We are grateful for #LymeChampion Senator Tina Smith with @craterjeffrey & @meghancbradshaw for being an original co-sponsor of the Kay Hagan Tick Act and supporting federal funding for #Lyme and tickborne conditions. #LymeIsATeamSport Thank you Senator Tina Smith !!

It's time to go back to Washington, D.C.! Please join us for an in-person event and reception on Mon June 3, 2024 from 4-7pm #Lyme and Military Readiness. Learn more bit.ly/2R6NyjT Bay Area Lyme Foundation Project Lyme Texas Lyme Alliance Colorado Tick-Borne Disease Awareness Association LymeDisease.org LymeLight Foundation NatCapLyme

We are grateful for #LymeChampion Congressman Seth Magaziner with @craterjeffrey & @meghancbradshaw supporting federal funding for #Lyme and tickborne conditions. #LymeIsATeamSport Thank you Congressman Seth Magaziner !!

It's been a busy #Lyme Awareness month! Thank you to all the terrific non-profits working to engage the public in May and raise awareness Bay Area Lyme Foundation Project Lyme Steven & Alexandra Cohen Foundation Texas Lyme Alliance LivLymeFoundation LymeDisease.org LymeFightFoundation Global Lyme Alliance ILADS/International Lyme & Assoc. Diseases Society LDA Colorado Tick-Borne Disease Awareness Association

The ⁦National Academies⁩ #IACI meeting is kicked off today with @negraconlyme Rhisa Parera “by the time I received my diagnosis I felt like I won the lottery” #lyme

"I'd been following patients for 20 years." TY Dr Aucott John Aucott for doing the SLICE Study Johns Hopkins University to prove that chronic #Lyme disease exists. 14% patients had symptoms after antibiotic treatment @thenasem Steven & Alexandra Cohen Foundation Bay Area Lyme Foundation Project Lyme Texas Lyme Alliance Colorado Tick-Borne Disease Awareness Association

Here's a list of pilot studies provided by John Aucott Johns Hopkins University to understand the disease mechanisms for #Lyme. These are pilot studies with small numbers of patients due to lack of funding Bay Area Lyme Foundation Project Lyme Colorado Tick-Borne Disease Awareness Association LymeDisease.org Texas Lyme Alliance LymeX Steven & Alexandra Cohen Foundation

High patient demand exists for #Lyme disease clinical trials but study directors have challenges finding patients that meet strict enrollment criteria to create believable studies. #NeedLymeDiagnostics John Aucott National Academies Bay Area Lyme Foundation LymeX Steven & Alexandra Cohen Foundation Nicole Malachowski

Still early days for research on chronic #Lyme . NIH produced Strategic Plan for TBD Research bit.ly/3zFZrGb, funded 7 R01 project in 2023. More federal funding required. LymeDisease.org Steven & Alexandra Cohen Foundation LymeX Nicole Malachowski Project Lyme Bay Area Lyme Foundation Texas Lyme Alliance Colorado Tick-Borne Disease Awareness Association

Bill Robinson Stanford University is studying whether Epstein–Barr virus (EBV) is a trigger for persistent or chronic #Lyme . Presented National Academies meeting today Bay Area Lyme Foundation Project Lyme Colorado Tick-Borne Disease Awareness Association LivLymeFoundation Texas Lyme Alliance Steven & Alexandra Cohen Foundation Kristen Honey 🐝 Nicole Malachowski LymeLight Foundation LymeX

John Leung Tufts University studying surface proteins and showed that the >80 proteins on the surface of Borrelia burgdorferi (Bb) decrease significantly when the bacteria is cultured in the lab. They found workarounds for completing studies. Bay Area Lyme Foundation Project Lyme LymeDisease.org

Bill Robinson Stanford University studies the immune system and #Lyme . His work shows a big immune response (e.g. large numbers of plasmablasts) in Acute #lymedisease is associated with patients that return to health. LymeDisease.org Bay Area Lyme Foundation Project Lyme Kristen Honey 🐝 National Academies LymeDisease.org

Dr. Charles Chiu UC San Francisco asks whether one commonality across Infection Associated Chronic Illness is "T Cell Exhaustion" where T Cells are unable to kill certain cells (e.g. Borrelia burgdorferi) bit.ly/3S31E50 Bay Area Lyme Foundation Project Lyme NIAID News Avi Nath

Elliott Cowan former FDA reviewed challenges for developing novel diagnostic tests for #Lyme . This is a critical question and suggested (1) correlate samples with patient histories (2) use multiple test algorithms Bay Area Lyme Foundation Project Lyme LymeX Steven & Alexandra Cohen Foundation Kristen Honey 🐝 National Academies

Liz Horn Lyme Disease Biobank Bay Area Lyme Foundation presents this list of US-based #IACI sample collections National Academies . Enrollment techniques are unique to each biobank Project Lyme Texas Lyme Alliance Colorado Tick-Borne Disease Awareness Association Global Lyme Alliance LivLymeFoundation LymeDisease.org NatCapLyme LymeX NIAID News Steven & Alexandra Cohen Foundation

Good news! Last week House Appropriations Committee approved increases for Lyme & Tickborne Conditions. FY25 HHS NIH funding up by $25M. Read more bit.ly/3zNjimZ TY to >2000 advocates across the US! LymeDisease.org Bay Area Lyme Foundation Project Lyme Texas Lyme Alliance LivLymeFoundation Global Lyme Alliance

Sad to lose #Lyme Warrior Pat Smith. She was a fighter even when #LymeDisease was considered a RARE disease. Now #CDC estimates 476,000 cases each year! More than new cases of #breastcancer. Read more bit.ly/4czS0Ox Bay Area Lyme Foundation Steven & Alexandra Cohen Foundation Project Lyme Colorado Tick-Borne Disease Awareness Association

Yes! Pat started working on Lyme when there was a tremendous amount of heavy lifting required. Thank goodness she and others spent so much energy on moving the field forward. More to do though! We still need a good #Lyme diagnostic & a reliable therapeutic for chronic Lyme

Center for Lyme Action 's Gov't Relations Manager, Meghan Bradshaw, is participating in the important Lyme Disease Biobank tissue project. TY Meghan and all the persistent #Lyme patient donors. To learn more read bit.ly/4d1z77z Bay Area Lyme Foundation LymeDisease.org Lyme Disease Biobank Kristen Honey 🐝 NIH CDC

The field of Lyme diagnostics is moving forward! In a historic announcement this week, ID-FISH Technology (sister company of IGeneX, Inc.) announced FDA approval of their iDart™ Lyme IgG ImmunoBlot Kit. bit.ly/4dSbAqK bit.ly/3Xcv3LL Bay Area Lyme Foundation Lyme Disease Biobank