Hairy Cell Leukemia Foundation (@hclfoundation) 's Twitter Profile
Hairy Cell Leukemia Foundation

@hclfoundation

Official Twitter profile for the Hairy Cell Leukemia Foundation, a nonprofit dedicated to patient education and research in HCL. hairycellleukemia.org

ID: 1417870163144331266

linkhttps://www.hairycellleukemia.org calendar_today21-07-2021 15:32:48

349 Tweet

174 Followers

125 Following

Hairy Cell Leukemia Foundation (@hclfoundation) 's Twitter Profile Photo

Today is #RareDiseaseDay! For nearly four decades, the Hairy Cell Leukemia Foundation has been the leader in funding HCL research. With your help, we can make effective treatment available for everyone with HCL. Donate! You can make an impact today. 💚 form-renderer-app.donorperfect.io/give/hclf_dona…

Today is #RareDiseaseDay! 

For nearly four decades, the Hairy Cell Leukemia Foundation has been the leader in funding HCL research. With your help, we can make effective treatment available for everyone with HCL.

Donate! You can make an impact today. đź’š 
form-renderer-app.donorperfect.io/give/hclf_dona…
Hairy Cell Leukemia Foundation (@hclfoundation) 's Twitter Profile Photo

🟢 TOMORROW Don't miss out! Join us for a webinar hosted by the Hairy Cell Leukemia Foundation with guest speaker Dr. Kerry Rogers from The Ohio State University. Tomorrow, March 5th, from 2:00-3:00 pm Eastern. Register HERE: hairycellleukemia.org/calendar/2025/…

🟢 TOMORROW  

Don't miss out! Join us for a webinar hosted by the Hairy Cell Leukemia Foundation with guest speaker Dr. Kerry Rogers from The Ohio State University.

Tomorrow, March 5th, from 2:00-3:00 pm Eastern.

Register HERE: hairycellleukemia.org/calendar/2025/…
Hairy Cell Leukemia Foundation (@hclfoundation) 's Twitter Profile Photo

🟢 A reminder! You're invited to join the HCL Community Roundtable happening next week on March 12 at 4:00 pm Eastern! Join us for a lively and supportive online discussion. Don't miss out—register here: hairycellleukemia.org/calendar/2025/…

🟢 A reminder! You're invited to join the HCL Community Roundtable happening next week on March 12 at 4:00 pm Eastern! 

Join us for a lively and supportive online discussion.

Don't miss out—register here:  
hairycellleukemia.org/calendar/2025/…
Hairy Cell Leukemia Foundation (@hclfoundation) 's Twitter Profile Photo

🟢 Tomorrow! Join us for the HCL Community Roundtable on March 12th at 4:00 pm Eastern. This is a great opportunity to connect and share support! Register below! hairycellleukemia.org/calendar/2025/…

🟢 Tomorrow! Join us for the HCL Community Roundtable on March 12th at 4:00 pm Eastern. This is a great opportunity to connect and share support!

Register below! 
hairycellleukemia.org/calendar/2025/…
Hairy Cell Leukemia Foundation (@hclfoundation) 's Twitter Profile Photo

🟢 NEXT WEEK! Join our HCLF Women's Group for a supportive and engaging roundtable meeting via Zoom on March 18th at 12:30 pm Eastern. You can register through the HCLF website: hairycellleukemia.org/calendar/2025/…

🟢 NEXT WEEK!

Join our HCLF Women's Group for a supportive and engaging roundtable meeting via Zoom on March 18th at 12:30 pm Eastern. 

You can register through the HCLF website: hairycellleukemia.org/calendar/2025/…
Hairy Cell Leukemia Foundation (@hclfoundation) 's Twitter Profile Photo

🟢 TOMORROW! Don’t miss the chance to join our Women's Group Roundtable Meeting at 12:30 pm Eastern! This meeting encourages open dialogue and support among women with HCL and HCLv. REGISTER >> hairycellleukemia.org/calendar/2025/…

🟢 TOMORROW!

Don’t miss the chance to join our Women's Group Roundtable Meeting at 12:30 pm Eastern! This meeting encourages open dialogue and support among women with HCL and HCLv.

REGISTER >> hairycellleukemia.org/calendar/2025/…
Hairy Cell Leukemia Foundation (@hclfoundation) 's Twitter Profile Photo

Join us on April 2nd for an insightful webinar with Dr. Jae Park of Memorial Sloan Kettering Cancer Center. Dr. Park will present his trial comparing Vemurafenib + Obinutuzumab with Cladribine + Rituximab in untreated HCL. There will be a moderated Q&A. hairycellleukemia.org/calendar/2025/…

Join us on April 2nd for an insightful webinar with Dr. Jae Park of Memorial Sloan Kettering Cancer Center.

Dr. Park will present his trial comparing Vemurafenib + Obinutuzumab with Cladribine + Rituximab in untreated HCL. There will be a moderated Q&A. 

hairycellleukemia.org/calendar/2025/…
Hairy Cell Leukemia Foundation (@hclfoundation) 's Twitter Profile Photo

🟢 Únase a la Mesa Redonda para la Comunidad Hispana y Latina sobre la Tricoleucemia/ Leucemia de Celulas Peludas. Sábado, 22 de marzo / Saturday, March 22 11:00 am-12:00 pm hora del Este / Eastern Time Inscribirse / Register hairycellleukemia.org/calendar/2025/…

🟢 Únase a la Mesa Redonda para la Comunidad Hispana y Latina sobre la Tricoleucemia/ Leucemia de Celulas Peludas. 

Sábado, 22 de marzo / Saturday, March 22

11:00 am-12:00 pm hora del Este / Eastern Time

Inscribirse / Register  hairycellleukemia.org/calendar/2025/…
Hairy Cell Leukemia Foundation (@hclfoundation) 's Twitter Profile Photo

Pursue your educational goals through the #RAREis Scholarship Fund. $5,000 scholarships will be awarded this year to 104 adults with rare disease, thanks to Amgen. Apply by April 28! everylifefoundation.org/rare-scholarsh…

Pursue your educational goals through the #RAREis Scholarship Fund. $5,000 scholarships will be awarded this year to 104 adults with rare disease, thanks to Amgen.

Apply by April 28!  
everylifefoundation.org/rare-scholarsh…
Hairy Cell Leukemia Foundation (@hclfoundation) 's Twitter Profile Photo

🟢 NEXT WEEK Join our HCL Clinical Trials webinar on April 2nd featuring Dr. Jae Park from Memorial Sloan Kettering Cancer Center. Register here: hairycellleukemia.org/calendar/2025/…

🟢 NEXT WEEK  

Join our HCL Clinical Trials webinar on April 2nd featuring Dr. Jae Park from Memorial Sloan Kettering Cancer Center.

Register here:
hairycellleukemia.org/calendar/2025/…
Hairy Cell Leukemia Foundation (@hclfoundation) 's Twitter Profile Photo

Let's chat! Join our online HCL Variant (HCLv) Community Roundtable on Wednesday, April 9th. It's a welcoming space on Zoom to connect with other HCLv patients and families, share stories and ask questions. Come join us! You can register below: hairycellleukemia.org/calendar/2025/…

Let's chat! Join our online HCL Variant (HCLv) Community Roundtable on Wednesday, April 9th.

It's a welcoming space on Zoom to connect with other HCLv patients and families, share stories and ask questions. 

Come join us! You can register below:
hairycellleukemia.org/calendar/2025/…
Hairy Cell Leukemia Foundation (@hclfoundation) 's Twitter Profile Photo

🟢 TOMORROW Final chance to register for the HCL Clinical Trials Webinar with Dr. Jae Park from Memorial Sloan Kettering on April 2 at 1:00 PM ET. Register here: hairycellleukemia.org/calendar/2025/…

🟢 TOMORROW

Final chance to register for the HCL Clinical Trials Webinar with Dr. Jae Park from Memorial Sloan Kettering on April 2 at 1:00 PM ET.

Register here:  
hairycellleukemia.org/calendar/2025/…
Hairy Cell Leukemia Foundation (@hclfoundation) 's Twitter Profile Photo

🟢 NEXT WEEK Join us on April 9th for our next HCL Variant Roundtable, where you can connect on Zoom with others impacted by HCLv. Don't miss out! Register below: hairycellleukemia.org/calendar/2025/…

🟢 NEXT WEEK

Join us on April 9th for our next HCL Variant Roundtable, where you can connect on Zoom with others impacted by HCLv.

Don't miss out! Register below:
hairycellleukemia.org/calendar/2025/…
Hairy Cell Leukemia Foundation (@hclfoundation) 's Twitter Profile Photo

Did you know? While there is no definitive cure for Hairy Cell Leukemia, with the proper treatment, HCL usually does not affect overall life expectancy. You can view more highlights from our March 2025 webinar here: hairycellleukemia.org/march-2025-web…

Did you know? While there is no definitive cure for Hairy Cell Leukemia, with the proper treatment, HCL usually does not affect overall life expectancy.

You can view more highlights from our March 2025 webinar here:
 hairycellleukemia.org/march-2025-web…
Hairy Cell Leukemia Foundation (@hclfoundation) 's Twitter Profile Photo

🟢 TOMORROW We invite you to our HCL Variant Roundtable Meeting tomorrow, April 9th! This gathering on Zoom is a chance for people with HCL Variant patients and their family members to connect. Secure your spot—register below! hairycellleukemia.org/calendar/2025/…

🟢 TOMORROW  

We invite you to our HCL Variant Roundtable Meeting tomorrow, April 9th! This gathering on Zoom is a chance for people with HCL Variant patients and their family members to connect.

Secure your spot—register below!
hairycellleukemia.org/calendar/2025/…
Hairy Cell Leukemia Foundation (@hclfoundation) 's Twitter Profile Photo

An accurate diagnosis of HCL is necessary for informed decision-making, including treatment strategies. In HCL, diagnosis typically involves a bone marrow biopsy. Materials from our March 5th webinar are available online: :hairycellleukemia.org/march-2025-web…

An accurate diagnosis of HCL is necessary for informed decision-making, including treatment strategies. In HCL, diagnosis typically involves a bone marrow biopsy.

Materials from our March 5th webinar are available online:
:hairycellleukemia.org/march-2025-web…
Hairy Cell Leukemia Foundation (@hclfoundation) 's Twitter Profile Photo

🟢 Applications are still open! The EveryLife Foundation for Rare Diseases will award one-time $5,000 academic scholarships to 104 individuals living with a rare disease. Apply before April 28! Learn more through the link below: everylifefoundation.org/rare-scholarsh… #RareDisease

🟢 Applications are still open! 

The EveryLife Foundation for Rare Diseases will award one-time $5,000 academic scholarships to 104 individuals living with a rare disease. 

Apply before April 28! Learn more through the link below:
everylifefoundation.org/rare-scholarsh…

#RareDisease
Hairy Cell Leukemia Foundation (@hclfoundation) 's Twitter Profile Photo

Le invitamos a participar en nuestro primer seminario web educativo en español el 21 de mayo, de 2:00 a 3:00 pm hora del Este. Inscribirse / Register: hairycellleukemia.org/calendar/2025/…

Le invitamos a participar en nuestro primer seminario web educativo en español el 21 de mayo, de 2:00 a 3:00 pm hora del Este.

Inscribirse / Register:
hairycellleukemia.org/calendar/2025/…
Hairy Cell Leukemia Foundation (@hclfoundation) 's Twitter Profile Photo

🟢 We'd love for you to join us on May 14th from 4-5 pm Eastern for a Zoom-based Community Roundtable! Community roundtables offer peer-to-peer support to people with HCL and their families. Don’t miss out! hairycellleukemia.org/calendar/2025/…

🟢 We'd love for you to join us on May 14th from 4-5 pm Eastern for a Zoom-based Community Roundtable! 

Community roundtables offer peer-to-peer support to people with HCL and their families. 

Don’t miss out! hairycellleukemia.org/calendar/2025/…
Hairy Cell Leukemia Foundation (@hclfoundation) 's Twitter Profile Photo

When talking about how to treat hairy cell leukemia, you and your doctor will think about many important things. For more information, check out our recent webinar called 'Understanding Hairy Cell Leukemia' with HCL expert Dr. Kerry Rogers: hairycellleukemia.org/march-2025-web…

When talking about how to treat hairy cell leukemia, you and your doctor will think about many important things.

For more information, check out our recent webinar called 'Understanding Hairy Cell Leukemia' with HCL expert Dr. Kerry Rogers: hairycellleukemia.org/march-2025-web…