Down Syndrome Aus (@downsyndromeau) 's Twitter Profile
Down Syndrome Aus

@downsyndromeau

The national voice for people with Down syndrome and their families.

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linkhttp://www.downsyndrome.org.au calendar_today06-03-2013 10:21:55

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Content warning: death, discrimination The inquiry outcomes into Finlay's death announced today are a stark reminder: too many people with intellectual disability suffer preventable deaths. Our healthcare system must better train medical professionals. buff.ly/3ygDX1V

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Exciting news! 🎉 DSA has been confirmed as a National Disability Representative Organisation. We'll lead a new consortium representing people with intellectual disability who have chromosomal variations. #Downsyndromeaustralia #downsyndrome buff.ly/4anZ6EK

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Today our CEO Darryl Steff appeared at the Senate Committee who is looking at proposed new NDIS legislation. Darryl spoke about changes that are needed to the legislation to improve it. You can read more about DSA’s position on the NDIS here: buff.ly/4apuYst

Today our CEO Darryl Steff appeared at the Senate Committee who is looking at proposed new NDIS legislation.  

Darryl spoke about changes that are needed to the legislation to improve it.  

You can read more about DSA’s position on the NDIS here: buff.ly/4apuYst
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🎧 Exciting news! World Down Syndrome Congress 2024 is featured in the latest episode of the Now and the Future podcast! Listen now: buff.ly/3UX8glN #WorldDownSyndromeCongress #WDSC2024 #NowAndTheFuturePodcast #DownsyndromeAustralia #downsyndrome #InclusionMatters

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📹 Watch this fantastic video from Down Syndrome Victoria, giving you a glimpse into the life of 18-year-old Sophie. It's part of Down Syndrome Victoria’s Now You See Me series, where people with Down syndrome and their families share their stories. buff.ly/3KjgmR2

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What a wonderful first day of Congress! Final sessions for today are on - including a panel on Down syndrome regression disorder, which includes our CEO Darryl Steff.

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Down Syndrome Australia has a strong presence at World Down Syndrome Congress this afternoon. DSAN member Michael Cox, CEO Darryl Steff and DSA Board member Claire Mitchell all made presentations at World DS Congress #WDSC2024 #WorldDownSyndromeCongress2024

Down Syndrome Australia has a strong presence at World Down Syndrome Congress this afternoon. 

DSAN member Michael Cox, CEO Darryl Steff and DSA Board member Claire Mitchell all made presentations at <a href="/WorldDSCongress/">World DS Congress</a>

#WDSC2024
#WorldDownSyndromeCongress2024
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Ending Congress on a high note at the Congress Gala Dinner. After some thank yous from host organisation Down Syndrome Australia CEO Darryl Steff, the Together We Can leadership scholars received their certificates from the Sherry-Hogan Foundation. #WDSC2024

Ending Congress on a high note at the Congress Gala Dinner. 

After some thank yous from host organisation Down Syndrome Australia CEO Darryl Steff, the Together We Can leadership scholars received their certificates from the Sherry-Hogan Foundation. 

#WDSC2024
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🌟 Exciting News! 🌟 After a fabulous World Down Syndrome Congress in Brisbane, Australia last week, we're delighted to share that the next World Down Syndrome Congress will be held in vibrant Buenos Aires, Argentina in 2027! 🎉 #WDSC2027 #DownSyndromeCongress #BuenosAires

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This morning our CEO Darryl Steff gave evidence to the Senate Committee inquiry into the NDIS Amendment. While recent changes to the NDIS legislation have been an improvement, DSA is calling on further improvements so that people with Down syndrome are supported from birth.

This morning our CEO Darryl Steff gave evidence to the Senate Committee inquiry into the NDIS Amendment. 

While recent changes to the NDIS legislation have been an improvement, DSA is calling on further improvements so that people with Down syndrome are supported from birth.
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Last night’s powerful story on The Project showed just how urgently we need to change Australia’s outdated and unfair Migration Health Requirement that stops many people with disability, and their families, from coming to Australia. buff.ly/4c3xHsE

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🚨 A DSS Survey is now open asking for input on proposed changes to NDIS supports! 🚨 This is an opportunity to provide feedback to the Government. The Online Survey and Easy Read resources can be found here: buff.ly/3LYrEeh #NDIS #DisabilityAdvocacy

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DSA wants to hear from people with Down syndrome! 🥳 Help DSA by doing a short survey. In this survey, we ask questions about - finding information - getting support buff.ly/4fB5CM2

DSA wants to hear from people with Down syndrome! 🥳

Help DSA by doing a short survey.

In this survey, we ask questions about

    - finding information
    - getting support

buff.ly/4fB5CM2
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Annual Progress Report on the National Roadmap for Improving the Health of People with Intellectual Disability is out! 🎉 DSA supported the establishment of the Roadmap, and continues to support implementation.🩺 The full report is here: buff.ly/3yPgzZX

Annual Progress Report on the National Roadmap for Improving the Health of People with Intellectual Disability is out! 🎉 

DSA supported the establishment of the Roadmap, and continues to support implementation.🩺 

The full report is here: buff.ly/3yPgzZX
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Have you heard about CHAP? 🧐 CHAP stands for: Comprehensive Health Assessment Process (CHAP) tool. CHAP is a tool used for annual GP health assessments for people with Intellectual Disability. There are free versions for adults and young people! buff.ly/3Mp9zGo

Have you heard about CHAP? 🧐 

CHAP stands for: Comprehensive Health Assessment Process (CHAP) tool. 

CHAP is a tool used for annual GP health assessments for people with Intellectual Disability. There are free versions for adults and young people!  

buff.ly/3Mp9zGo
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Did you see our spotlight on health care in the DSA newsletter? 🤓 Read about research initiatives, national projects, and the latest resources on health care for people with Down syndrome: buff.ly/3ZincPv

Did you see our spotlight on health care in the DSA newsletter? 🤓 

Read about research initiatives, national projects, and the latest resources on health care for people with Down syndrome:

buff.ly/3ZincPv