HDSA Northeast Region (@hdsa_neregion) 's Twitter Profile
HDSA Northeast Region

@hdsa_neregion

The HDSA is the largest 501(c)(3) non-profit volunteer organization dedicated to improving the lives of everyone affected by Huntington’s Disease (HD).

ID: 1342983870

linkhttp://www.hdsa.org calendar_today10-04-2013 22:23:54

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HDSA (@hdsa) 's Twitter Profile Photo

HDSA Sets New Attendance record at the 34th Annual #HDSAConvention in #Boston Full Story: hdsa.org/news/hdsa-sets… #LetsTalkAboutHD #HDSAFamily #HuntingtonsDisease

HDSA Sets New Attendance record at the 34th Annual #HDSAConvention in #Boston
Full Story: hdsa.org/news/hdsa-sets…

#LetsTalkAboutHD #HDSAFamily #HuntingtonsDisease
HDSA (@hdsa) 's Twitter Profile Photo

HDSA presents Here's the Deal with Post #HDSAConvention Blues 📺youtube.com/watch?v=6rlaFK… For more info about #HuntingtonsDisease & the #HDSAFamily please visit HDSA.org. #LetsTalkAboutHD HDSA's NYA

HDSA (@hdsa) 's Twitter Profile Photo

Thank you @jcarroll42 & dredwild!! See you tomorrow at 1pm (Eastern Time) for the HDBuzz Year In Review: hdsa-org.zoom.us/webinar/regist… #HDSAConvention #HuntingtonsDisease #PartOfTheFamily #HDSAFamily

HDSA (@hdsa) 's Twitter Profile Photo

How do you describe #HuntingtonsDisease? To learn more about the #HDSAFamily please visit HDSA.org. #LetsTalkAboutHD #PartOfTheFamily

How do you describe #HuntingtonsDisease? 
To learn more about the #HDSAFamily please visit HDSA.org. 

#LetsTalkAboutHD #PartOfTheFamily
HDSA (@hdsa) 's Twitter Profile Photo

This Holiday Season, Help Hope Blossom! The #amaryllis is a symbol of strength & hope for the #HuntingtonsDisease community and makes for great gifts just in time for the holidays. Order today while supplies last: HDSA.ORG/AMARYLLIS #LetsTalkAboutHD #HDSAFamily

This Holiday Season, Help Hope Blossom! 
The #amaryllis is a symbol of strength & hope for the #HuntingtonsDisease community and makes for great gifts just in time for the holidays.

Order today while supplies last: HDSA.ORG/AMARYLLIS

#LetsTalkAboutHD #HDSAFamily
HDSA (@hdsa) 's Twitter Profile Photo

The #HDSAFamily mourns the passing of Sharon Shaffer. Sharon was a true inspiration and #HuntingtonsDisease warrior. Here is a trailer to the powerful film THE LONGEST JOURNEY featuring Sharon & her amazing family: youtube.com/watch?v=ImIB3t… #LetsTalkAboutHD

HDSA (@hdsa) 's Twitter Profile Photo

UPCOMING HDSA RESEARCH WEBINAR JANUARY 20TH @ 3PM (ET) Please join us for an update from Roche with new key findings from the GENERATION-HD1 study. REGISTER TODAY: hdsa-org.zoom.us/webinar/regist… #HuntingtonsDisease #HDSAFamily #LetsTalkAboutHD

UPCOMING HDSA RESEARCH WEBINAR
JANUARY 20TH @ 3PM (ET)

Please join us for an update from <a href="/Roche/">Roche</a> with new key findings from the GENERATION-HD1 study.

REGISTER TODAY: hdsa-org.zoom.us/webinar/regist…

#HuntingtonsDisease #HDSAFamily #LetsTalkAboutHD
HDSA (@hdsa) 's Twitter Profile Photo

Thank you Senator Mark Kelly for your co-sponsorship of #HDParityAct! Together we will #PasstheHDParityAct to support #HuntingtonsDisease families! Learn more at HDSA.org/takeaction #LetsTalkAboutHD #HDSAFamily

Thank you <a href="/SenMarkKelly/">Senator Mark Kelly</a> for your co-sponsorship of #HDParityAct! Together we will #PasstheHDParityAct to support #HuntingtonsDisease families!

Learn more at HDSA.org/takeaction

#LetsTalkAboutHD #HDSAFamily
HDSA (@hdsa) 's Twitter Profile Photo

Thank you Senator Debbie Stabenow for your co-sponsorship of #HDParityAct! Together we will #PasstheHDParityAct to support #HuntingtonsDisease families! Learn more at HDSA.org/takeaction #LetsTalkAboutHD #HDSAFamily

Thank you Senator Debbie Stabenow for your co-sponsorship of #HDParityAct! Together we will #PasstheHDParityAct to support #HuntingtonsDisease families!

Learn more at HDSA.org/takeaction

#LetsTalkAboutHD #HDSAFamily
HDSA (@hdsa) 's Twitter Profile Photo

This Week In #HuntingtonsDisease Research! Read the latest post at HDSA.org/blog THIS WEEK - In one week, Roche will join HDSA to discuss the latest data from GENERATION HD-1 - Researcher Spotlight: Osama Al Dalahmah, PhD - Online Surveys #LetsTalkAboutHD #HDSAFamily

This Week In #HuntingtonsDisease Research!
Read the latest post at HDSA.org/blog

THIS WEEK
- In one week, <a href="/Roche/">Roche</a> will join HDSA to discuss the latest data from GENERATION HD-1
- Researcher Spotlight: Osama Al Dalahmah, PhD
- Online Surveys

#LetsTalkAboutHD #HDSAFamily
HDSA (@hdsa) 's Twitter Profile Photo

BREAKING NEWS Roche Announces That The Tominersen Research Programme Will Continue With A New Phase II Trial FULL STORY: hdsa.org/wp-content/upl… To learn more register for the upcoming webinar on 1/20: hdsa-org.zoom.us/webinar/regist… #LetsTalkAboutHD #HuntingtonsDisease #HDSAFamily

BREAKING NEWS
<a href="/Roche/">Roche</a> Announces That The Tominersen Research Programme Will Continue With A New Phase II Trial

FULL STORY: hdsa.org/wp-content/upl…

To learn more register for the upcoming webinar on 1/20:  hdsa-org.zoom.us/webinar/regist…

#LetsTalkAboutHD #HuntingtonsDisease #HDSAFamily
HDSA (@hdsa) 's Twitter Profile Photo

Our very own MaryAnn Emerick supporting HD research and taking part in the PREVENT-HD trial...To learn more about #HuntingtonsDisease clinical trials please visit HDTRIALFINDER.org. #LetsTalkAboutHD #HDSAFamily

Our very own MaryAnn Emerick supporting HD research and taking part in the PREVENT-HD trial...To learn more about #HuntingtonsDisease clinical trials please visit HDTRIALFINDER.org.

#LetsTalkAboutHD #HDSAFamily
HDSA (@hdsa) 's Twitter Profile Photo

With a record-breaking 1,170 votes, heather gray is the 2022 HDSA Team Hope Walk T-Shirt color! Thank you for voting & we will see you at an HDSA Team Hope Walk this year! Find an event near you: HDSA.org/events #LetsTalkAboutHD #HuntingtonsDisease #HDSAFamily

With a record-breaking 1,170 votes, heather gray is the 2022 HDSA Team Hope Walk T-Shirt color! Thank you for voting &amp; we will see you at an HDSA Team Hope Walk this year!

Find an event near you: HDSA.org/events

#LetsTalkAboutHD #HuntingtonsDisease #HDSAFamily
HDSA (@hdsa) 's Twitter Profile Photo

Today is #RareDiseaseDay and our goal is to turn up the global volume for #HuntingtonsDisease awareness and continue to provide world-class HD resources to families across the country. Learn More & Give Today: HDSA.org/rarediseaseday #LetsTalkAboutHD #HDSAFamily #RDD2022

Today is #RareDiseaseDay and our goal is to turn up the global volume for #HuntingtonsDisease awareness and continue to provide world-class HD resources to families across the country.  

Learn More &amp; Give Today: HDSA.org/rarediseaseday

#LetsTalkAboutHD #HDSAFamily #RDD2022
HDSA's NYA (@hdsanya) 's Twitter Profile Photo

We wanted to pay tribute to Jennifer Simpson, LCSW as she has decided to transition out of #HDSA. Jennifer has been an integral part of the #HuntingtonsDisease community and will always be a member of our #NYAOhana. youtube.com/watch?v=CSK3q4… #HDSAFamily #NYA #OhanaForever

HDSA (@hdsa) 's Twitter Profile Photo

A generous donor and inspiring HD family has pledged to match all HDSA Rare Disease Day donations up to $10K!💜 We need YOUR help to reach our $10K goal to unlock the full match. Join us on 2/29/24, the rarest day of the year! Click here to donate early: app.donorview.com/VKL44

A generous donor and inspiring HD family has pledged to match all HDSA Rare Disease Day donations up to $10K!💜 We need YOUR help to reach our $10K goal to unlock the full match. Join us on 2/29/24, the rarest day of the year! 
Click here to donate early: app.donorview.com/VKL44
HDSA (@hdsa) 's Twitter Profile Photo

Hey there, amazing community! Get ready to dive into this week's edition of the HDSA Research Blog! 📚💡 Be a part of the progress! Share and spread the word! #HDSAFamily #HDResearch #HopeInResearch 👉 Click the link below to read the full blog ! 👇 hdsa.org/blog/

Hey there, amazing community! Get ready to dive into this week's edition of the HDSA Research Blog! 📚💡
Be a part of the progress! Share and spread the word!
#HDSAFamily #HDResearch #HopeInResearch
👉 Click the link below to read the full blog ! 👇
hdsa.org/blog/