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#pharming $PHAR #leniolisib #raredisease #PI #investment Voor investeerders en medische media: Pharming Group NV kondigt vandaag uitbreiding aan van zijn pijplijn voor zeldzame ziekten met plannen om zijn PI3K-delta-remmer te ontwikkelen voor aanvullende (PID's) met

Read the interview between Kristie and Tyler and learn more about Tyler’s journey living with #APDS on Behind the Mystery, part of The Balancing Act -a LifeTimeTV program- devoted to advocating for rare and genetic diseases. bit.ly/47gnbfh #raredisease #pharminggroup

Exciting news! 🌟Introducing our next poster to mark 50 days until Rare Disease Day! 💗 Download it here: rarediseaseday.org/downloads/ If you'd like to translate it, email us at [email protected]! Join us in lighting up the world with awareness! #RareDiseaseDay #Awareness

🗓 𝐖𝐞𝐝, 𝟑𝟏 𝐉𝐚𝐧, 𝟏𝟕:𝟑𝟎 𝐂𝐄𝐓 Don't miss our webinar for all healthcare stakeholders involved in Plasma Derived Medicinal Products (PDMPs) and Immunoglobulins (IgGs). Hear from 13 experts discuss the need & solutions to provide equitable & appropriate access to IgGs

IPOPI recent #NMOWebchat gathered 37 participants from 24 countries! 📷 Big thanks to Dr Adli Ali for his captivating interactive demo on exploring and analysing #PID patient care access worldwide through the lens of the #PIDLifeIndex. 📷Thanks to all who participated!

Inspiring! Plasma donors are everyday heroes whose gift give patients a chance to live healthier, longer lives. Thank you, donors! 👇

PIDs Patients from China support Rare Disease Day! #RareDiseaseDay #ShareYourColours

In IPOPI Regional Asian PID Patients and Doctors meeting in Tokyo, we had discussions and exchanges with partners from 13 countries and regions in the Asia. As national reps, we exchanged views and shared experiences, Let's accelerate collaboration for better PID care!

Research co-led by Professor Philip Li, Professor Liu Pengtao and Professor CS Lau has pioneered a new stem cell model to help personalise treatment for patients with rare forms of immunodeficiency. For more: hkumed.hk/wsh

🌟 Visit our page to access exclusive video messages from our #PID Ambassadors 🌐 Ruediger.Krech of World Health Organization (WHO) and 🇨🇳Dr. Liu Zhong, Director of the Key Laboratory for Adverse Reactions to Blood Transfusion at the Chinese Academy of Medical Sciences. bit.ly/4b7nLOx 👇

[WPIW]Exploring Diseases through Art - A Touring Exhibition on PID at Pharmaceutical Colleges" made its debut at China Pharmaceutical University on April 21st! This marked a significant step in PID awareness within pharmaceutical education.World Primary Immunodeficiency Week IPOPI

The little girl's crisis management is very good. 😂

🌍 International Plasma Awareness Week is almost here, and we're excited to unveil something special! Join us on an inspiring journey to discover how plasma becomes life-saving medicines like immunoglobulins for patients with immunodeficiencies. 📅 Stay tuned for the release

At IPAW, to honor the selfless contributions of plasma donors, PID patients in China have specially recorded a heartfelt video expressing their sincere gratitude. It is the generosity of these donors that gives patients hope for life! IPOPI PPTAEurope PPTA

The 2024 IUIS Inborn Errors of Immunity (IEI) Classification has arrived! Explore our latest insights now at iuis.org/committees/iei. Find the report under “Annual 2024 Report”!

There are now >550 inborn errors of immunity 🧬. Latest update from IUIS IEI c’tee is now available on IUIS website & will be formally published soon. Great to be part of this team providing an important resource for all. Well done Isabelle Meyts Cecilia Poli & all ctee members!

✨ See the Unseen – World PI Week Beijing! ✨ Let’s come together to celebrate and work towards a brighter future for all people living with PID around the world!💙💚IPOPI World Primary Immunodeficiency Week

💥 It’s ON! IPOPI is kicking off the World PI Week Flash Mob! 💥 Here we are — IPOPI’s staff and board — united to raise voices, smiles, and commitment to make Primary Immunodeficiencies visible. 💙🌍 We want the world to see the daily challenges, the diagnostic delays, the

🎉 Together with China Resources Boya, we lit up the night with hope and love! To mark World PI Week this year, more than 250 Boya employees joined a glowing night run under the theme “See the Unseen, Run with Love,” symbolizing lighting the way for people living with PID.