Mark your calendar for these upcoming Hope for HS #HidradenitisSuppurativa patient and caregiver support meetings! November 13 - Chapel Hill, NC 18 - Richmond, VA 20 - Hershey, PA & Minneapolis, MN December 10 - Detroit, MI 12 - Winston Salem, NC hopeforhs.org for info

The Hidradenitis Suppurativa Foundation (HSF) is seeking grant applications that encourage research into the disease hidradenitis suppurativa (HS). T See hs-foundation.org/research-fundi… for more info.

Mark your calendar for these upcoming Hope for HS #HidradenitisSuppurativa patient and caregiver support meetings! December 6 - Bronx 10 - Detroit 12 - Winston Salem, NC January 13 - Richmond 22 - Minneapolis 26 - Atlanta See hopeforhs.org for more info!

Did you know? Dermatology Times says "Between 2017 and 2019, the number of clinical trials devoted to this effort [biologics for HS] grew by 50% with many focusing on interleukin-17 and interleukin-23 inhibitors." bit.ly/2EmyabK

Read about the collaboration between patient advocates and #HidradenitisSuppurativa medical experts that has resulted in a BJD publication in the latest Hope for HS blog post: hopeforhs.org/hidradenitis-s…

It was an overwhelming joy to attend @JasmineEspy film screening last night. Like the woman herself, this film is powerful, beautiful, and is guaranteed to resonate with everyone living with #HidradenitisSuppurativa. _Everyone_ needs to see #mygoldlining!

I'm hoping to start some conversations with my homemade #HidradenitisSuppurativa awareness stickers!

I signed the petition to get a Google Doodle in honor of the upcoming 30th anniversary of the Americans with Disabilities Act in July 2020, and I think you should too! chng.it/HCyCg4FB via Change.org

Teamed up with HS Foundation and Learnskin to discuss the impact of COVID-19 on #HS. We share guidance for providers on risks and treatment, and also answer patient questions: learnskin.libsyn.com Hope for HS UC San Francisco UCSF Health Medical Dermatology Society #COVID19 #dermtwitter #biologics

Announcing the launch of the Global HS COVID-19 Registry! Our mission is to improve the care of #HS patients during the #COVID-19 pandemic by capturing data on pediatric and adult COVID-19-positive HS patients Haley Naik michelle lowes John Frew HSFoundation UC San Francisco

Spread the word about the HS Awareness Virtual Summit for #hsawarenessweek next week …enessweekvirtualsummit.eventbrite.com #dermtwitter #HidradenitisSuppurativa Hope for HS Hidradenitis Suppurativa (HS) Ireland HS Foundation Sandra, your friendly neighborhood HS activist

I just listened to this, and it's remarkable how much a man with "mild" #HidradenitisSuppurativa for two years is able to capture the feelings - agony, brutalizing pain - that I experience too. So many of our stories are different but so much is the same. Please have a listen.

Jasmine Ivanna Espy @mygoldliningdoc is a HS advocate working to raise awareness of #hidradenitissuppurativa. She is a truly inspirational person, and we asked her for some advice on managing HS. Take a look 👇💜 hubs.ly/H0r8vrn0 #hsawarenessweek2020

Thanks to the efforts of Angela D (who is also heading up the proclamation campaign), North Carolina has also proclaimed this week as #HidradenitisSuppurativa Awareness Week!

Myths about #HidradenitisSuppurativa: There are no good treatments for HS. Truth: Although there is no single medication that works for every HS patient, there are several medical and surgical treatments available for HS. #HSAwarenessWeek2020 HS Foundation Hope for HS UCSF Health

Myths about #HidradenitisSuppurativa: No one can understand my HS and no one can help me. Truth: HS Foundation can provide reliable information and direct you to HS doctors. Hope for HS can help you find in-person and online support group. #HSAwarenessWeek2020

Doctors: Your #HidradenitisSuppurativa symptoms will improve if you wear loose clothes. Me:

I signed up for the Walk, Run, and Rest for Hidradenitis Suppurativa Awareness on Jun 7, 2021! runsignup.com/Race/MI/AnyCit…

It's #HSAwarenessWeek and raising awareness means helping people recognize symptoms of #HidradenitsSuppurativa. If you recognize the symptoms in this graphic and suspect "that painful spot that just won't heal properly" could be HS, seek a diagnosis from a dermatologist.