Hi @damekellyholmes Please could you share this link to raise awareness for ex soldier Darren Hardy who is pulling a car 50km in 48 hours to support H-abc Foundation UK in the race to find a cure for the kids affected by this terrible disease. Thanks justgiving.com/fundraising/da…

Hi @gregjrutherford Please could you share this link to raise awareness for ex soldier Darren Hardy who is pulling a car 50km in 48 hours to support H-abc Foundation UK in the race to find a cure for the kids affected by this terrible disease. Thanks justgiving.com/fundraising/da…

And he's done it! 👏 Darren Hardy from #Fleet has completed his challenge to pull a one and a half tonne car more than 30 miles for the charity H-abc Foundation UK. He's also broken two world records for the longest car pull in 24 hours, and for the longest car pull ever (53km).

Great news for the H-abc Leukodystrophy community today! one of our H-abc parents, Michelle Teng, has co-founded a Biotech to help fund and push forward ASO gene therapy towards the clinic for Tubb4a Leukodystophy businessinnovationmag.co.uk/oxford-biotech…

Great news for the rare disease community! statnews.com/2021/10/27/par…?

Hi Bob Wilson Please could you share this link to raise awareness for ex soldier Darren Hardy who is doing a 10 marathons in 100 hours to support H-abc Foundation UK in the race to find a cure for the kids affected by this terrible disease. Thanks justgiving.com/fundraising/da…

Hi Keith Lemon Please could you share this link to raise awareness for ex soldier Darren Hardy who is doing a 10 marathons in 100 hours to support H-abc Foundation UK in the race to find a cure for the kids affected by this terrible disease. Thanks justgiving.com/fundraising/da…

Darren is yet again raising much needed funds and awareness for H-abc. Thank you Darren 🤩

Hi Dermot O'Leary Please could you share this link for ex soldier Darren Hardy who is doing a 10 marathons in 100 hours to support H-abc Foundation UK in the race to find a cure for the kids affected by this disease. Finish is on Sunday in Hyde Park 🏃‍♂️ justgiving.com/fundraising/da…

Hi Alison Hammond Please could you share this link for ex soldier Darren Hardy who is doing a 10 marathons in 100 hours to support H-abc Foundation UK in the race to find a cure for the kids affected by this disease. Finish is on Sunday in Hyde Park justgiving.com/fundraising/da…

Hi This Morning Ex soldier Darren Hardy is doing 10 marathons in 100 hours to support H-abc Foundation UK in the race to find a cure for the kids affected by this disease. He would love to come on the show to talk about the challenge! 🏃‍♂️justgiving.com/fundraising/da…

Hi Good Morning Britain Ex soldier Darren Hardy is doing 10 marathons in 100 hours to support H-abc Foundation UK in the race to find a cure for the kids affected by this disease. He would love to come on the show to talk about the challenge! 🏃‍♂️ justgiving.com/fundraising/da…

Hi BBC Breakfast Ex soldier Darren Hardy is doing 10 marathons in 100 hours to support H-abc Foundation UK in the race to find a cure for the kids affected by this disease. He would love to come on the show to talk about the challenge! 🏃‍♂️ justgiving.com/fundraising/da…

Another amazing challenge from Darren, what an incredible man! 🏃👏🏻🏃 itv.com/news/meridian/…

I met a little boy called Frankie yesterday. He loves wrestling, video games Arsenal - especially Bukayo Saka He also has leukodystrophy - a rare, genetic disease with no cure. Frankie’s mum has been to the States in search of help. This is their story:

One of our H-ABC families on the itv London news last night! Thank you Daniel Henry for sharing our story

Scientist 'finally in the driving seat' in race to find cure for daughter's rare disease TUBB4a leukodystrophy | Science & Tech News | Sky News news.sky.com/story/scientis…

Sky news interview with one of our Founders Dr Michelle Teng

An article about one of our H-ABC families, misdiagnosis is a very common story for our community! metro.co.uk/2023/01/08/we-…

Big thank you to Jorginho Frello for this video for Frankie, who has H-abc. He was very excited when he saw it! Good luck for the rest of the season! #habc #afc