Royal London & Mile End IBD Patient Panel (@ibdpanel_rlh) 's Twitter Profile
Royal London & Mile End IBD Patient Panel

@ibdpanel_rlh

We're patients who meet & discuss #IBD services implementing improvements for all @RoyalLondonHosp & Mile End Hosp. email: [email protected]

ID: 867839410603216898

linkhttps://ibdpatientpanelrlh.wixsite.com/ibdrl-meh calendar_today25-05-2017 20:26:53

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Ampersand Health (@myamphealth) 's Twitter Profile Photo

Coming soon to My IBD Care! New content with Gastro Dietitian Dr Bridgette Wilson on the diets people with IBD often hear about. What do you want to know about navigating IBD and diet? Your questions could shape what we cover. #IBD #Crohns #UlcerativeColitis #IBDDiet #MyIBDCare

Coming soon to My IBD Care!
New content with Gastro Dietitian Dr Bridgette Wilson on the diets people with IBD often hear about.

What do you want to know about navigating IBD and diet? Your questions could shape what we cover.

#IBD #Crohns #UlcerativeColitis #IBDDiet #MyIBDCare
NHS England (@nhsengland) 's Twitter Profile Photo

Happy International Nurses’ Day! Thank you to all our amazing nurses for the care and support you provide to patients every day. 💙 With more than 50 different nursing roles in the NHS, no two nursing careers are the same. Learn more: healthcareers.nhs.uk/we-are-the-nhs… #IND2025

Happy International Nurses’ Day!

Thank you to all our amazing nurses for the care and support you provide to patients every day. 💙 

With more than 50 different nursing roles in the NHS, no two nursing careers are the same.

Learn more: healthcareers.nhs.uk/we-are-the-nhs…

#IND2025
Crohn's & Colitis UK (@crohnscolitisuk) 's Twitter Profile Photo

World IBD Day is one week away! 💜🌍 On 19th May, we stand together for the 500,000 people in the UK living with Crohn’s or Colitis. This year, we’re talking about courage. Share what courage means to you! For resources and ideas visit: crohnsandcolitis.org.uk/get-involved/w… #WorldIBDDay

World IBD Day is one week away! 💜🌍 

On 19th May, we stand together for the 500,000 people in the UK living with Crohn’s or Colitis.
This year, we’re talking about courage. Share what courage means to you!

For resources and ideas visit: crohnsandcolitis.org.uk/get-involved/w… 

#WorldIBDDay
The Bottom Line IBD (@bottomlineibd) 's Twitter Profile Photo

Are you an #IBD patient with experience of intestinal ultrasound (IUS)? This one's for you! ⤵️ The International Bowel Ultrasound Group (IBUS) is looking for patient representatives to join its Collaboration Committee. Details here: ibus-group.org/news/patient-r… Please pass it on!

Royal London & Mile End IBD Patient Panel (@ibdpanel_rlh) 's Twitter Profile Photo

Calling #IBD Patients, families & carers at #RoyalLondonHospital. Complete our survey, have your voices heard and help us implement improvements to your care. forms.office.com/r/Wd0MUFGCen #Patientengagement #PatientVoice #UlcerativeColitis #CrohnsDisease #PatientExperience

Calling #IBD Patients, families & carers at #RoyalLondonHospital.   

Complete our survey, have your voices heard and help us implement improvements to your care.   

forms.office.com/r/Wd0MUFGCen 

#Patientengagement #PatientVoice #UlcerativeColitis #CrohnsDisease #PatientExperience
Royal London & Mile End IBD Patient Panel (@ibdpanel_rlh) 's Twitter Profile Photo

Help scrap prescription charges for #IBD - contact your MP now! A Chronic Cost has been initiated and is fully funded by Tillotts Pharma UK. Visit their website to find out more shorturl.at/EvatD

Help scrap prescription charges for #IBD - contact your MP now!

A Chronic Cost has been initiated and is fully funded by <a href="/tillottspharma/">Tillotts Pharma</a> UK.

Visit their website to find out more 
shorturl.at/EvatD
Crohn's & Colitis Research (@crohnscolitisr) 's Twitter Profile Photo

There is still time to submit your research questions about endoscopy! If you've got lived experience of endoscopy or supporting a family member who has had one we want to hear from you. Guts UK Charity BSG surveymonkey.com/r/endoscopy-psp

Royal London & Mile End IBD Patient Panel (@ibdpanel_rlh) 's Twitter Profile Photo

Our next #IBDpatientpanel meeting will be in September. We will be reviewing the results of our recent survey and setting actions. A great opportunity for discussion and collaboration between Patients/ family/ carers and the #IBD team Sign up today to find out more #PatientVoice

Our next #IBDpatientpanel meeting will be in September.
We will be reviewing the results of our recent survey and setting actions.
A great opportunity for discussion and collaboration between Patients/ family/ carers and the #IBD team
Sign up today to find out more
 #PatientVoice
Royal London & Mile End IBD Patient Panel (@ibdpanel_rlh) 's Twitter Profile Photo

Join us for our next #IBDPatientPanel Meeting. This will be in hybrid format for the first time Open to all #IBD patients, Family and carers and staff at the #RoyalLondonHospital and Mile End Hospital. Email for more information

Join us for our next #IBDPatientPanel Meeting.
This will be in hybrid format for the first time

Open to all #IBD patients, Family and carers and staff at the #RoyalLondonHospital and Mile End Hospital.

Email for more information
Royal London & Mile End IBD Patient Panel (@ibdpanel_rlh) 's Twitter Profile Photo

📢 We’re Looking for Social Media & Website Volunteers! Are you passionate about making a difference and skilled with social media or websites? This could be one person doing both or two people, each focusing on one area. 📩 Interested? Send us a message or email

📢 We’re Looking for Social Media &amp; Website Volunteers!
Are you passionate about making a difference and skilled with social media or websites?
This could be one person doing both or two people, each focusing on one area.
📩 Interested? Send us a message or email
Ampersand Health (@myamphealth) 's Twitter Profile Photo

Confused about what to eat with #IBD? 🥗 Get guidance from Dr Bridgette Wilson, specialist IBD dietitian, plus hear from others in the community who have been there, all in our #MyIBDCare app. Make food work for you! #CrohnsDisease #UlcerativeColitis

Confused about what to eat with #IBD? 🥗
Get guidance from Dr Bridgette Wilson, specialist IBD dietitian, plus hear from others in the community who have been there, all in our #MyIBDCare app. Make food work for you! #CrohnsDisease #UlcerativeColitis
Royal London & Mile End IBD Patient Panel (@ibdpanel_rlh) 's Twitter Profile Photo

Join us for our next IBD Patient Panel Meeting. This will be in hybrid format for the first time Open to all IBD patients, Family and carers and staff at the Royal London and Mile End Hospital. We will be discussing the results of our Patient Survey Email for more information

Join us for our next IBD Patient Panel Meeting.
This will be in hybrid format for the first time
Open to all IBD patients, Family and carers and staff at the Royal London and Mile End Hospital.
We will be discussing the results of our Patient Survey
Email for more information
IA (Ileostomy and Internal Pouch Association) (@iasupport) 's Twitter Profile Photo

Join us for Pouch Information Day! Ask questions, speak openly, and learn from professionals and experienced pouch owners. Open to anyone with an interest in internal pouches. Please visit our website to learn more: bit.ly/41vSHWC #InternalPouch

Join us for Pouch Information Day! 

Ask questions, speak openly, and learn from professionals and experienced pouch owners. 

Open to anyone with an interest in internal pouches.

Please visit our website to learn more: bit.ly/41vSHWC

#InternalPouch
Royal London & Mile End IBD Patient Panel (@ibdpanel_rlh) 's Twitter Profile Photo

Requests for local IBD support and social groups was raised in our recent patient survey and in our Panel meeting last night. We have now added information about local and national IBD Peer Support and Social groups and events to our website. ibdpatientpanelrlh.wixsite.com/ibdrl-meh/ibd-…

Requests for local IBD support and social groups was raised in our recent patient survey and in our Panel meeting last night.
We have now added information about local and national IBD Peer Support and Social groups and events to our website.
ibdpatientpanelrlh.wixsite.com/ibdrl-meh/ibd-…
Crohn's & Colitis Research (@crohnscolitisr) 's Twitter Profile Photo

New Taking Part in Research opportunity! Researchers at King's College London want people living with IBD to complete a short online survey looking at experience of food and eating. Find out more 👉crohnsandcolitis.org.uk/get-involved/w…

New Taking Part in Research opportunity! 

Researchers at King's College London want people living with IBD to complete a short online survey looking at experience of food and eating. 

Find out more 👉crohnsandcolitis.org.uk/get-involved/w…
Crohn's & Colitis UK (@crohnscolitisuk) 's Twitter Profile Photo

Do you have #Crohns or #Colitis? Are you living with a #stoma or might be getting one? Do you wish to chat to others who may be going through similar experiences? You're not alone. Join us on 13th October at 6.30pm. Register Today: ow.ly/Z7gZ50X8yUb #IBD

Do you have #Crohns or #Colitis? Are you living with a #stoma or might be getting one? Do you wish to chat to others who may be going through similar experiences? You're not alone. Join us on 13th October at 6.30pm.

Register Today: ow.ly/Z7gZ50X8yUb

#IBD
Royal London & Mile End IBD Patient Panel (@ibdpanel_rlh) 's Twitter Profile Photo

Lets get talking and break down some barriers #InvisibleDisabilitiesWeek #CrohnsDisease #IBD #UlcerativeColitis #Stoma #PEG #Ileostomy #Colostomy #InvisibleDisability

Lets get talking and break down some barriers
#InvisibleDisabilitiesWeek #CrohnsDisease #IBD #UlcerativeColitis #Stoma #PEG #Ileostomy #Colostomy #InvisibleDisability