#WhyIFight I fight for more time with my amazing wife, Jennifer Green I fight to see my four children grow into the people they will become I fight for everybody that has been chosen to carry the burden of #ALS I fight to find effective treatments and cures, and #EndALS

I have known these two since our freshman year at Yale. Today, they came out to see me for less than 24 hours. Seeing them filled my cup and reminded me that while ALS can take a lot of things, it can never take good friends.

Today I bid farewell to H.E. Shri Balasubramanian Shyam, Ambassador of India to Iceland since 2021. We discussed fruitful 🇮🇸🇮🇳 cooperation in recent years, including many opportunities resulting from the newly signed Trade and Economic Partnership Agreement. India in Iceland.

Our care workers & family caregivers deserve better wages & working conditions. That’s why Rachael (Rachael King) & Carl, Ady Barkan’s wife & son, & Izamar (Izamar Barrios), one of Ady’s caregivers, headed to DC to join w/ other allies & call on our electeds to invest in care.

It’s Friday, I’m in love.

Dear Every ALS Neurologist, Look at the navigator below. It makes EAP requests easy peasy. Thanks, Foundation for FDA

This slide bothered me when I saw it yesterday. Why are people with ALS sent to 7 different places for trial information? Why not send them to one excellent resource? And they say they all collaborate. Right.

When was the last time these NFL draft experts got it right? Their opinions are guesses at best. Please stop talking and let the kids compete.

Four ALS drugs to keep an eye on clinicaltrialsarena.com/features/trial… via Clinical Trials Arena

Fun night full of laughs with friends & Hunter Green seeing our buddy Jay Mohr do his thing. #NotTodayALS

Halla Tómasdóttir has been inaugurated as the 7th President of Iceland 🇮🇸

With heavy hearts, ALS took our friend Laurie Roselle last week, just shy of three years since her diagnosis. Last year, she wrote about her ALS story, sharing this new purpose to "educate & raise funds to find a cure for ALS." We're honored to carry on this purpose in our work.

idk what i would do if i didn't live with my parents and have their homeowners help to take care of me. we don't live in a country that cares for its sick and disabled.

The Allied Professionals Forum (APF) is in Montreal, Canada, this December 4-5. With over 400 delegates attending from more than 40 countries 🌍, the APF provides the opportunity to engage in a truly global conversation. Get the Early Bird rate now! 🐦💸 site.pheedloop.com/event/Alliance…

🎉 Happy #NationalNonprofitDay! 🎉 At #MDA, we believe in a world where everyone can thrive, and with your help, we can make this vision a reality! Visit MDA.org to learn more about how you can get involved.

Shoutout Beth Wolfe yoga & Walnut Creek farm va #goatyoga

TOMORROW (8/18) is our 2nd annual Big Island Walk & Roll to Cure ALS, at Old Kona Airport in Kailua-Kona, Hawaii. All funds raised support the mission priorities of the ALS Network. Register at alswalkbigisland.org

🤝 This masterclass for allied professionals focuses on navigating difficult discussions, emphasizing cultural and linguistic sensitivity. 🌍 📅 Tuesday, December 3rd in Montreal. 🔗 Registration info: ow.ly/wiKY50T1TuN

I walked again today. Each walk is harder but each walk is ever more important. I am so lucky to have an amazing team to help me. Not today ALS. Definitely not today.

It’s Friday, I’m in love.