We didn’t get the answer we hoped for. But we are not done. We are regrouping. We are pursuing the next path. We are asking hard questions. When it comes to our daughter’s life, we will not accept “no” as the end of the story. #GBM #ImmunityBio #SaveBraelyn

MRI day. Braelyn’s first scan since her tumor was removed 4½ weeks ago. Anyone who has walked this road knows how heavy these days feel — the fear, the waiting, the silent prayers. She’s had more difficulty walking lately, so we’re bracing ourselves. Praying we can stabilize

⸻ We got Braelyn’s MRI results today, and they were not what we hoped for. We’re facing progression and increased neurological symptoms. Our immediate focus is on stabilizing her and controlling inflammation while we urgently pursue compassionate access to immune-based

When you are seeing near complete response and lymphocyte counts increase, patients need access. Please act decisively Dr. Marty Makary David Lim Eric Topol Kevin Pho, M.D. Nature Cancer The ASCO Post #ANKTIVA

MAHA Action Katie Miller DrOzCMS FDA must approve ANKTIVA NOW. My daughter has leukopenia from chemo and FDA need “Policy makers” to determine that severe lack of leukocytes, or killer T-Cells is a medical condition. Insane

As the world embraces groundbreaking medical technology designed in the United States, cancer patients here are left without hope. Dr. Pat is an amazing, brilliant man who discovered that NK cells are the key to longevity and healing. The Soon-Shiong Clinic has over 15,000

This is Braelyn working with her occupational therapist to try to regain functional use of her right arm. She lost use of it about a week before her recurrent tumor was removed. Progress is slow. But she shows up. She tries. She doesn’t quit. Neither do we. #GBM

My beautiful Ashley didn’t want to die from #BrainCancer 💔 Ashley dreamed of growing up to become a veterinarian, falling in love, getting married & raising Children of her own. We fought with everything we had, every treatment, every hope to keep her here but the options

Tonight, my husband and I took Braelyn to the Clemson Family Wish Winter Wonderland Ball. Organizations like this — that step in to support families with seriously ill children — help ease some of the financial and emotional burdens we carry every day. We are deeply grateful.

Eb SmokyMtn David Sinclair Bullshit. What do most animals do when they are ill. Fast. Why do we lose appetite when we get sick. Because our bodies don't want to waste energy on digestion so it can focus on healing. Fasting has been known for centuries to be beneficial. Your dietician is an idiot.

God has such a sense of humor

Dr Eric Nepute was sued by the US Gov't for over $500 BILLION, for helping patients & talking about prevention with Vitamin D, Quercetin & Zinc. Dr Nepute treated over 11,000 patients during Covid - not one died - yet the Biden Administration went after him because they didn’t

I’ve been quiet because things have been moving very quickly. Last week, Braelyn’s MRI showed aggressive new growth, large cyst formation, significant edema, and considerable midline shift. When local options stalled, we received a call from Dr. Linda Liau’s office after her

Brilliant man.

I feel this in my soul. I have been fiercely fighting for my teenage daughter’s life for over 2 years. I would give anything to trade places with her. Not being able to fix something for your “baby” is the most helpless feeling I could ever imagine. I have become completely

Big sister, Rylee and dad are providing a direct donation if Braelyn ends up needing blood during or after surgery next week. Unfortunately, my blood is a different type, but I felt left out so I made a general donation. Feeling grateful for dad and big sister!

Andrew’s fight is bigger than just our family. His case is now being featured in a documentary for the Soon-Shiong Clinic as we continue pushing forward — not only for him, but for every cancer patient who deserves access to innovative treatment options like NK cell therapy and