HDSA Pacific Region (@hdsapacific) 's Twitter Profile
HDSA Pacific Region

@hdsapacific

Follow any updates regarding the Huntington's Disease Society of America Pacific Region.

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linkhttp://pacificreg.hdsa.org/ calendar_today19-09-2019 19:09:12

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The Enroll-HD platform will soon be recruiting participants. Most of these studies are recruiting people who are already participating in Enroll-HD. Please find a site near you and contact the study coordinator listed for that site. buff.ly/MmDcMrX

The Enroll-HD platform will soon be recruiting participants. Most of these studies are recruiting people who are already participating in Enroll-HD. Please find a site near you and contact the study coordinator listed for that site. buff.ly/MmDcMrX
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UniQure secured a Type A FDA meeting, a high-priority discussion for urgent issues. Within 30 days, both parties will discuss the type of data package that might support the advancement of AMT-130 in the US. buff.ly/7Db7pEz

UniQure secured a Type A FDA meeting, a high-priority discussion for urgent issues. Within 30 days, both parties will discuss the type of data package that might support the advancement of AMT-130 in the US. buff.ly/7Db7pEz
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Research suggests that vaccines may reduce the risk of dementia by 20%. Infections cause inflammation and toxic byproducts that mitochondria normally clear. In HD, where mitochondria are impaired, vaccination is especially crucial. buff.ly/jVygBEd

HDSA Pacific Region (@hdsapacific) 's Twitter Profile Photo

UniQure secured a Type A FDA meeting, a high-priority discussion for urgent issues. Within 30 days, both sides will discuss what kind of data package might support the advancement of AMT-130 in the US. buff.ly/7Db7pEz

UniQure secured a Type A FDA meeting, a high-priority discussion for urgent issues. Within 30 days, both sides will discuss what kind of data package might support the advancement of AMT-130 in the US. buff.ly/7Db7pEz
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Join us for the 8th Annual San Jose Team Hope 5k Walk and 5k Timed Run scheduled for Saturday, May 16th, 2026, at Campbell Park. NEW: Registration is FREE for all Team Hope events this year! Fundraise $100 and get a Team Hope Walk t-shirt. Register here: buff.ly/viqQviX

Join us for the 8th Annual San Jose Team Hope 5k Walk and 5k Timed Run scheduled for Saturday, May 16th, 2026, at Campbell Park. NEW: Registration is FREE for all Team Hope events this year! Fundraise $100 and get a Team Hope Walk t-shirt. Register here: buff.ly/viqQviX
HDSA Pacific Region (@hdsapacific) 's Twitter Profile Photo

Keeping up with HD research just got easier with the Introduction of the HDBuzz Trial Tracker. The HDBuzz Trial Tracker will put future updates for HD trials on a clear timeline, with deeper explanations in their articles when you want them. buff.ly/C3Vt7wI

Keeping up with HD research just got easier with the Introduction of the HDBuzz Trial Tracker. The HDBuzz Trial Tracker will put future updates for HD trials on a clear timeline, with deeper explanations in their articles when you want them. buff.ly/C3Vt7wI
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Most people with HD report sleep problems, & new research suggests sleep quality is linked to many aspects of living with the disease. Wearables tracked people with HD for a year & revealed better sleep & strength training might help. buff.ly/vEY5URD

Most people with HD report sleep problems, & new research suggests sleep quality is linked to many aspects of living with the disease. Wearables tracked people with HD for a year & revealed better sleep & strength training might help. buff.ly/vEY5URD
HDSA Pacific Region (@hdsapacific) 's Twitter Profile Photo

The San Jose Team Hope Walk & 5K Timed Run is our annual fundraising event, raising critical funds to support programs and services for local families affected by HD. Help us reach our goal of raising $26,500. buff.ly/viqQviX

The San Jose Team Hope Walk & 5K Timed Run is our annual fundraising event, raising critical funds to support programs and services for local families affected by HD. Help us reach our goal of raising $26,500. buff.ly/viqQviX
HDSA Pacific Region (@hdsapacific) 's Twitter Profile Photo

The Huntington’s disease community's unprecedented mobilization helped secure a high-priority FDA meeting to discuss the path forward for AMT-130. buff.ly/LiWttVl

The Huntington’s disease community's unprecedented mobilization helped secure a high-priority FDA meeting to discuss the path forward for AMT-130. buff.ly/LiWttVl
HDSA Pacific Region (@hdsapacific) 's Twitter Profile Photo

Bring Hope to Huntington's Disease Families: Urge the FDA to Uphold Accelerated Approval. Please Sign The Petition Here: buff.ly/CLD6Aih

Bring Hope to Huntington's Disease Families: Urge the FDA to Uphold Accelerated Approval. Please Sign The Petition Here: buff.ly/CLD6Aih
HDSA Pacific Region (@hdsapacific) 's Twitter Profile Photo

The Huntington’s disease community’s unprecedented mobilization helped secure a high-priority FDA meeting to discuss the path forward for AMT-130. Check here for details: buff.ly/LiWttVl

The Huntington’s disease community’s unprecedented mobilization helped secure a high-priority FDA meeting to discuss the path forward for AMT-130. Check here for details: buff.ly/LiWttVl
HDSA Pacific Region (@hdsapacific) 's Twitter Profile Photo

Skyhawk Therapeutics shared results for SKY-0515, a drug designed to lower huntingtin. The drug appeared generally safe, with 60% reduction of huntingtin in blood at the highest dose tested. This data is an encouraging step as larger trials continue. buff.ly/PlwJVeU

Skyhawk Therapeutics shared results for SKY-0515, a drug designed to lower huntingtin. The drug appeared generally safe, with 60% reduction of huntingtin in blood at the highest dose tested. This data is an encouraging step as larger trials continue. buff.ly/PlwJVeU