Sadly, accessing emergency care in a crisis isn't always easy as shown by Eا𝖔n М̶ߎsƙ༝̲'s survey If you're living with an #IMD and would like guidance/support, visit our friends at #MSUK They are always there for you along the way! (3/3) #MetabolicDisordersAwarenessWeek

Please share this opportunity to join a fab team! nuh.nhs.uk/jobs/#!/job/UK… Nottingham Children’s Hospital and NNU @suewardCHOPD Jo @RachelBoardman6 @TeamNUH #NCHexcels

It's really important members check that there postal address is up to date. Elligible members will receive a ballot in the post! When you get it complete it and post it straight away! YOU want action on pay, do YOUR part and send YOUR voice - YOUR ballot back! #FairPayforNursing

Our family fun day on the 5th November will be taking place at Chester Zoo! This will be an incredible opportunity to connect with other IMD familes, meet the MSUK team and of course explore the zoo. Visit this link to reserve your free tickets: buff.ly/3ymohYj 🎉

The children's metabolic service is expanding. If you are a dietitian seeking a new challenge , please get in touch! #NCHexcels BIMDG Metabolic Support UK Nottingham Children’s Hospital and NNU @TeamNUH nuh.nhs.uk/jobs/#!/job/UK…

Great research study on Galactosaemia by Giana, Metabolic Dietitian Nottingham Children’s Hospital and NNU #NCHexcels

📢Hot off Press - First paper from Nottingham Children’s Hospital and NNU Family Activation of Rapid Response system Study 📢 Paediatric family activated rapid response interventions: qualitative systematic review Shannon Fox Dr Takawira Marufu RN Nicola Taylor Elizabeth Hendron authors.elsevier.com/a/1gCLS3RG-Maf…

Today our strike action begins, and nursing staff need your solidarity. Share this if you stand with those fighting for a safer future for nursing, patients, and the NHS. #RCNStrike #FairPayForNursing

There's still time to take part in our Cost of Living Crisis survey: buff.ly/3XZmEuA If you live in the UK and are a parent or main caregiver of someone living with an IMD, or are a person aged 18+ with an IMD please take the time to share your thoughts and experiences.

Are you seeking a new challenge? The paeds metabolic team is expanding, please get in touch for more info. Two band 7 Nurse Specialist roles available: nuh.nhs.uk/jobs/#!/job/UK… Band 7 Dietitian role available: nuh.nhs.uk/jobs/#!/job/UK… Nottingham Children’s Hospital and NNU BIMDG Metabolic Support UK #NCHexcels

Registration and Abstract submission for the 2023 BIMDG meeting are open. Wednesday 7th - 8th June 2023 in Earl's Court. We hope you'll be joining us. Find full details here: bimdgconference.org/programme

Are you a Dietitian seeking a new challenge? Nottingham Children’s Hospital and NNU metabolic service is expanding. Please get in touch to discuss the role and opportunities available. Please retweet. nuh.nhs.uk/jobs/#!/job/UK… Metabolic Support UK BIMDG Nutricia Metabolics @TeamNUH NottmDietetics 🏳️‍🌈 Dietitians NUH

Are you a Dietitian with experience in IMDs seeking a new opportunity? Leicester Children's has an exciting new role for an 8a Dietitian in the children's metabolic service. Please retweet. beta.jobs.nhs.uk/candidate/joba… Leicester's Hospitals BIMDG Metabolic Support UK UHLDIETITIANS 🌈🌈

We want to hear what everyday quality of life means for you, living with an Inherited Metabolic Disorder, so we can support meaningful and desired change. Email us to get involved at [email protected] or check out our website for more info: buff.ly/438Mdfj

The new #RareBarometer survey on newborn screening is now live! In your opinion, what are the benefits or possible disadvantages related to newborn screening of rare diseases? Available in 24 languages! 👉tiny.cc/survey_NBS_RD #NewbornScreening #Diagnosis #RareDiseases

Through recent service expansion, the East Midlands Paediatric Metabolic Service has an exciting new opportunity for a Clinical Psychologist to join the team: beta.jobs.nhs.uk/candidate/joba… BIMDG Metabolic Support UK Nottingham Children’s Hospital and NNU Leicester Children's Nutricia Metabolics

📣 The Diagnostic, Clinical & Therapeutic Programme (#DCTEP), the first accredited e-learning course 🎓 developed by MetabERN is now online! 🎯 For post-graduate medical students, general practitioners and medical specialists ℹ️ metab.ern-net.eu/metabern-acade… #ERNeu #RareDiseases

Join our new themed coffee lounge! An informal online space to share experiences, gather information, and gain first-hand knowledge from others living with IMDs and their families. To register to join for "Travel and Holidays" please email [email protected]

Calling all parents/carers of children with complex health needs! We need your help to design a research project to improve in hospital care for children with complex health needs. Please get in touch (details on the poster) if you're interested or would like to find out more!

Now James Nurse asks whether LIAS deficiency should be considered as a possible mimic for non accidental injury. #BIMDG24