Future Leaders Flashback from 2024! HCC Future Leaders work together towards their goals, both large and small. Interested in becoming a Future Leader in 2025? Visit our webpage at hemophiliaca.org/education/futu…. Now accepting applications! #HCCFutureLeaders

On November 3rd, Hemophilia Council of California will be joining HFNC for their Unite Walk! If you sign up to participate, drop by our table and say hello to our HCC volunteers there. We hope to see you on November 3rd in Oakland! For details, visit uniteforbleedingdisorders.org/index.cfm?fuse…

¡Acompáñenos el 28 de agosto @ 6:30 PM para “¡Ayuda! Mi seguro médico rechazó mi tratamiento”. Nuestra oradora Michelle Rice tiene mucha experiencia con las compañías de seguros en su trabajo. Ella dará consejos útiles sobre cómo apelar las denegaciones. hemophiliaca.org/education/webi…

Next Wednesday, 8/28 our webinar speaker is Michelle Rice. Michelle has an abundance of experience dealing with insurance companies as part of her consulting. Michelle is also a Hemo Mom and a patient. Hear her tips on how to deal with insurance denials! bit.ly/HCCwebinar

Throwback Thursday! Did you realize that HCC's first California Rare Disease Access Coalition meeting- held in Sacramento and on Zoom- was almost 6 months ago on 2/29? If you would like to hear about our next meeting on 10/2, visit hemophiliaca.org/ca-rda-coaliti… You can register today!

The Hemophilia Council of California is currently recruiting for new Board Members beginning in January 2025. Applications are due by TODAY! Please contact Lynne at [email protected] for more information. #advocacy #boardrecruitment #volunteersmakeadifference

HCC’s Fall Advocacy Days are coming to your neighborhood! But why advocate locally? When you tell your story to your legislators, you help lawmakers to understand the challenges people with bleeding disorders face. Register Today! bit.ly/FallAdvocacyHCC

You can still join us TODAY @ 6:30 PM for our webinar “Help! My Insurance Denied My Treatment”! Denials of medication and treatment can be scary and frustrating. Join speaker Michelle Rice for tips on how to file appeals & get the treatment you need! Visit forms.gle/SmiyCt9wX1cWJz…

¡HCC regresará a Anaheim para “Familia de Sangre” el 6 de septiembre! Visítenos en el Salón de Exposiciones para obtener más info sobre nuestros eventos y programas. Durante FdS, nuestra sesión es: "¡Habla! Cómo abogar por ti mismo" con Estela Mata. 9/7 @ 2:45 PM en Platinum 1.

The final hurdle is ahead for the PBM reform bill! Gratitude to #SB966 author Senator Senator Scott Wiener and coauthors, Asm. Devon J Mathis, Asm. Assemblymember Jim Wood, Asm. Assemblymember Akilah Weber, MD, Asm. Marie Waldron, Senator Dave Min, Asm. Blanca Pacheco, Senator Aisha Wahab & Senator Anthony Anthony Portantino!

HCC, our 4 CA Foundations, HFA & NBDF, submitted a letter to the Governor requesting he sign AB2613 to create a Rare Disease Advisory Council in CA! Full letter- hemophiliaca.org/hcc-joins-othe… Send support- gov.ca.gov/contact/ In the drop-down, select "Legislative Issues/Concerns".

¡Los días de defensa de otoño de HCC están llegando a su vecindario! ¿Por qué hablar con sus legisladores cerca de casa? Cuando cuenta su historia, ayuda a los legisladores a comprender los desafíos que enfrentan las personas con desórdenes sanguíneos. bit.ly/Defensaenotoño…

Congratulations/Felicidades to our community member webinar attendee raffle winners Eva and Erin! This raffle is open to all community members who are not members of industry or affiliated with HCC. Please join us this month for our September webinar! bit.ly/HCCwebinar

¿Qué es la abogacía? ¿Cómo puedes hacer una diferencia cuando les cuentes tu historia a los legisladores? ¡Este seminario web se presenta solamente en ESPAÑOL! Descubre cómo puedes abogar por tu familia y la comunidad el 18 de sept @ 6-7P. forms.gle/YoCYNCYNNg4ENB… para inscribirte

Ready to welcome everyone to Familia de Sangre! Estamos aquí esperando a nuestra “Familia de Sangre”. Hasta pronto #bleedingdisorders #espanol #education #Advocacy

Familia de Sangre - come join us to learn about advocacy! Familia de Sangre- acompáñenos esta tarde a las 2:45 pm para saber más acerca de la abogacía

Wrapping up a great day at Familia de Sangre with a full house in our advocacy breakout! #bleedingdisorders #advocacy #education #findyourvoice #patientsvoice Looms4Lupus Estela Mata

We loved seeing so many friends a& blood family at Familia de Sangre. Thank you HemoSoCal Hemophilia Foundation of Northern California CentralCa Hemophilia for hosting a great event! Thanks to Estela Mata Looms4Lupus for moderating and panelists - Thalia, Ivan and Andrea for sharing their experience.