Why is it impossible to find a b complex without b6

If IL6 is low and CRP normal does that mean trying something like Celebrex is a bad idea? Debating valtrex/cele Dr Pridgen protocol in future. Also concerned about gut as have constant upper stomach issues. #LongCovid #MECFS

My genetic testing always ends up with a variant of unknown significance. For people who know more, this isn't revealing anything concrete right?

Been reading about CMT and realising how ridiculous it is that no neuro ever made me get an EMG back when i could. I only ever got a NCV test. Arrrgh this inability to get testing is ruining me

Bad experience SGB Testimony about the Stellate Ganglion Block (SGB) in left side with too much different meds i think (Ketamine and benzo for local anesthesia, Rivocaine and Catapressan for the block) After 6 days, bad experience. Im in crash. Hello, I wanted to share my

Supposed to eat at least 1500 calories per day but struggle to reach like 1200. I keep losing weight and am now under 56 kgs. Everytime I try to eat more I just can't digest. Anyone have some advice ? Eating 4 times a day already and can't add a 5th (awake from 10 to 22) #MECFS

National shortage of Amlexanox right now in the US. This is the drug that helped me start walking again several months ago, even though I'm only up to 120 steps every other day. I have seven days left – if anyone knows a source please let me know.

Researchers studied 163 adults with long COVID and no asthma. At least 75% had small airway dysfunction. Those treated with inhaled corticosteroids and long-acting bronchodilators saw fatigue fall from 96% to 15% and breathlessness from 83% to 18%. researchsquare.com/article/rs-754…

I wish whatever neurological nightmare i have wasn't progressive. I could get used to it somehow but it keeps getting worse. There is no stability

Sharing this again. Has anyone tried Thaena Postbiotic? TIA #MECFS #LongCovid #SIBO #Microbiome

Susan Griffin, 82, esteemed Berkeley CA author and feminist thinker, has died by assisted suicide. Griffin suffered from ME and Parkinson's. Her 1999 book about ME, "What Her Body Thought: A Journey into the Shadows," was a deeply affecting essay on ME. sfchronicle.com/bayarea/articl…

My brain is hot and hurts every single day 24/7. I want to see if I can try anti-CGRP drugs for the pain and sensory issues. Has anyone tried it and did it work? Pls RT. I'm desperate.

What is a super easy and accessible resource you would send somebody who is likely experiencing ME but is kind of in denial about it? Someone in my life has been experiencing worsening fatigue and what sounds like p e m but keeps trying to push through it despite me telling them

Nobody has more disdain for you than a doctor whose suggested treatment you respond poorly to.

Last time I checked my fecal calprotectin was abnormally high. Colonoscopy and MRI with contrast were all normal. Colonoscopy showed inflammation but no IBD. Could this be due to endometriosis? Have you seen anything like that? #mecfs #ibd #longcovid #pwme

Someone listed 'a nice shower' as a 'micro joy' and oh, don't I wish I considered that a micro joy. Am not even going to say how long it's been since I was able to shower.

Does anyone else who is severe have trouble holding a thermometer in their mouth. My facial muscles start hurting with the effort of keeping it in place under my tongue very quickly. I don't know how common that is for others? Wonder if I have something like myasthenia gravis :/