The Department of Health and Social Care still haven't added motor neurone disease to the extremely vulnerable persons list during #Covid19. We're concerned for those affected by #MND. Take action and call on your MP to put pressure on the GOV.UK. Visit 📩 bit.ly/CovidEmailMP! #Coronavirus

Hi Matt Hancock I know you’re really busy right now, but just a reminder those with Motor Neurone Disease have been left off the ‘extremely vulnerable’ list. It’s a terminal illness & many have respiratory as well as mobility issues. Please, please reconsider & include them🙏

#MND affects my family so I'd like to know why people living with the disease aren't regarded as 'extremely vulnerable' from #coronavirus by Matt Hancock and Department of Health and Social Care ? Take 30 secs to help MND Campaigns #GetMNDonTheList by emailing your MP below⬇️ bit.ly/CovidEmailMP

I’m Katy, a #carer of someone living with #MND I’m asking Department of Health and Social Care⁩ to place people with #MND on the extremely vulnerable list. This ask is for our entire #MNDfamily & to make our hard lives a little easier. Thanks #GetMNDonTheList ⁦MND Campaigns⁩ ⁦MND Association⁩

Got my MND Association t-shirt on to show support, as those with MND *still* haven’t been put on Govt ‘extremely vulnerable’ coronavirus list. I can’t understand why, it’s a terminal illness & primarily a respiratory one. Advice if you have MND: mndassociation.org/about-mnd/coro… Matt Hancock 🙏

The MND Association is saddened to hear today’s news that Ian Pratt has died. Ian was a tireless MND awareness raiser and fundraiser, raising thousands, for his own Ian Pratt MNDF and the MND Association. Our thoughts are with his family and friends.

Thank you to over 1,200 supporters who have asked their MP to attend the next meeting of the All-Party Group on MND, which takes place this Friday. There’s still time to ask your MP to attend: bit.ly/2AoVC9I

Day 2: #RealCarersWeek #CarersWeek we’ve reached peak flannel today with no actions, just thanks. More annoyingly, we can’t even have one week to call our own any more. #CarersWeek to be clear is for all #UnpaidCarers. We have precious little else. #VisibleandValued

Massive thanks to all the team at #BBCBreakfast who - for the last three days - have helped #rugbyleague hero #RobBurrow highlight the reality of living with a brutal progressive fatal disease like #MND 🙏 Watch #MyYearwithMND on BBC iPlayer and at 1.15pm BBC One on Saturday 📺

#JanesJulabokaflodGiveaway

Final day tomorrow! RT Tweet below to be in with a chance to win a signed copy of Queen Bee! #JanesJulabokaflodGiveaway

Carer resilience? Seriously? How much more resilient can #UnpaidCarers get? We’ve been left to get on with it for a whole year. Quietly just getting on with our caring roles with next to no support, nor thought for a whole year. This is gaslighting.

Happy #Caturday

This pic was taken when I was on Lorraine talking about my amazing Dad who died from MND. I’m a patron of MND Association & am passionate about doing all I can to help raise awareness & funds to find a cure so other families don’t have to go through what we did. Let’s hope it’s soon🙏

Ice 92.... for MND Association .... thanks Leeds Rhinos Gemma Bonner for the nominations I pass the baton to Zoe Ball Sonali Shah 📺📻 @juleshudson raising money and awareness for MND families. Text 70085

Every week 42 MotorNeuroneDisease die from Motor Neurone Disease #MND in the #Uk. Please read the words in this news programme Justin Tomlinson and finally #scrap6months for all terminally ill people!!!

Day 9 of #JanesJolaBokaFlod is The Heights by Louise Candlish #ANeighboursGuideToMurder - RT this tweet before midday GMT tomorrow, 21st to be in with a chance to win #12BooksOfChristmas

Day 12 of #JanesJolaBokaFlod is Worst. Idea. Ever by me! RT this tweet before midday GMT tomorrow, 24th, to be in with a chance to win #12BooksOfChristmas

"You are never off duty, I haven't had any respite for eight or nine years" Katy had to give up her job to care for her husband Mark. The charity Carers Trust are calling for greater support for carers like Katy. More: bbc.in/3BaSxFK

❗TRIGGER WARNING❗ I lost my Mum to #MND two years ago. The trauma will live with me forever. Mum wanted me to tell her story - please read and raise awareness of this horrific disease. MND Association