🚨 Last Call! 🚨 Deadline: Sunday, 16 Feb! Join the FAIR Principles Training School in Larnaca, Cyprus (12-14 May 2025)! 🌍✨ 💰 Travel covered + €210/day allowance (for HELIOS members) ⏳ Apply now: redcap.ithanet.eu/surveys/?s=3XY… 🚀 Co-organised with HemaFAIR

🚀 Join Today’s LIVE Webinar on FAIR Principles!🧬 Topic: Introduction to ERDRI & FAIR Principles 📅 Date&Time: 27th Feb, Thurs at 2 PM CET 🔗 Link: gqr.sh/enmB Learn from Dr. Andri Papadopoulou (European Commission JRC) on advancing rare disease research!

On the eve of #RareDiseaseDay2025 💚💙💜I was honored to present our work on rare disease registries EU_ScienceHub eu-rd-platform.jrc.ec.europa.eu thank you HELIOS COST Action & HemaFAIR

🚀 Advancing Haemoglobinopathy Research! 🩸 Thanks to a HELIOS YRI Conference Grant, Dr. Liri Seraj attended the ESH Conference, presenting research on drug repurposing for haemoglobinopathy patients. 🔍Read more: heliosaction.eu/reflections-on…

🚨 Final FAIR Principles Webinar! 🚨 Join us on 10 April, 13:00 CEST via MS Teams for "Federated Analysis of FAIR Data" with 👨‍💼 César Bernabé & 👩‍💼 Daphne Wijnbergen (LUMC) 🔐 Privacy-first, collaborative science! #FAIRdata #Webinar #OpenScience

🚨 Excited to launch the HELIOS webinar series led by Dr. Anna Collado Gimbert! 🧠 Top experts, 3 key talks: 🩸 June 4 – Iron Overload 🧵 June 17 – Vascular Access 🧬 June 19 – Alloimmunization 📍 MS Teams | 🕒 3PM CEST ✅ Open to all, no registration! #HELIOSWebinar #SCD

🩸 Today is #WorldThalassaemiaDay, a time to raise awareness, honour patients & families, and support the global fight against thalassaemia. #ThalassaemiaAwareness #RareDiseases #StrongerTogether #Thalassemia

Wrapping up an inspiring FAIR Principles Training School co-organized by HELIOS & HemaFAIR ! Grateful to our trainers, participants & organizers. Together, we’ve built skills, shared knowledge & strengthened our commitment to FAIRer data. 🌍📊 #FAIRdata #OpenScience

One-Day Transcranial Doppler (TCD) Training School 📅 18 September 2025 | 📍 Ulm, Germany Join this hands-on training with both theoretical and practical sessions. 📝 Apply by 6 June: 0lyz0gsa.forms.app/transcranial-d… #HELIOS #TCDtraining

✨ "I came to Larnaca to learn more about data. What I didn’t expect was to reflect so deeply on what it means to share knowledge—not just store it." – Dr. Liri Seraj. Read more about our participants' experience. We thank Dr Seraj for her kind words💡 🔗 hemalily.com/making-data-hu…

🎉 Our abstract PB3837 was accepted by #EHA2025! Led by Elisabetta Mezzalira (HELIOS COST & ERN-EuroBloodNet), it explores HCPs’ knowledge of AI & attitudes toward its integration in hematology. 🔗library.ehaweb.org/eha/2025/eha20… #AI #Hematology

🚨 HELIOS Members! 🚨 Planning to present at a top conference? We offer grants to support your oral/poster presentation! 💻 More info: heliosaction.eu ✅ Not a member? Join HELIOS! #HELIOS #Hemoglobinopathies #ConferenceGrants

🚨 Reminder! The TCD Training is in September. The application deadline is June 8! Spots are filling up fast – apply now to secure yours! 0lyz0gsa.forms.app/transcranial-d… #TCDTraining #HELIOS #ApplyNow

📢 Reminder: Tomorrow, 4 June at 15:00 CEST — our first #HELIOS webinar on Iron Overload in Hemoglobinopathies with Prof. Holger Cario (Med. Univ. of Ulm). Organized by Dr. Anna Collado Gimbert, Co-Leader HELIOS WG2. teams.microsoft.com/l/meetup-join/… #RareDiseases #Webinar

🩺 TOMORROW 3PM CEST 🩺 LIVE Webinar: "Vascular Access Modalities - Technical Aspects of RCE" 👩‍⚕️ Dr. Verònica Pons Escoll 🏥 Hospital Vall d'Hebron, Barcelona 🔗 teams.microsoft.com/l/meetup-join/…

🎥 “FAIR is not the end goal—it’s the beginning of a smarter way to do science.” Dr. Marco Roos, FAIR pioneer, shares his powerful message from the FAIR Principles Training School (12–14 May). #FAIRdata #OpenScience #HemaFAIR #HELIOS #FAIRprinciples #EUprojects COST

🎥 “FAIR is the bridge between data and discovery.” Dr. Adela Perolla, participant of the FAIR Principles Training School (12–14 May), shares her experience and reflects on why FAIR is crucial for the future of research. HemaFAIR #OpenScience #FAIRprinciples #EUprojects

We’ll be at #ASCAT2025! 🎉 Join our session HELIOS CA22119: Mapping Practices & Harmonisation in Haemoglobinopathies 📅 3 Oct | 🕐 12:15–13:15 | 📍 Room 13, ExCeL London Come hear our results & meet us at our booth!