Fibro Registry (@fibroregistry) 's Twitter Profile
Fibro Registry

@fibroregistry

ID: 799303770719080448

calendar_today17-11-2016 17:30:44

84 Tweet

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Fibro Registry (@fibroregistry) 's Twitter Profile Photo

Two research groups want to collaborate Fibro Registry to study elevated ammonia in fibrolamellar patients. Please contact [email protected] if interested. We would like to help make this study as successful as possible!

Two research groups want to collaborate <a href="/FibroRegistry/">Fibro Registry</a>  to study elevated ammonia in fibrolamellar patients. Please contact contact@fibroregistry.org if interested. We would like to help make this study as successful as possible!
Fibro Registry (@fibroregistry) 's Twitter Profile Photo

Two research groups want to collaborate Fibro Registry to study elevated ammonia in fibrolamellar patients. Please contact [email protected] if interested. We would like to help make this study as successful as possible!

Two research groups want to collaborate <a href="/FibroRegistry/">Fibro Registry</a>  to study elevated ammonia in fibrolamellar patients. Please contact contact@fibroregistry.org if interested. We would like to help make this study as successful as possible!
Fibro Registry (@fibroregistry) 's Twitter Profile Photo

Two research groups want to collaborate Fibro Registry to study elevated ammonia in fibrolamellar patients. Please contact [email protected] if interested. We would like to help make this study as successful as possible!

Two research groups want to collaborate <a href="/FibroRegistry/">Fibro Registry</a>  to study elevated ammonia in fibrolamellar patients. Please contact contact@fibroregistry.org if interested. We would like to help make this study as successful as possible!
Fibro Registry (@fibroregistry) 's Twitter Profile Photo

Two research groups want to collaborate Fibro Registry to study elevated ammonia in fibrolamellar patients. Please contact [email protected] if interested. We would like to help make this study as successful as possible!

Two research groups want to collaborate <a href="/FibroRegistry/">Fibro Registry</a>  to study elevated ammonia in fibrolamellar patients. Please contact contact@fibroregistry.org if interested. We would like to help make this study as successful as possible!
Fibro Registry (@fibroregistry) 's Twitter Profile Photo

Two research groups want to collaborate Fibro Registry to study elevated ammonia in fibrolamellar patients. Please contact [email protected] if interested. We would like to help make this study as successful as possible!

Two research groups want to collaborate <a href="/FibroRegistry/">Fibro Registry</a>  to study elevated ammonia in fibrolamellar patients. Please contact contact@fibroregistry.org if interested. We would like to help make this study as successful as possible!
Fibro Registry (@fibroregistry) 's Twitter Profile Photo

youtube.com/watch?v=K8nKAe… Meet Luana, as she tells us about her beloved daughter Chiara's journey with fibrolamellar hepatocellular carcinoma. Luana makes an impassioned plea for everyone to contribute to fibroregistry.org. #fibrolamellar, #livercancer, #fibroregistry

youtube.com/watch?v=K8nKAe…
Meet Luana, as she tells us about her beloved daughter Chiara's journey with fibrolamellar hepatocellular carcinoma.  Luana makes an impassioned plea for everyone to contribute to fibroregistry.org.  #fibrolamellar, #livercancer, #fibroregistry
Fibro Registry (@fibroregistry) 's Twitter Profile Photo

The Fibrolamellar Registry is helping recruit for a comprehensive survey of outcomes in #fibrolamellar patients who have taken immune checkpoint inhibitors. Please participate if you qualify. Learn more at fibroregistry.org/ici-fibrolamel… #livercancer

The Fibrolamellar Registry is helping recruit for a comprehensive survey of outcomes in #fibrolamellar patients who have taken immune checkpoint inhibitors. Please participate if you qualify. Learn more at fibroregistry.org/ici-fibrolamel… #livercancer
Fibro Registry (@fibroregistry) 's Twitter Profile Photo

Now would be a great time to fill in our survey. Please click the link below to find out more info on the Immune Checkpoint Inhibitor study. fibroregistry.org/ici-fibrolamel… #fibrolamellar #LiverCancer #rarecancer

Now would be a great time to fill in our survey. Please click the link below to find out more info on the Immune Checkpoint Inhibitor study.
fibroregistry.org/ici-fibrolamel…
#fibrolamellar #LiverCancer #rarecancer
Fibro Registry (@fibroregistry) 's Twitter Profile Photo

We are still looking for patients & caregivers to fill in the survey on the Immune Checkpoint Inhibitor Study. fibroregistry.org/ici-fibrolamel… #Fibrolamellar #Opdivo #Keytruda #Livercancer

We are still looking for patients &amp; caregivers to fill in the survey on the Immune Checkpoint Inhibitor Study. 
fibroregistry.org/ici-fibrolamel…
#Fibrolamellar #Opdivo #Keytruda #Livercancer
Fibro Registry (@fibroregistry) 's Twitter Profile Photo

The Fibrolamellar Registry is still recruiting patients or caregivers who have taken an Immune Checkpoint Inhibitor. You can learn more at fibroregistry.org/ici-fibrolamel… #fibrolamellar #livercancer #rarecancer #1in5million

The Fibrolamellar Registry is still recruiting patients or caregivers who have taken an Immune Checkpoint Inhibitor.
You can learn more at fibroregistry.org/ici-fibrolamel…
#fibrolamellar #livercancer #rarecancer #1in5million
Fibro Registry (@fibroregistry) 's Twitter Profile Photo

If you or a family member has taken an Immune Checkpoint Inhibitor then please take a few moments to complete the #Fibrolamellar registry study. fibroregistry.org/ici-fibrolamel… #Opdivo #Keytruda #Livercancer

If you or a family member has taken an Immune Checkpoint Inhibitor then please take a few moments to complete the #Fibrolamellar registry study. fibroregistry.org/ici-fibrolamel…
#Opdivo #Keytruda #Livercancer
Fibro Registry (@fibroregistry) 's Twitter Profile Photo

The Fibrolamellar Registry is currently reaching out to patients who have taken an Immune Checkpoint Inhibitor to take part in a patient survey.Please click the link for more information. fibroregistry.org/ici-fibrolamel… #Fibrolamellar #livercancer #fibroregistry

The Fibrolamellar Registry is currently reaching out to patients who have taken an Immune Checkpoint Inhibitor to take part in a patient survey.Please click the link for more information.
fibroregistry.org/ici-fibrolamel…
#Fibrolamellar #livercancer #fibroregistry
Fibro Registry (@fibroregistry) 's Twitter Profile Photo

The Fibrolamellar Registry is still looking for patients and caregivers to fill in the #Fibrolamellar survey.Please click below for more information.fibroregistry.org/ici-fibrolamel… If you need assistance with the survey contact the Registry through the Facebook page. #Opdivo #Keytruda

The Fibrolamellar Registry is still looking for patients and caregivers to fill in the #Fibrolamellar survey.Please click below for more information.fibroregistry.org/ici-fibrolamel…
If you need  assistance with the survey contact the Registry through the Facebook page.
#Opdivo #Keytruda
Fibro Registry (@fibroregistry) 's Twitter Profile Photo

Meet the #JohnsHopkins oncologist we're helping with a new study of #immunecheckpointinhibitors and #fibrolamellar Looking at Opdivo (Nivolumab), Keytruda (Pembrolizumab), Imfinzi, Tecentriq, Yervoy, Bavencio and/or Tremelimumab. bit.ly/2Q1j97t

Fibro Registry (@fibroregistry) 's Twitter Profile Photo

The #Fibrolamellar registry is still looking for patients and caregivers who have taken an Immune Checkpoint Inhibitor such as #Opdivo or #Keytruda to participate in the #Fibrolamellar survey fibroregistry.org/ici-fibrolamel… #livercancer #rarecancer #1in5million

The #Fibrolamellar registry is still looking for patients and caregivers who have taken an Immune Checkpoint Inhibitor such as #Opdivo or #Keytruda to participate in the #Fibrolamellar survey
fibroregistry.org/ici-fibrolamel…
#livercancer #rarecancer #1in5million
Fibro Registry (@fibroregistry) 's Twitter Profile Photo

The #Fibrolamellar registry is still recruiting patients or caregivers to fill in the #Fibrolamellar survey. fibroregistry.org/ici-fibrolamel… The survey is open to all Fibrolamellar patients. Please send us a PM if you need assistance. #Opdivo #Keytruda #rarecancer

The #Fibrolamellar registry is still recruiting patients or caregivers to fill in the #Fibrolamellar survey. 
fibroregistry.org/ici-fibrolamel…
The survey is open to all Fibrolamellar patients. Please send us a PM if you need assistance.
#Opdivo #Keytruda #rarecancer
Fibro Registry (@fibroregistry) 's Twitter Profile Photo

The Fibrolamellar Registry is still looking for more participants to complete the Fibrolamellar Registry survey. If you can help please click the link for more information. fibroregistry.org/ici-fibrolamel… If you require assistance please PM the Registry FB. #Fibrolamellar #livercancer

The Fibrolamellar Registry is still looking for more participants to complete the Fibrolamellar Registry survey.
If you can help please click the link for more information.
fibroregistry.org/ici-fibrolamel…
If you require assistance please PM the Registry FB.
#Fibrolamellar #livercancer
Fibro Registry (@fibroregistry) 's Twitter Profile Photo

Meet Jennifer who was diagnosed with Fibrolamellar at 14. #Fibrolamellar #Fibrolamellarregistry #carneycomplex youtu.be/CoqeIG1OhEg