Most respondents got this right (it's 500k)! To find out more about trends in the current and projected WES/WGS capacity in Europe, watch the talk by Shaman Narayanasamy 🔝 in the evening session "C16 - The Interplay of Law, Policy and Genomics" #ESHG2020

“Because of the manifold possibilities to reuse genomic data, enabling sequenced individuals to access their own raw (uninterpreted) genomic data is a highly debated issue,” says Shaman Narayanasamy 🔝 #ESHG2020 #genomedataacess

In a few minutes, Shaman Narayanasamy 🔝 is going to talk about personal genome data access and retention policies for genome sequenced individuals in Europe! We are all looking forward to the presentation, waiting mode is on :) #ESHG2020

“We started with a simple question: are genome/exome sequenced individuals able to access their data?” Shaman Narayanasamy 🔝 at #ESHG2020 (If you are interested to read the full publication on which this presentation is based, you can find it here): frontiersin.org/articles/10.33…

Hundreds of thousands of genomes and exomes have been sequenced in Europe. And there is significant unrealised sequencing capacity. Shaman Narayanasamy 🔝 at #ESHG2020

Are European clinical and genomic research institutions prepared to handle data access requests from sequenced individuals (i.e. right to data portability)? Other GDPR requirements? (e.g. right to be forgotten) #ESHG2020 #Access #GDPR

I you are interested in #clinical #genetics, you should definitely check out the poster of Dr. Robert Koesters at 13:00. We have ranked low-penetrant diseases based on their actionability for inclusion in predictive genetic testing #ESHG2020

Poster presentation coming up at 13:00 #ESHG2020

P23.02.B - Managing actionable secondary findings beyond high-penetrant genes through personalised health surveillance #ESHG2020 Poster presentation 13:00-13:45

P23.02.B. Poster presentation at 13:00 What are the most suitable genetic diseases for enabling #prevention among healthy individuals? We've ranked diseases to find out! For more, check out the poster poster presentation! #ESHG2020

How to realise the promise of genome-informed prevention in a cost-efficient way, while minimising the potential harm from reporting genetic risks to healthy individuals? Check out our poster P23.02.B. to find out! #ESHG2020

Today, at 11.45, an employee of Megeno & a graduate-to-be of uni.lu, Adriana Blazkova, will talk about her thesis on medical genetics in preventive healthcare in Europe. We sincerely thank Adriana, uni.lu & SnT for collaboration on this study! #ESHG2020

In five minutes Adriana will present her poster on the current status and future directions of Medical Genetics in Preventive Healthcare in Europe! Looking forward to it! #ESHG2020#UniversityofLuxembourg#unilu

“The main objective of this study is to investigate how prevention centres integrate genetics-related aspects into their practice,” says Adriana. #ESHG2020 #UniversityofLuxembourg #unilu

Merry Christmas and happy holidays! Our very best wishes for a healthy, prosperous and brighter 2021! Yours, Megeno

Happy Data Privacy Day 2021! Sincerely, Megenos