Invisible Warrior_SCD (@inviswarriorscd) 's Twitter Profile
Invisible Warrior_SCD

@inviswarriorscd

Sickle cell disease societal engagement project. Organising workshops to raise awareness of sickle cell disease, and it's effects on the body and mind.

ID: 1389165076779872259

linkhttps://linktr.ee/InvisibleWarriorSCD calendar_today03-05-2021 10:29:31

941 Tweet

448 Followers

297 Following

Invisible Warrior_SCD (@inviswarriorscd) 's Twitter Profile Photo

"So at 32 years old, after a lifetime of #sicklecell dictating what I could and couldn’t do, I made the decision to fight for the life I wanted." "I don’t have to constantly worry about triggers or plan my life around my illness. I can pursue my dreams without limitations."

Invisible Warrior_SCD (@inviswarriorscd) 's Twitter Profile Photo

We had an amazing time at the Great Exhibition Road Festival! Thank you to all the #volunteers who joined us over the weekend to talk to the many visitors to explain about #sicklecelldisease and #bloodscience, answer all their questions, and spark interest in #science.

We had an amazing time at the <a href="/ExRdFestival/">Great Exhibition Road Festival</a>! Thank you to all the #volunteers who joined us over the weekend to talk to the many visitors to explain about #sicklecelldisease and #bloodscience, answer all their questions, and spark interest in #science.
Claudine Matthews (@cmsicklenutri) 's Twitter Profile Photo

SAVE THE DATE!! 26th September 2024 - first in person Annual Advancing Sickle Cell Nutrition Conference - as part of my non- profit SICKLE CELL NUTRITION ACADEMY - the theme - Nutrition as a management option in Sickle Cell Disease- Register Today for FREE eventbrite.co.uk/e/1st-annual-a…

Invisible Warrior_SCD (@inviswarriorscd) 's Twitter Profile Photo

Thank you Tiago C. Luis lab for joining us at the Great Exhibition Road Festival to raise awareness for #SickleCell and spark interest in #Science. Tiago, Rose and Aisha spent many hours explaining #sicklecelldisease and #BloodCells to the visitors. #ThankYou

Thank you <a href="/TiagoCLuis/">Tiago C. Luis</a> lab for joining us at the <a href="/ExRdFestival/">Great Exhibition Road Festival</a> to raise awareness for #SickleCell and spark interest in #Science. Tiago, Rose and Aisha spent many hours explaining  #sicklecelldisease and #BloodCells to the visitors. #ThankYou
Red Cell Pain (@pmpred) 's Twitter Profile Photo

We are excited to be hosting our Red Cell Celebration Day for people with #sicklecell & #thalassaemia and staff from @StGeorgesTrust on Mon 22nd July, 3-6pm. We have a great line up of stands,talks & entertainment.Details are below, pls do get in touch if you’d like to join us!

We are excited to be hosting our Red Cell Celebration Day for people with #sicklecell &amp; #thalassaemia and staff from @StGeorgesTrust on Mon 22nd July, 3-6pm. We have a great line up of stands,talks &amp; entertainment.Details are below, pls do get in touch if you’d like to join us!
Invisible Warrior_SCD (@inviswarriorscd) 's Twitter Profile Photo

Thank you so much Imperial Marrow for joining our stand at the Great Exhibition Road Festival this year! It's wonderful to work together to raise awareness for #bonemarrowdonation. Please watch Sheena's amazing story of the importance of #bonemarrow donors: youtube.com/watch?v=PzqdGE… Imperial As One

Thank you so much <a href="/imperialmarrow/">Imperial Marrow</a> for joining our stand at the <a href="/ExRdFestival/">Great Exhibition Road Festival</a> this year! It's wonderful to work together to raise awareness for #bonemarrowdonation.
Please watch Sheena's amazing story of the importance of #bonemarrow donors: youtube.com/watch?v=PzqdGE… <a href="/imperialasone/">Imperial As One</a>
Invisible Warrior_SCD (@inviswarriorscd) 's Twitter Profile Photo

Thank you Imperial College London for featuring our LindaScience and Louisa in the alumni magazine! #sicklecelldisease #SCDwarrior #invisibledisability #mentalhealthmatters #LetsTalk #healthinequality #BeKind

Sickle Cell Society (@sicklecelluk) 's Twitter Profile Photo

Next week we will be at The African centre giving you an education on Sickle Cell and raising awareness on blood donation. Wed 10th July 6pm - 9pm. Hear from our wonderful expert panel. Event is free, just register to attend. Please see the link below buff.ly/3RXqaEr

Next week we will be at The African centre giving you an education on Sickle Cell and raising awareness on blood donation. Wed 10th July 6pm - 9pm. Hear from our wonderful expert panel. 
Event is free, just register to attend. Please see the link below  buff.ly/3RXqaEr
Invisible Warrior_SCD (@inviswarriorscd) 's Twitter Profile Photo

“Before Supacell, ask anyone about #SickleCell and one out of five people know about it. It’s crazy how unknown it is, especially for a disease that affects so many people,” said Rapman. “I wanted it to raise awareness and make people who’ve got sickle cell feel seen and heard."

Red Cell Pain (@pmpred) 's Twitter Profile Photo

We are finally here! Today is our Red Cell Celebration day. We’ll be starting this afternoon at 3pm and we’re so excited to have this chance to get together. We can’t wait to see many of you there ❤️ See the poster below for details on where to meet Elizabeth Rhodes

Sickle Cell Society (@sicklecelluk) 's Twitter Profile Photo

🎉 Join us at the Sickle Cell Carriers & Carers Workshop in London! Discuss Sickle Cell disease, genomics, and share your research priorities. Earn a £90 Amazon voucher + free lunch. 🍴 Don't miss out! Sign up: buff.ly/3zPgYMj #SickleCell #Genomics #Workshop #London

🎉 Join us at the Sickle Cell Carriers &amp; Carers Workshop in London! Discuss Sickle Cell disease, genomics, and share your research priorities. Earn a £90 Amazon voucher + free lunch. 🍴 Don't miss out! Sign up: buff.ly/3zPgYMj #SickleCell #Genomics #Workshop #London
Claudine Matthews (@cmsicklenutri) 's Twitter Profile Photo

Happy Friday everyone - I need your help in sharing my upcoming Advancing Sickle Cell Nutrition Conference - on the 26/9/24…only 6 weeks away! Thank you for your ongoing support, I look forward to welcoming you on the day! eventbrite.co.uk/e/1st-annual-a…

A Star (@astarmusicuk) 's Twitter Profile Photo

🚨🩸URGENT. BLOOD NEEDED. PLEASE SHARE 🩸🚨 There is currently a shortage of blood in the UK and people like myself cannot receive our regular treatment because of it. If you can, PLEASE sign up and donate blood!!! —> blood.co.uk <— RT 🙏🏾

Croydon Sickle Cell & Thalassemia Support Group (@cscatsg) 's Twitter Profile Photo

SICKLE* explores the journey of those affected by this condition, featuring moving patient stories expert insights from healthcare professionals. Wednesday 11th September 7:00 PM - 10:00 PM Everyman Cinema Muswell Hill, Fortis Green Road, N10 3HP. FREE tickettailor.com/events/theredc…

Invisible Warrior_SCD (@inviswarriorscd) 's Twitter Profile Photo

Beautiful piece from Imperial College London Magazine interviewing our Linda and Louisa. They share how the #InvisibleWarrior project started, and what it means to be a #SCDwarrior and #SCDadvocate. #sickle

REDRESS Study (@redress_study) 's Twitter Profile Photo

September is #sicklecell awareness month 🩸 REDRESS is featured in the sickle cell society's newsletter! You can read the newsletter here: Sickle Cell Society sicklecellsociety.org/wp-content/upl…

September is #sicklecell awareness month 🩸
REDRESS is featured in the sickle cell society's newsletter! You can read the newsletter here:
<a href="/SickleCellUK/">Sickle Cell Society</a> 
sicklecellsociety.org/wp-content/upl…
Invisible Warrior_SCD (@inviswarriorscd) 's Twitter Profile Photo

Very grateful to Imperial College London Outreach for helping us deliver an amazing #SickleCell workshop last month, where STEM Futures y10 students learned about Sickle Cell from Linda, Steven and Louisa, and reflected on their learning by making fabulous #SickleCellAwareness dolls!

Very grateful to <a href="/icoutreach/">Imperial College London Outreach</a> for helping us deliver an amazing #SickleCell workshop last month, where STEM Futures y10 students learned about Sickle Cell from Linda, Steven and Louisa, and reflected on their learning by making fabulous #SickleCellAwareness dolls!