🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

Happy New Year! We're excited to be hosting the third data justice conference in June 2023 on the theme of 'Collective Experiences in the Datafied Society'. Be sure to get your abstracts in by Jan 30th!

Any healthcare professionals who carries out scans where informed consent has not been given might want to talk to their regulator first....thetimes.co.uk/article/6cf153…

"Behind the scenes, insurers are using unregulated predictive algorithms, under the guise of scientific rigor, to pinpoint the precise moment when they can plausibly cut off payment for an older patient’s treatment." Big and sad if true statnews.com/2023/03/13/med…

"In a letter sent last month, the health service finance chief Julian Kelly gave NHS trusts until the end of March to begin uploading patient information to a new central database that uses Palantir’s Foundry software." #FasterDataFlows opendemocracy.net/en/palantir-pe… Foxglove

Registration for our Data Justice conference is now OPEN! Early bird deadline is April 15th: datajusticelab.org/3rd-data-justi…

Pleased to have acted as expert adviser together with Isobel Rorison for the Equality and Social Justice Committee of the Welsh Parliament to inform their inquiry into data justice in health. The inquiry will start next week: business.senedd.wales/mgIssueHistory…

NEW WORKING PAPER from DATAJUSTICE summarising research with trade unions in the UK on the challenges and responses to the datafied workplace. Read it here: datajusticeproject.net/wp-content/upl…

BREAKING: NHS England awards Palantir new £25m deal to 'transition' its NHS projects to new federated data platform, Health Service Journal can reveal. No open tender for deal. Rivals & NHS figures accuse of NHSE of giving Palantir advantage in race for £480m FDP deal £ hsj.co.uk/technology-and…

And so the deal is done ...

those interested in privacy around whole genome sequencing of every baby born in England might find this interesting: nationalscreening.blog.gov.uk/2023/09/01/pat…

▫️You can't opt-out of the FDP ▫️You can't stop your confidential information flowing to the FDP ▫️You ➡️ might ⬅️ be able to stop some processing of your data via the NDOO ▫️But only some, and rarely whatdotheyknow.com/request/fdp_an…

NEW: With NHS England set to announce the winner of the FDP procurement this month.... ...new documents show its own data advisory group has voiced concerns it will spark a big rise in the number of patients opting out of sharing their data. Full story: hsj.co.uk/technology-and…

A brilliant explanation of the limitations of an algorithm ft.com/content/5125c8…

Private UK health data donated for medical research shared with insurance companies Observer investigation reveals UK Biobank opened its biomedical database to insurance firms despite pledge it would not do so theguardian.com/technology/202…

“data from the Department for Work and Pensions [DWP] could help profile those who are most likely to return to the labour market”. theguardian.com/business/2023/…

NHS England mandates NHS trusts in England to adopt the centralised Federated Data Platform

NHS England has been informed by lawyers that key aspects of the federated data platform lack a legal basis, meaning that unless it can find a solution, citizens must be allowed to opt out of sharing their data. Full story 👉 ow.ly/IRzN50TjSvc

Thank you to my brilliant team Lina Dencik Joanna Redden!

Nigel Farage’s comments are wildly inaccurate and show that he’s completely out of touch with what autistic children and adults have to go through to get a diagnosis or any support at all. For the record, absolutely no one has got an autism diagnosis through the GP – this is just