🌟 Dive into our second testimonial column and meet the inspiring young PhD researcher, Ms. Mariana Delgadinho! 🌟 Discover more about her journey with HELIOS!🚀🔬 #HELIOS #Research #PhDLife #MolecularResearch #Haemoglobinopathies #Hemoglobinopathies #COST

We're pleased to announce the global Ph. 3 ENERGIZE-T study in adults with transfusion-dependent alpha- or beta-#thalassemia achieved its primary endpoint of transfusion reduction response with potential to become a novel advancement in care for patients. investor.agios.com/news-releases/…

Join the 19th Academy for Sickle Cell & Thalassaemia (ASCAT) in London! Submit your research by June 16th: ascatconferences.com #helios #heliosaction #research #sicklecell #thalassemia

Earlier this week we announced positive results from our global Phase 3 ENERGIZE-T study in adults with transfusion-dependent alpha- or beta- #thalassemia. Check out key takeaways from the data below.

Explore our third testimonial column featuring the remarkable young PhD researcher, Ms Mikaela Kontopoulou, who won the second Best Flash Talk award during our training school in Athens. Don't miss out on her testimonial! 🚀🔬 #HELIOS #CING #Hemoglobinopathies #COST

Meet Dr. Sotiroula Chatzimatthaiou, Grant Holder Manager for HELIOS project! heliosaction.eu #helios #heliosaction #costassociation

SCDAA & GASCDO are recognizing the theme “Hope Through Progress: Advancing Sickle Cell Care Globally" for this month's #WorldSickleCellDay. Let's work together to help amplify the voices of #sicklecell warriors & help drive meaningful change. sicklecelldisease.org/get-involved/e…

#EUfunded Initiative 🇪🇺👉 INHERENT, the international network leading a large-scale, multi-ethnic & genome-wide association study for #hemoglobinopathies🌐 inherentnetwork.org NeurologyGeneticsCyp ClinGen SickleInAfrica The ITHANET Portal ARISE ERN EuroBloodNet

HELIOS: 🩸🌍 Uniting, Harmonizing, Educating Catch the highlights from our Athens meeting! 🎥✨ Huge thanks to all our amazing leaders and members. Your smiles and ideas are shaping our future! Join us! #HELIOS #Hemoglobinopathies #Community

According to a new study published in Blood Advances, treatment with #hydroxyurea does not affect the #ovarian reserve in female #patients with #SCD. This suggests treatment may not harm #fertility as once feared.🌟 Read more: hematology.org/newsroom/press… #SickleCell #Research

VOXELOTOR WITHDRAWN FROM NHS. We are deeply shocked and extremely disappointed by Pfizer’s sudden decision to withdraw Voxelotor (OXBRYTA®)  from the NHS in the UK, and across the world. We were given no warning. Read our full statement here buff.ly/3N2Ec4E

✳️Thank you very much to all the participants who has joined us at the #RADeep Data Access Committee Meeting! ​🤝​It was a very productive and fruitful day of sharing. Let's keep working together! #ERNeu #ERNs #HealthUnion #EU4Health #ShareCareCure #haematology

The ARISE shared secondments have fostered collaboration and growth across institutions. As we gather for this final in-person General Assembly, we celebrate our achievements and the strong connections built. #SCD #collaboration #education

Thank you to Petros Kountouris (Petros Kountouris) of NeurologyGeneticsCyp for stopping by to introduce the HELIOS & INHERENT networks and the EU-funded HemaFAIR project! Find out more about these initiatives when we publish the interview to VJHemOnc.com!🎥 HELIOS COST Action

#ASCAT2024 just started and I am looking forward to the next couple of days! Academy for Sickle Cell & Thalassaemia (ASCAT)

We're thrilled to be at #ASCAT2024! Don’t miss Coralea Stephanou's talk on adapting the #ACMG/AMP framework for variant interpretation in #hemoglobinopathies — Thursday, October 3rd, in the Westminster room, Academy for Sickle Cell & Thalassaemia (ASCAT). #ClinGen

Find us this Friday, October 4th, at the Academy for Sickle Cell & Thalassaemia (ASCAT), Poster 55! We'll present IthaPhen — a manually curated, intuitive database of case reports, tailored for clinicians & molecular geneticists. Learn how IthaPhen can elevate your research and clinical practice. #ASCAT2024

Discover the latest findings from #INHERENT, which aims to study the role of genetic modifiers in hemoglobinopathies through a large, multi-ethnic genome-wide association study (GWAS). Check out the pilot study's first results this Friday, October 4th, at Poster 29. #ASCAT2024

Great grant opportunities from the HELIOS COST Action presented by Petros Kountouris (Petros Kountouris) at #ASCAT2024.

BREAKING NEWS The 2024 #NobelPrize in Physiology or Medicine has been awarded to Victor Ambros and Gary Ruvkun for the discovery of microRNA and its role in post-transcriptional gene regulation.