In just a few hours the 20th anniversary of Family Camp will be here! Want to join in on the fun? Register for Virtual Camp August 12th pkunews.org/camp #lowprotein #metabolicdisorder #flok #pku #ureacycledisorder #hcu #msud #tyrosinemia #organicacidemia #raredisease

Thank you to the more than 250 campers from 14 states who attended our record breaking in-person camp at Washington Family Ranch. Virtual Camp is around the corner on August 12th. Reserve your kit and register now at pkunews.org/camp #lowprotein #metabolicdisorder #flok

Join your community from around the world at Virtual Camp! It's a day of activities, talks, and fun as well as an at home camp kit. Reserve your spot today at pkunews.org/camp #raredisease #flok #pku #ureacycledisorder #hcu #msud #tyrosinemia #organicacidemia

Register for Family Camp by 7/1 to secure your kit! pkunews.org/camp #raredisease #metabolicdisorder #flok #pku #ureacycledisorder #hcu #msud #tyrosinemia #organicacidemia #OTC #IEPM

Last shot to snag the kit goodies for when you connect with your community at Family Camp! pkunews.org/camp #pku #ureacycledisorder #hcu #msud #tyrosinemia #organicacidemia #OTCdeficiency #raredisease #flok

Join more than 500 members of the metabolic community for VIRTUAL FAMILY CAMP on August 12th! Register now: pkunews.org/camp 🌏International 👪 All Ages #pku #ureacycledisorder #hcu #msud #tyrosinemia #organicacidemia #OTCdeficiency #raredisease #flok

Hey NSPKU MDDA we’d love to have you and your followers join Virtual Family Camp! Many sessions will be available on demand, so you can watch them on your schedule if time zones don’t match up!

Learn a delicious new recipe and enjoy a live Q&A with Chef Brenda Winiarski as well as meal planning for *all* tolerances with Jenn Beazer RDN. Register today at pkunews.org/camp #pku #ureacycledisorder #hcu #msud #tyrosinemia #organicacidemia #OTCdeficiency #flok

The Low-Phe Life is an animated series that explores the lighter side of metabolic living! Catch the season 2 PREMIERE on August 12th! Register today at pkunews.org/camp #pku #ureacycledisorder #hcu #msud #tyrosinemia #organicacidemia #OTCdeficiency #raredisease #flok

A great team of volunteers spent last weekend packing more than 215 camp kits! Haven't registered yet? You can still join the fun on 8/12 and it's only $5 at pkunews.org/camp! #pku #ureacycledisorder #hcu #msud #tyrosinemia #organicacidemia #OTCdeficiency #flok

Emails are out, boxes are shipped, Virtual Camp is THIS SATURDAY!! On the fence? Act Fast! Register before 8pm Pacific Time at pkunews.org/camp #pku #ureacycledisorder #hcu #msud #tyrosinemia #organicacidemia #OTCdeficiency #flok

LAST CHANCE, VIRTUAL CAMP IS TOMORROW! It's not too late to make connections with the people who get you. Register before 8pm Pacific Time at pkunews.org/camp #pku #ureacycledisorder #hcu #msud #tyrosinemia #organicacidemia #OTCdeficiency #flok

Camp was amazing and we cannot wait for next year! Announcement: In-person Camp will be May 30 - June 2nd, 2024! Thank you to everyone who made camp possible, especially YOU campers! #pku #ureacycledisorder #hcu #msud #tyrosinemia #organicacidemia #OTCdeficiency #flok

Exciting news this #NewbornScreening Month! In Oct, National PKU News becomes flok, focusing on #PKU + more inherited metabolic disorders. We're going data-driven & staying community-led. Learn more & get updates at flok.org! #raredisease #patientledresearch

As we expand our support & services beyond just #PKU to those with #MSUD, #HCU, #Tyrosinemia, #UreaCycleDisorders, and #OrganicAcidemias, we know you have questions! Follow flok to learn more!

🎉 Celebrate PKU News' transformation to flok and our community's future with a gift to flok in 2023. All gifts will be matched 💪 Amplify your impact and uplift our community by supporting flok today! flok.org/takeflight 🚀

Sharpen your pencils ✏️! The Guthrie-Koch Scholarship is ready to empower higher education students in our flok. College students with Classical #HCU, #MSUD, an #OrganicAcidemia, #PKU, #Tyrosinemia, or a #UreaCycleDisorder can apply by March 15 at scholars.flok.org.

Thank you Rep. Jim McGovern for advocating on the House floor today for the 2.7 million Americans with gastrointestinal or inherited metabolic disorders who rely on #medicalnutrition. It's #TimeforMNEA

Oops, Popsicle®, need your help: someone who can’t have aspartame due to #pku accidentally ate a sugar-free version of your tasty treat. Can you tell us how much aspartame there is per popsicle? Thanks!

Thrilled to announce that flok will receive $800,000 from CZI Science Rare As One Project to advance care and research in rare inherited conditions of protein metabolism. Honored to be part of this movement! flok.org/news/flok-rare… #RareAsOne #flokHealth #CZI #patientledresearch