Recovery is possible, especially when you are almost recovered! We have to see the funny side sometimes!

Great advice, no academics should be working alone and its not easy to be a clinician and do research and deal with constant disappointment. For myself personally, without my core inner drive to support people, i would have given up in my field years ago, and gone into the

Well said Prof Ponting, there is no national strategy to fund ME and LongCovid research and we badly need one, and funders could set this up Medical Research Council National Institute for Health and Care Research - yes some big grants have been given out post Covid, but we need a sustainable funding strategy, to do more.

Lots of interesting findings in this paper - strikes me many people living with ME/CFS patients are seeking to control symptoms of immune activation and inflammation - some relief with alternative approaches and traditional meds like anti-histamine, but recovery uncertain -

#MECFS25 Here is the agenda for our upcoming Community Symposium on September 5! It will be recorded for those who cannot attend. Register Here: stanford.zoom.us/webinar/regist…

I have been off X for a few months, but back on today to say I am attending the yearly Stanford University ME/CFS working group meeting and delighted to be so inspired by the amazing research and researchers dedicating their time to moving the field forward, each year I see

Back for another day at the Stanford ME-CFS working group today, yesterday a talk by Dr Brayden Yellman on the topic of MCAS, which sparked ideas on writing up what drs can do right now to help and treat some of the issues people with ME/CFS are dealing with, eg POTs, MCAS and so

Shocking really, its much worse to ignore the reality or existence of LongCovid or ME/CFS in either adults or children, than to decide the name is harmful!

Prof Sir Simon Wessely is to oversee some sort of Government investigation into over diagnosis of mental health illness and ADHD. I must remind folks that Wessely argued ME/CFS was nothing but an illness of belief, he said Gulf War Syndrome was a hysteria, and he argued

disabilitynewsservice.com/alarm-over-gov…

Prof Russell Viner (Chief Scientific Adviser to the DfE) is asked whether he’s ever provided advice on Long Covid in children - he ponders whether he should answer, tries to recall civil service code, even though he says he is not a civil servant, but works as an advisor, and

I think the PM is out of touch with feelins on digital ID and dare I say, he is doing a voice over and we dont hear bim talking to anyone in this video. We see him speaking to some people, no hear him, so we dont hear the views of the people - um, yes, thats a good way to put it!