There is a global supply shortage of NovoSeven, used primarily in the treatment of haemophilia with inhibitors. We have sent relevant members a letter with more information. You can also find out more at our website here: haemophilia.ie/supply-shortag…

Biomarin has announced that it will limit the supply of their FVIII Gene Therapy, Roctavian to the 3 countries where it is currently reimbursed-US, Germany and Italy. They will discontinue further manufacture at present as these countries can be supplied from current stock

👀 Series of 6 online webinars being hosted by IrishHaemophiliaSoc from September to November. Booking details below 👇🏼👇🏼

Applications for our educational grants are open until October 25th! We have 4 grants for post-secondary education at level 5-9, open to people with bleeding disorders & their immediate family. To find out more about the grants & to apply, click here: haemophilia.ie/services-and-s…

Productive discussions today IrishHaemophiliaSoc and pleased to welcome and host Haemophilia Society CEO Kate Burt and incoming Chairperson designate Conan McLiwarth

Excellent day with [email protected] picking the brains of Brian O Mahony at IrishHaemophiliaSoc headquarters in Dublin. The Irish hospitality is second to none. We at Haemophilia Society are looking forward to much more collaboration in the future. #bleedingdisorders

Don't forget to register for free to attend our Mild Haemophilia Information Day on Saturday 14th September in the Grand Hotel, Malahide. Call Lena in the office on 01 657 9900 to do so! In the meantime, take a look at the programme for the day:

Members, our physio class is restarting in September! 💪 The exact day will be shared soon. If you are interested in attending the class, call Lena in the office on 01 657 9900. haemophilia.ie/living-with-bl…

From the comprehensive care centres: Some users of the Mpro5HX app are receiving an error state when they try to log in. They are advised to keep using the medication & to keep empty boxes to scan once the issue has been fixed. Read the full message: ow.ly/6cwh50T6x92

Our Mild Haemophilia Information Day is quickly approaching, taking place in the Grand Hotel in Malahide on 14th September. Dr. Beatrice Nolan and Dr. Saad Ahmed will be giving the talks and participating in an open forum where the audience can ask any questions they have.

During our long and productive WFH Twinning programme with the Vietnam Haemophilia Association, I deleloped a taste for Pho. Sharing that enthusiasm with the IrishHaemophiliaSoc Staff team who all enjoyed their Pho dishes

The first of our medical webinars is taking place next Wednesday 4th September. The first talk is an 'Update on Haemophilia A and B' given by Prof. Niamh O'Connell. The series is aimed at clinicians, but IHS members are welcome to attend. Register here: ow.ly/qpeU50T8Ny2

Our physio-exercise classes have been on a break for the summer but are starting back Tuesday the 10th September. Don't hesitate to register for the classes! They are a great way of getting fit from the comfort of your own home. 💪

Attention students!🧑‍🎓 We hope everyone was happy with their Leaving Cert results and got the course they were hoping for. Don't forget to apply to one of our educational grants, which provide a great way of alleviating the financial burden of college. ow.ly/uxF350Te82Y

📢 The first of our clinical webinars is taking place tonight! We are honored to have Professor Niamh O'Connell from St. James's Hospital as our keynote speaker, discussing updates in haemophilia A and B. You can still register to attend here: ow.ly/sEC050Te78P

The first in a series of 6 clinical webinars organised by IrishHaemophiliaSoc has just started. Niamh O'Connell giving an update on Haemophilia A and B WFH EHC_Haemophilia EAHAD Michael Makris . All those registered will recieve a summary E-Zine by e mail on friday

Progress in treatment now means that with access to optimal treatment, severe haemophilia is now moderate or mild with access to higher troughs. Niamh O'Connell IrishHaemophiliaSoc clinical webinar

Outcome measures in haemophilia are more challenging than expected, often due to survey fatigue Niamh O'Connell IrishHaemophiliaSoc Clinical Webinar

Members, don't forget about our upcoming mild haemophilia information day, taking place very soon on 14th September. ⏰ It's open to both members and non-members. Best of all, it's completely free of charge! Secure your spot by calling the office on 01 657 9900.

The IHS offer an apartment facility to members coming from outside Dublin who are attending an appointment at St. James's or CHI Crumlin. The apartments are located close to both hospitals. To book into the apartment, please call the office on 01 657 9900. haemophilia.ie/services-and-s…