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Helen Walker

@helenmwalker44

National Myotonic Dystrophy, FSHD & SMA Patient Registries Manager (she/her)

*Views my own*

#neuromuscular #PatientRegistries #dm1 #dm2 #fshd #RareDisease

calendar_today14-11-2018 16:59:13

518 Tweets

666 Followers

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Helen Walker(@helenmwalker44) 's Twitter Profile Photo
Helen Walker
@helenmwalker44

1 month ago

Lovely to meet new Peter trustee Wendy at ! The UK patient registry supported recruitment to their recent survey; it's great to see the results of this important work being presented to the global research community 🌍

Lovely to meet new @CureDMCharity trustee Wendy at #IDMC14! The UK #MyotonicDystrophy patient registry supported recruitment to their recent survey; it's great to see the results of this important work being presented to the global research community 🌍
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