Grace Science blog is back! Read our new blog post at gracescience.org/blog Have a blog idea? We'd love to hear from you! Sharing stories can help grow our community ❤️

Happy Holi to those that celebrate! And to everyone, we wish you joy and celebrations of new beginnings!

I'rish you a Happy St. Patrick's Day! May your day be filled with silly shenanigans and lots o' luck 🍀

Happy birthday to our March NGLY1 kiddos! 🎈🎈We wish you wonderful celebrations with your family and loved ones. Cheers to another year around the sun!

Wishing these kids the happiest of birthdays, and for all their birthday dreams to come true! Hope you have another year full of love, laughter, and joy! 🌿🌷🌞

Hoppy Easter everybunny!🐰Wishing you an egg-stra special Easter filled with sunshine, sweet treats, and lots of peeps! 🐥 Happy shell-ebrations! 🐣

Today is reminder to do our best to take care of the beautiful place we all call home! Plant a seed, hug a tree, and smile at the sky—Happy Earth Day! 🌳😊

A big thank you to all the families that joined our April NGLY1 Family Zoom call! We discussed general updates and introduced our NGLY1 Family Cookbook project 🍳🥞🧆. (submit your best recipes here to participate: gracesciencefoundation.box.com/s/x3imq1i2ay1w… ) Looking forward to chatting with you

We are incredibly appreciative of all mothers, and want to take a special moment to appreciate rare moms. Your love and dedication is a superpower, and we want to recognize all that you do! ♥️

Happy birthday to our May birthdays! Wishing everyone a joyful and colorful year! 🌷🌼🪻☀️

Remembering and honoring those we've lost. #MemorialDay

Starting June 9th, a group led by Tyson Black will run across the state of Tennessee to raise awareness for NGLY1 Deficiency and raise funds for the Grace Science Foundation. Inspired by a brave and beautiful 3-year-old girl named Callie, who is courageously fighting this

Wishing all Dads out there a Happy Fathers' Day, but Rare Dads deserve an extra hug today! Thank you for all that you do ❤️.

On this historical day, we celebrate the emancipation of enslaved people in America in 1865, two years after the Emancipation Proclamation was created. Cheers to a day commemorating freedom and civil rights.

Happiest of birthdays to our June month kiddos! Wishing everyone a fantastic birthday and cheers to another trip around the sun.🌞🎂

Happy 4th of July to our American followers! Wishing you a wonderful long weekend full of family fun! 🌭⛱🎆

Happy birthday to our NGLY1 kiddos with July birthdays! Hoping all of your birthday wishes come true 🎂

Grace Science Foundation recently hosted our NGLY1 Family Zoom Meeting with guest speaker Noah Seidman, a rare disease Patient Advocate. We discussed Rare Siblings and how to navigate family dynamics, and provided a NGLY1 gene therapy clinical trial update. Looking forward to

A HUGE thank you to Tyson Black (and friends) for raising over $35,000 for the Grace Science Foundation and the Gibson family by running across the state of Tennessee! This is an unbelievable accomplishment, and we are so grateful for the Tyson's dedication to raise awareness

Happy, Happy, Happy Birthday to our August Grace Science kiddos! We wish you another joyful year around the sun filled with laughter, love, and memories. ❤️🧡💛💚🩵💙💜