatePlaza #GovMarioCuomoBridge #AlfredESmithStateOffice #CarillonTower #ualbany
筋強直性ジストロフィー情報集 (@myotonica_info) 's Twitter Profile Photo

Congratulations on the International Myotonic Dystrophy Awareness Day! On this day, DM-family held a tea party in Omiya, Japan. #InternationalMyotonicDystrophyAwarenessDay

Congratulations on the International Myotonic Dystrophy Awareness Day!
On this day, DM-family held a tea party in Omiya, Japan.
#InternationalMyotonicDystrophyAwarenessDay
INCLIVA (@incliva_iis) 's Twitter Profile Photo

📰 La Red Temática Nacional en Distrofia Miotónica tipo 1 (RED-DM) muestra los avances en el desarrollo de las terapias en una sesión online abierta al público 🔗 incliva.es/la-red-tematic…

📰 La Red Temática Nacional en Distrofia Miotónica tipo 1 (RED-DM) muestra los avances en el desarrollo de las terapias en una sesión online abierta al público

🔗 incliva.es/la-red-tematic…
Muscular Dystrophy Canada (@md_canada) 's Twitter Profile Photo

On September 15, we recognize International #MyotonicDystrophyAwarenessDay, and today we’re highlighting the inspiring story of Michel LeBoeuf. Diagnosed with Myotonic Dystrophy in 2011, Michel set out to achieve his dream of running a marathon. Despite spraining his ankle at

On September 15, we recognize International #MyotonicDystrophyAwarenessDay, and today we’re highlighting the inspiring story of Michel LeBoeuf.

Diagnosed with Myotonic Dystrophy in 2011, Michel set out to achieve his dream of running a marathon. Despite spraining his ankle at
Myotonic Dystrophy Foundation (@myotonicstrong) 's Twitter Profile Photo

✨ Yesterday, the @thernainstitute at the University at Albany gathered community members, researchers, students, and more to celebrate landmarks lit green across the city! 💚 What a great way to honor International #MyotonicDystrophy Awareness Day! 🌎 Huge thanks to everyone who

筋強直性ジストロフィー情報集 (@myotonica_info) 's Twitter Profile Photo

At DM-family, we are pleased Prof. Masanori P. Takahashi, Osaka University Graduate School presented his research on Myotonic Dystrophy and contributed from the DM-family to the registry and the natural history research at AOMC-JMS 2024 on September 13th, 2024.

At DM-family, we are pleased Prof. Masanori P. Takahashi, Osaka University Graduate School presented his research on Myotonic Dystrophy and contributed from the DM-family to the registry and the natural history research at AOMC-JMS 2024 on September 13th, 2024.
DM1Research (@dm1research) 's Twitter Profile Photo

Dutch study: Ameliorated cellular hallmarks of myotonic dystrophy in hybrid myotubes from patient and unaffected donor cells stemcellres.biomedcentral.com/articles/10.11…

Myotonic Dystrophy Foundation (@myotonicstrong) 's Twitter Profile Photo

💚 Huge thanks to the Zabezhinsky Family for shining a light on #myotonicDystrophy by lighting up City of Minneapolis green & sharing their story on WCCO | CBS News Minnesota for International DM Awareness Day 🌎 & Senator Amy Klobuchar for championing federal research funding! cbsnews.com/minnesota/news…

💚 Huge thanks to the Zabezhinsky Family for shining a light on #myotonicDystrophy by lighting up <a href="/CityMinneapolis/">City of Minneapolis</a> green &amp; sharing their story on <a href="/WCCO/">WCCO | CBS News Minnesota</a> for International DM Awareness Day 🌎 &amp; Senator <a href="/amyklobuchar/">Amy Klobuchar</a> for championing federal research funding! cbsnews.com/minnesota/news…
Myotonic Dystrophy Foundation (@myotonicstrong) 's Twitter Profile Photo

🎉 US Advocates Take Action in Honor of International #MyotonicDystrophy Day! 💚 Learn about MDF's advocacy priorities 📋 & how your voice can make a difference in securing additional DM Research funding from the US Gov! 💪 Join us in making a difference - watch now at:

🎉 US Advocates Take Action in Honor of International #MyotonicDystrophy Day! 💚 Learn about MDF's advocacy priorities 📋 &amp; how your voice can make a difference in securing additional DM Research funding from the US Gov! 💪 Join us in making a difference - watch now at:
Myotonic Dystrophy Foundation (@myotonicstrong) 's Twitter Profile Photo

Have genetic testing and #MyotonicDystrophy questions? 🧬💭 Join certified genetic counselor, Shawna Feeley, MS, CGC, for an "Ask the Expert" webinar on DM & Genetic Testing! 🔗 Register to attend at: us06web.zoom.us/webinar/regist…

Have genetic testing and #MyotonicDystrophy questions? 🧬💭 Join certified genetic counselor, Shawna Feeley, MS, CGC, for an "Ask the Expert" webinar on DM &amp; Genetic Testing! 🔗 Register to attend at: us06web.zoom.us/webinar/regist…
Myotonic Dystrophy Foundation (@myotonicstrong) 's Twitter Profile Photo

Strong Memorial Hospital lit up green for International. #MyotonicDystrophy Awareness Day, honoring 30+ years of progress toward treatments. 💚Huge thanks to Dr. Thornton, Dr. Hamel, & the UR Medicine team for their dedication! The Wellstone Center’s partnership renewal with FLORIDA

Strong Memorial Hospital lit up green for International. #MyotonicDystrophy Awareness Day, honoring 30+ years of progress toward treatments. 💚Huge thanks to Dr. Thornton, Dr. Hamel, &amp; the <a href="/UR_Med/">UR Medicine</a> team for their dedication! The Wellstone Center’s partnership renewal with <a href="/UF/">FLORIDA</a>