Can you help us improve families experience of being discharged home from hospital with a baby who needs to take medication?

Wishing all our community a Merry Christmas. Sending hugs to every family who is spending Christmas in a Neonatal Unit.

Have you had a baby after Sept 1st 2024 & were you invited to participate in the #RSV Immunisation programme. Help us improve future iterations by completing this survey #InfantHealth #LungHealth

Can you help us improve communication with families in perinatal death reviews? Scan the attached QR code for further details. #research #ppi #infantloss #improvingcare #patientinformedcare

Thrilled to have hosted Mandy Daly INHA today for an incredible talk on PPI (Patient and Public Involvement) for our RCSI MPharm year 2 students. Huge thank you to Mandy for such an inspiring session showing the importance of engaging patients in decision-making ! #PPI

This week we lost a beautiful soul & the brains behind our organisation name. Our colleague Grace Kinsella lost her brave battle with illness. Condolences to her family. You're legacy lives on. #FoundingMember #PreemieParent #Passion #Support #INHA

Can you help us capture experience of #PPI in neonatal and maternal trials? #BetterResearch #PatientVoice #ImprovingOutcomes #PatientLedResearch #Stakeholders

Can you help us develop an App to support families with #PrematureBabies ? Please fill out this short survey to help us understand the needs of families. #Support #ImprovingOutcomes #CoDesign msu.co1.qualtrics.com/jfe/form/SV_4O…

Nice to be recognised as a #ChangeMaker . Thank you CergenX

Today we celebrate #WorldNIDCAPDay 2025 join our global community and give #pretermbabies a voice

Have you had a #PretermBaby & can you help us co-design a Music Therapy Programme for families & infants? Our #PPI Panel needs your valuable insight #BetterResearch #FamilyLedServices

AI in Regulatory Affairs TOPRA event HPRA headquarters Dublin. Delighted to be participating in this very relevant question #MedicinesRegulation #PatientSafety #PPI

Looking forward to presenting at the TOPRA Regulatory Careers Live 2025 conference today. Embedding patient experience in Regulatory Affairs is essential if we are to foster trust, transparency and mutual respect.#regulatoryaffairs #ppi #patientvoice

Dr Ronan Donelan HPRA outlining the role of the EMA & NCA'S in the Regulatory Process Altin careers event #RegulatoryAffairs #MedicinesRegulation

This Mother’s Day let bereaved Moms know that you are thinking of them and that their sadness is acknowledged. We have partnered with Duck Blue to produce some beautiful baby loss card for Mother’s Day ( duckblue.ie/collections/ba…). #babylosssupport #duckblue

Thinking of all Mothers today #MothersDay #love #care

Looking forward to meeting our new IPPOSI Patient Education Programme student cohort tomorrow for our kick off session where we'll be presenting the hot off the press "PPI Toolkit", a guide to getting started.#ppi #patientsinvolved #education

Delighted to be hosting the EU funded IMAGINE-HRB meeting in celebration of World Milk Donation Day. #BetterGuidelines #DonorMilk #Milkbank #HumanMilk #breastmilk #MilkDonation #ImprovingOutcomes #PrematureBabies

Attending #SIGNEC2025 #NEC with colleagues from Adult Preemie Advocacy Network Lauren Ingledow

Can you help us priortise the research questions that matter most to patients around preservation of fertility? the PRESERVE PSP is now open. We are seeking contributions from patients & HCPs. The survey can be accessed here: bit.ly/4ffgJJA #Fertility #BetterResearch