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🏃‍♀️‍➡️🏃‍➡️ Are you ready to take action for PWS research? A team of parents from around the world is dedicated to improving the lives of our loved ones by supporting research on treatments that will improve the lives of our loved ones. #PraderWilli hubs.la/Q03qd3kD0

🛣️"When you have a child with special needs and a rare disease, we have to look at the future. We have to be positive for our kids and see what can be." — Sheri Mills on raising her daughter who has PWS. #PraderWilli hubs.la/Q03qd40V0

From NICU to Leading the Walk: Miles’ Story and the Power of One Small Step hubs.la/Q03qLsgt0

🔬How much do you know about Vagus Nerve Stimulation (VNS)? This treatment uses a simple device that holds promise for reducing temper outbursts and other disruptive behaviors in people with PWS. #PraderWilli hubs.la/Q03qd42x0

💖"What we have learned in these 10 years is that while it is a serious and complicated disorder, life can still be beautiful and amazing." A dedicated PWS mom reflects on a "decade of [her son] Declan." #PraderWilli hubs.la/Q03qd37v0

🧬Learn about promising new developments in gene therapy for people with PWS. #PraderWilli hubs.la/Q03qd4L90

❓What is it like for people living with PWS? "The Cure for Us Is a Lot of Things" is based on a study that captured the perspectives and priorities of people living with this rare disease. #PraderWilli hubs.la/Q03qd40W0

💙After Dante was born with PWS, his parents went to their first FPWR conference in Kentucky. They met "the most amazing, like-minded people and their beautiful children." They continue to make a difference for all children with PWS. #PraderWilli hubs.la/Q03qd37w0

Global PWS Registry Supports 1st FDA-Approved Treatment for People with PWS hubs.la/Q03rnB5d0

New research from FPWR highlights how people with PWS are doing when it comes to mood, health, and life satisfaction. Read the findings and why they matter: #PWS #PraderWilli #FPWR #RareDiseaseResearch hubs.la/Q03rvhNN0

✅Getting the facts is an important first step in showing support for people who have Schaaf-Yang syndrome. Our fact sheetgives a quick overview of symptoms and treatments that offer hope for the future. #SYS #PraderWilli hubs.la/Q03qd53H0

HERO Study Now Enrolling People With PWS hubs.la/Q03rRr0y0

"FPWR provided hope we desperately needed," shares Evan's mom Natalie. "We connected with families who were passionate about eliminating the challenges of PWS through research." #PraderWilli hubs.la/Q03qd4dw0

🩺Finding a doctor who understands PWS isn’t always easy. That’s why we’re excited to introduce a new tool that puts trusted PWS medical guidance into the hands of those who need it most: families, caregivers, and frontline clinicians. #PraderWilli hubs.la/Q03qd64t0

🧬New research into MAGEL2 localization and function is helping scientists uncover the biological mechanisms behind Schaaf-Yang syndrome and providing new directions for therapy development: #SYS hubs.la/Q03qd9p30

🌞"The amount of love and light he's brought to our lives is immeasurable," says Rebecca, mom of a resilient guy named Bron. #PraderWilli hubs.la/Q03qd4FT0

🌎The Global PWS Registry is a critical resource for families, caregivers, and researchers. Your participation helps scientists find new therapies and treatments. #PraderWilli hubs.la/Q03qd3mM0

☀️"Find what brings you hope," says Jeannine Kowal, mother of Caitlin. "Living with Prader-Willi syndrome isn't always easy, but hope fuels strength." #PraderWilli hubs.la/Q03qd5bL0

🎉 The Global PWS Registry just turned 10! Thanks to nearly 2,000 participants and over 60,000 surveys, we’ve uncovered 10 key insights that are improving care and accelerating research for people with PWS. See what we’ve learned—thanks to you: #PW... hubs.ly/Q03ssSPX0

VNS4PWS, is a clinical trial sponsored by FPWR. If your loved one is ages 10 - 40 and challenged by temper outbursts and disruptive behaviors, you may be interested in learning more. Visit hubs.la/Q03qyT830