
EHC_Haemophilia
@ehc_haemophilia
The European Haemophilia Consortium aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe.
ID: 852837687778201600
https://linktr.ee/ehc_haemophilia 14-04-2017 10:55:24
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🩸 This #WHD2025, we’re shining a light on women & girls with haemophilia & female carriers — too often overlooked & underdiagnosed. 🎧 Tune into the European Patients' Forum podcast with our CEO Olivia Romero Lux on the EHC’s advocacy work. 🔗 ow.ly/8onn50VCfIh

🩸Is haemophilia (fe)male? Women w/ haemophilia & female carriers face delayed diagnosis & limited care. On #WHD2025, explore our new booklet 📘 & listen to a podcast featuring EHC CEO Olivia Romero Lux hosted by European Patients' Forum 🎧 on the topic. 🔗 tinyurl.com/yc6c9ysx


📣 News from our members! 🇵🇹 In Portugal, APH | Associação Portuguesa de Hemofilia Women’s Conference brought together 25 participants to raise awareness on coagulopathies in women—focusing on early diagnosis & youth empowerment. 🔗 ow.ly/st6e50VCSmr


On World Liver Day, we join the call to prioritise liver health for all, especially people with #BleedingDisorders, for whom liver issues remain a major concern. 🎥 Rewatch our expert panel on liver health & ageing: ow.ly/9ahx50VCPMf #WorldLiverDay


🥦 This World Liver Day, we’re celebrating the power of nutrition! A healthy liver starts on your plate — smart food choices can boost liver function & well-being. 🍽️ Try tasty, liver-friendly meals from the #WorldLiverDay recipe book: ow.ly/hEkQ50VCPR5 #FoodIsMedicine








