As we have mentioned before, GAN patients eventually require scoliosis surgery. The recovery is usually very difficult due to the other complications related to GAN. We hope Levi’s recovery goes smoothly. facebook.com/story.php?stor…

Update on Levi facebook.com/JustinsTriumph…

AmazonSmile has donated over $100 million to charities thanks to customers shopping at smile.amazon.com. To celebrate, AmazonSmile is donating 5% (ten times the usual amount) to Hannahs Hope for Giant Axonal Neuropathy Inc when you shop... smile.amazon.com/ch/45-0593226

ABC13 Houston's game of the week was the Thomas vs. St. Pius X High School. ABC13-Pooja Lodhia interviewed Senior Justin Clark who recently received his Eagle Scout (Troop 222 Bellaire) about GAN and what he is doing to help raise awareness. abc13.com/4657385/

Love our GAN family. We are small in number but mighty. facebook.com/story.php?stor…

Hannah's Hope Fund - DOUBLE your DONATION p0.vresp.com/XTCliS #vr4smallbiz hosted-p0.vresp.com/821395/83b8026…

Thanks for the support so far. Tomorrow is the BIG Day. Please consider donating at 8am EST so your donation will be doubled through #GivingTuesday. Help us find a cure for GAN facebook.com/JustinsTriumph…

Thanks to everyone who has already given! Please share this on your page and help us reach our goal. We have a separate donor who will match an additional $10K that isn't matched through #GivingTuesday so please... facebook.com/JustinsTriumph…

We are almost 1/2 way to our goal! Thanks to everyone who has donated. facebook.com/JustinsTriumph…

Please consider making a year-end gift to Hannah's Hope Fund. Sara is racing on Saturday and there is money for the top fundraisers! If we can raise $300 more before noon CST tomorrow, we will get an additional $400 facebook.com/JustinsTriumph…

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Consider helping us celebrate Rare Disease Day by donating $7.60 to help us find a cure for GAN. That's just 10 cents for each of the 76 known patients with GAN Worldwide. The top 20 fundraisers at The Woodlands... facebook.com/JustinsTriumph…

#RareDiseaseDay facebook.com/JustinsTriumph…

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Thankful for everyone who ran for GAN today in The Woodlands Marathon! facebook.com/story.php?stor…

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These awesome kids volunteered for IRONMAN Texas this Saturday on behalf of Hannah's Hope For GAN. We will receive one of the community grants thanks to their service. facebook.com/JustinsTriumph…

Please sign up ASAP in order to ensure a shirt in your child's size. Ages 5-15 facebook.com/JustinsTriumph…

Houston Friends, consider volunteering if you don't have an athlete aged 5-15 who is racing. Use this link to volunteer: signupgenius.com/go/4090c49a5a6… facebook.com/JustinsTriumph…