Harry's HAT Charity (@harryshat5) 's Twitter Profile
Harry's HAT Charity

@harryshat5

Supporting UK families affected by paediatric #hydrocephalus. We raise awareness, fund research/education and provide sign-posting for families.

ID: 1074648824977739778

linkhttps://www.harrys-hat.org calendar_today17-12-2018 12:53:40

1,1K Tweet

850 Followers

2,2K Following

Harry's HAT Charity (@harryshat5) 's Twitter Profile Photo

Really looking forward to welcoming Healthy Mind UK 🧠 to our Charity Open Garden Party Lambeth Palace. There is still time to buy tickets to this prestigious event which is raising funds for children affected by #hydrocephalus. bit.ly/AugLambethPala…

Harry's HAT Charity (@harryshat5) 's Twitter Profile Photo

This is why #GetAHead is so important. If we can discover conditions such as #hydrocephalus which affects 1 in 770 babies early then the outcomes are better Danny Chambers MP 🔸🩺 please get in touch so we can talk to you more about #GetAHead and our petition. change.org/measurebabyhea…

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Lambeth palace looks spectacular in the sunshine. There's still time to book your tickets to join us on Friday. eventbrite.co.uk/e/harrys-hat-l…

Lambeth palace looks spectacular in the sunshine.  There's still time to book your tickets to join us on Friday.  eventbrite.co.uk/e/harrys-hat-l…
Harry's HAT Charity (@harryshat5) 's Twitter Profile Photo

Please support Paediatric Neurosurgeon Deborah's, 15km Tough Mudder Challenge for Harry's HAT. 🧡💙 gofundme.com/f/tough-mudder…

Please support Paediatric Neurosurgeon Deborah's, 15km Tough Mudder Challenge for Harry's HAT.     🧡💙
gofundme.com/f/tough-mudder…
Ifeanyi okike (@worldzico) 's Twitter Profile Photo

4/8/24 will remain a memorable day 4 me as had d privilege 2 play in sellebrity soccer 2 support ⁦Harry's HAT Charity⁩. Most humbling experience capped with d man of d match award. Dedicate it 2 all d children whose hydrocephalus was detected late. 2 new future where we measure OFC

4/8/24 will remain a memorable day 4 me as had d privilege 2 play in sellebrity soccer 2 support ⁦<a href="/HarrysHAT5/">Harry's HAT Charity</a>⁩. Most humbling experience capped with d man of d match award. Dedicate it 2 all d children whose hydrocephalus was detected late. 2 new future where we measure OFC
Harry's HAT Charity (@harryshat5) 's Twitter Profile Photo

Celebrities playing Yateley United FC including Calum Best Official & Daniel Osborne held our 30m giant tape measure to raise awareness of infant head circumference measurement as a tool for identifying babies showing signs of #hydrocephalus change.org/measurebabyhea… SellebritySoccer Basingstoke Gazette

Celebrities playing <a href="/YateleyUtdFC/">Yateley United FC</a> including <a href="/CalumBest/">Calum Best Official</a> &amp; <a href="/DannyO/">Daniel Osborne</a> held our 30m giant tape measure to raise awareness of infant head circumference measurement as a tool for identifying babies showing signs of #hydrocephalus
change.org/measurebabyhea… 
 <a href="/Sellebrity_UK/">SellebritySoccer</a>  <a href="/BasGazette/">Basingstoke Gazette</a>
Harry's HAT Charity (@harryshat5) 's Twitter Profile Photo

Our abstract on the #GetAHead campaign has been published in the BMJ Archives of Disease in Childhood! "Early detection of infantile hydrocephalus: time to ‘Get-A-Head’ Thanks to RCPCH for letting us share this important work!  Read more here: adc.bmj.com/content/109/Su…

Our abstract on the #GetAHead campaign has been published in the BMJ Archives of Disease in Childhood! "Early detection of infantile hydrocephalus: time to ‘Get-A-Head’
Thanks to <a href="/RCPCHtweets/">RCPCH</a> for letting us share this important work!  Read more here: adc.bmj.com/content/109/Su…
Harry's HAT Charity (@harryshat5) 's Twitter Profile Photo

We are delighted that ITV news has shared our open letter signed by paediatric neurosurgeons calling on Wes Streeting MP to commission a review of infant head circumference measurement in the UK. #GetAHead Sign the public petition: change.org/measurebabyhea…

That's TV Hampshire (@thatshampshire) 's Twitter Profile Photo

A Department of Health and Social Care spokesperson said: “This government is committed to ensuring all babies and their parents receive the care they need. “The UK takes a risk-based approach to screening for Hydrocephalus in babies, according to agreed clinical guidelines.”

Harry's HAT Charity (@harryshat5) 's Twitter Profile Photo

Speaking about #GetAHead and why it's so important that the government reviews the current UK guidelines to prevent fewer babies with #hydrocephalus from slipping through the net.

Harry's HAT Charity (@harryshat5) 's Twitter Profile Photo

Harry's HAT hoodies are ready for autumn and can be purchased for £25 plus postage. If you'd like one please email [email protected] and we'll add your name to the order list 💙🧡

Harry's HAT hoodies are ready for autumn and can be purchased for £25 plus postage. If you'd like one please email info@harrys-hat.org and we'll add your name to the order list 💙🧡
Harry's HAT Charity (@harryshat5) 's Twitter Profile Photo

🙏Share. Our last 2 places in the #RoyalParksHalfMarathon on 13th October. All runners must be signed up by 2nd September so please email asap if you'd like to run to help children affected by hydrocephalus [email protected] #halfmarathon #royalparksHM

🙏Share.
Our last 2 places in the #RoyalParksHalfMarathon on 13th October. All runners must be signed up by 2nd September so please email asap if you'd like to run to help children affected by hydrocephalus info@harrys-hat.org 
#halfmarathon #royalparksHM
Victoria (@victoriaaglover) 's Twitter Profile Photo

This is such a remarkable story and I’m so grateful to Jay for sharing his story with me. It’s vitally important that people know brain conditions can be detected by eye exams - but what are the chances of this happening to a brain surgeon’s daughter??! hellorayo.co.uk/greatest-hits/…

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Paediatric Neurosurgeon @jayjayamohan shares his personal reason for backing our Eye Test campaign. bbc.co.uk/news/articles/… Read more about the campaign here: harrys-hat.org/eye-tests/

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There is still time to complete our survey which aims to capture the lived-experience views of families of children with #hydrocephalus who have been through the #EHCP process. bit.ly/HydroEHCP

There is still time to complete our survey which aims to capture the lived-experience views of families of children with #hydrocephalus who have been through the #EHCP process. bit.ly/HydroEHCP