It is too bad not every non-profit can have amy leigh on the visibility case , but it’s great for us!!!

Getting good use out of my Cricut Maker!

In addition to seeing patients today, I coordinated the deliveries of my dad’s Radicava and Relyvrio and tuned into a great talk with EndTheLegacy. Caregiving and care coordinating is a full time job, but I’m up to the task. #endALS #ALS #IAMALS

The ALS Hope Foundation is a wonderful org to celebrate and I am glad our Vice Chair SOD1 EndALS was there to represent us and rocking the new EndTheLegacy pin created by amy leigh !

Glad to be here supporting the ALS Hope Foundation and showing off our EndTheLegacy swag! #ALSHF #EndALS

Next Tuesday! Be there or be 🔳! eventbrite.com/e/615400368067

All 👀 on Biogen and U.S. FDA right now #TofersenWorks #ALS #SOD1

Sharing my vulnerability- I broke down in tears. Thank God it was in the lunchroom. Thank you to our amazing community, Biogen and U.S. FDA. Today, I have hope #SOD1 #ALS #tofersen

Comment on the news from our vice chair SOD1 EndALS !!!

One more drug gets FDA approval for ALS!!! ALS is complex and we are determined!!

Comments from EndTheLegacy member Alison on #qalsody approval. Part 1:

Part 2.

😍🎉🥰🎉

Our letter to the Editor of the journal Brain has been published online. Congrats to the authors, we look forward to continued engagement with the field. doi.org/10.1093/brain/…

How 'bout a rain delay giveaway?! Retweet this for a chance to win a baseball signed by Mark Canha!

Always repping my EndTheLegacy swag!