Avadel Pharmaceuticals announced last week that the first patient has been dosed in REVITALYZ, a Phase 3 study evaluating LUMRYZ as a potential treatment for idiopathic hypersomnia (IH). Click here to learn more - tinyurl.com/ycy754zr

We are delighted to have partnered with Project Sleep on the Jack & Julie Scholarship again this year. FIVE students of the 37 recipients have IH. @HypersomniaFoundation was able to fund their scholarships. Congratulations to Reese! To learn more go to: tinyurl.com/yydf532m

Do you struggle with making breakfast in the morning? Haley (@thesleepy_ot) shares — Prepping easy, healthy meals that are ready to grab out of the fridge every day of the week has allowed me to set myself up for success- particularly in the mornings.

Have you heard of the spoon theory? Has it been helpful for you to communicate to others about your energy level? Let us know in the comments below 👇️ #ThisIsIH #forthesleepyones #hypersomniaawareness #idiopathichypersomnia #sleepdisorder #FakeAwake

#BeyondSleepySatellite is just two months away, and if you are on the fence about whether you should attend in person, just listen to our community share why they come to #BeyondSleepy conferences. ⁠ REGISTER HERE - tinyurl.com/y5z8e2sz

The cause may be unknown, but the sleepiness is real. #ThisIsIH People who have IH may spend most of their day either sleeping or thinking about, craving, or even fighting the urge to sleep, which can severely impact their quality of life.

We are excited to share with you a plain language summary for the clinical trial for low sodium oxybate! ✨️ Click here to check it out - tr.ee/k4urQkMQ2U #ThisIsIH #forthesleepyones #hypersomniaawareness #idiopathichypersomnia #sleepdisorder #FakeAwake

In this Living With... episode, Karmen, Lindsay, and Claire describe the partnership between Sleep Consortium and Global Genes. Click here to watch full episode - youtu.be/P1LOxbp6sVA

On August 22nd, Alkermes announced the initiation of the Vibrance-2 study, a phase 2 clinical trial evaluating the safety and efficacy of ALKS 2680 compared to placebo in adults with narcolepsy type 2 (NT2). Read the full article at: tinyurl.com/yb5dyauv

We need your voice! We are conducting a survey to understand the challenges faced by patients with Narcolepsy. Your insights on diagnosis, treatment satisfaction, and shared decision-making are invaluable. primeinc.org/survey-a/4879/…

At #BeyondSleepy, those who attended in person received the official 2024 IH Day T-shirt. ⁠Our shop features our top 5 T-shirt designs from this year’s IH Day T-shirt Design Contest. 🎉⁠ ⁠ Check out our merch by clicking here -tr.ee/5WX_fLtySZ

Often, our sleepiness eliminates the joy of cooking. It's more a matter of what's easiest to make rather than what nutrients will support and fuel my body. ⁠ Haley (@thesleepy_ot) shares — This vegetable chopper has CHANGED THE GAME! ⁠

We're excited to announce that Dr. David Rye will speak at our upcoming #BeyondSleepySatellite in Atlanta, Georgia. The conference is Saturday, October 19, 2024, from 10:00 a.m. to 5:00 p.m. (ET) at the Emory Conference Center Hotel.⁠ REGISTER - tinyurl.com/y5z8e2sz ⁠

Lindsay Jesteadt, co-founder of @Sleep_Consortium, explains how their groundbreaking data collection platform, DREAMS Portal, is accessible to people with hypersomnolence. ⁠ Click here to watch full episode - youtu.be/P1LOxbp6sVA

Sometimes it is the seemingly small things that make you feel most supported. We ♥️ our supporters! Thank you for all that you do! #thesitdown #wakingup #fakeawake #hypersomniaawareness #HypersomniaFoundation #idiopathichypersomnia #chronicillness #sleepy #neurologicaldisorder

Ever day. All day. The sleepiness is real. #ThisIsIH

We're excited to announce that Devon Price, PhD will speak at our upcoming #BeyondSleepySatellite. Devon Price, PhD, is a social psychologist, professor, author, and proud Autistic person. He is the author of Laziness Does Not Exist. ⁠ REGISTER HERE - tinyurl.com/y5z8e2sz

Be a part of our community! Join us at Hypersomnia Foundation’s #BeyondSleepySatellite, a one-day hybrid conference for people with idiopathic hypersomnia, narcolepsy, and Kleine-Levin syndrome and their supporters. ⁠ REGISTER HERE - tinyurl.com/y5z8e2sz ⁠

This year, the Hypersomnia Foundation set out to produce a series of films that highlight the realities of living with idiopathic hypersomnia. On Saturday, “Caught in this Riptide” was screened at the iconic TCL Chinese Theatre in Hollywood at the Silicon Beach Film Festival.

Mayo Clinic is seeking patients with idiopathic hypersomnia, ages 18-65 years to participate in a research study. The purpose of this study is to evaluate the effect of low sodium oxybate on the ability to sleep for long periods of time. Click here - tr.ee/ebE2N4T_2P