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“Touched with Sadness.” Sue, one of our volunteers and the lead for METUPUK’s work in Wales, has written a poem about her experience as a nanny living with Metastatic Breast Cancer. It’s a reflection on the joy of making memories with her grandchildren - while also

This weekend was the first abcd retreat of the year of our amazing motivational exercise #abcdretreat for 2025! What a great weekend with another group of amazing ladies who challenged themselves to the weekend of activities 🙌 with beautiful sunny dry weather both days.

A diagnosis of Metastatic Breast Cancer is devastating for the patient hearing those words that you are incurable. Listen to Julie’s reflections on how she hadn’t even heard of MBC when she was diagnosed and didn’t know what it meant. She had not heard of the signs and symptoms

What amazing work you do Jo Taylor ❤️

Nicole, one of METUPUK’s Welsh volunteers, has HER2+ Metastatic Breast Cancer and continues to work - with incredible support from her employer, even receiving a recent promotion. Many people with Metastatic Breast Cancer continue working during treatment, especially when side

Jo Taylor and METUPUK have long campaigned for Metastatic Breast Cancer symptom infographics to be embedded into clinical care - and now there’s research to support their impact. Published in Frontiers in Psychology, a study by Professor Nazanin Derakhshan, Jo Taylor, and

Excited for this Daiichi Sankyo session “Multidisciplinary care for brain metastasis in breast cancer” with an amazing panel featuring #PatientAdvocate & GRASP co-founder Christine Hodgdon. Audience “role” poll left out patient advocate, unfortunately, tho’ many are

Who leads the decision making process?

Case Study 1: #TNBC systematic vs local therapy? Concurrent? SRS v WBR? What’s best? Differing opinions from panelists, & as Christine (Christine Hodgdon) states, “it depends on who you ask, patients would like to see more trials, QOL important, we want to live better not just

So glad to see the patient perspective so fully integrated into the discussion sponsored by Daiichi Sankyo EU. Christine Hodgdon doing a fantastic job! #ESMOBreast25

Christine Hodgdon reminds panelists that patients receiving WBR are often excluded from future #clinicaltrials. Also, panelists discuss potential for cognitive deterioration associated with WBR. #esmobreast2025

How often does receptor conversion occur between primary BC tumor & BCBM? Nancy Lin, MD asks panel how often re-biopsy is done? Christine Hodgdon mentions patients may also fear post surgical “seeding” ( discussed in LMD session earlier today). #ESMOBreast25

Case Study 2 HER2+ MBC Panel discussion on best tx approach, Nancy Lin, MD reviews current guidelines. Pt’s initial tx craniotomy followed by SRS, 5 mos after sx worsened. Disease progression v necrosis? #esmobreast2025

What about concurrent ADC & RT? Associated with higher risk of symptomatic radiation necrosis. Christine Hodgdon adds fear & devastation for patients dx with BCBM &/or LMD, not to mention potential SEs from tx leading to significant negative impact on QOL. #ESMOBreast25

Laura Ashurst is a mindfulness meditation teacher, and wellbeing practitioner who has been living with Metastatic Breast Cancer for 17 years. She’s recorded a guided meditation for our community - something you can save and return to whenever you need a moment of calm and focus.

METUPUK is the only Metastatic Breast Cancer patient advocacy charity in the UK - because we believe the patient voice should lead the conversation. Sara has shared her experience of what self-advocacy has looked like throughout her diagnosis and life with MBC. It’s changed

I’d rather it be highlighted as Supportive care. The language needs to change & then people will access this vital support. #MetastaticBreastCancer #MetastaticMay

Jo Taylor Agree!

Jo Taylor I worked with Geriatrics and Hospice for several years. People whose loved ones are dying are so kind and just needing support and care for the patient and themselves. Then my dad died in hospice care at my sister’s home. I am forever grateful to Hospice and my sister’s family.