H-abc Foundation UK (@habc_uk) 's Twitter Profile
H-abc Foundation UK

@habc_uk

Our mission is to improve lives of children affected by h-abc (hypomyelination with atrophy of the basal ganglion and cerebellum) through personalised therapy

ID: 2322715397

linkhttp://www.h-abcfoundation.org calendar_today03-02-2014 21:59:38

3,3K Tweet

799 Followers

4,4K Following

Miki Haines-Sanger (@miki_hs) 's Twitter Profile Photo

Great piece on Sky News, where Darren Hardy talks about why he's setting off first thing tomorrow to run 5 marathons in 50-hours! 👟🏃‍♂️ H-abc Foundation UK #leukodystrophy #raredisease #fundraiser #charity

Miki Haines-Sanger (@miki_hs) 's Twitter Profile Photo

Track Darren Hardy on his incredible 5 marathons in 50 hours challenge for H-abc Foundation UK here! He’s just set off! Go Darren! 🏃‍♂️👟⏱⌛️#fundraising #extremeendurance #marathon #habc 🙌 URL to donate in this photo! events.geotracks.co.uk/live/657

Track <a href="/darrenhardy2880/">Darren Hardy</a> on his incredible 5 marathons in 50 hours challenge for <a href="/habc_uk/">H-abc Foundation UK</a> here! He’s just set off! Go Darren! 🏃‍♂️👟⏱⌛️#fundraising #extremeendurance #marathon #habc 🙌 URL to donate in this photo! events.geotracks.co.uk/live/657
Healthy Beast (@richmholt) 's Twitter Profile Photo

Incredible challenge 💯for ⁦H-abc Foundation UK⁩ - 130+ miles in 50hrs, good luck ⁦Darren Hardy⁩ #habc #challenge #5in50 #healthforall podcasts.apple.com/gb/podcast/hea…

Ben Fogle (@benfogle) 's Twitter Profile Photo

Good luck Darren Hardy on your 5 marathons in 50 hours for H-abc Foundation UK. Link to donate justgiving.com/fundraising/da… You can follow his journey live: events.geotracks.co.uk/live/657 #habc #raredisease #fundraiser #extremeendurance

Good luck <a href="/darrenhardy2880/">Darren Hardy</a> on your 5 marathons in 50 hours for <a href="/habc_uk/">H-abc Foundation UK</a>. Link to donate justgiving.com/fundraising/da…  
You can follow his journey live: events.geotracks.co.uk/live/657

#habc #raredisease #fundraiser #extremeendurance
H-abc Foundation UK (@habc_uk) 's Twitter Profile Photo

Run Darren Run! Together, we'll beat this disease. All our donations goes towards research Children's Hospital Sunetra Sase akshata almad Link to donate justgiving.com/fundraising/da…… Follow his journey live: events.geotracks.co.uk/live/657 #habc #raredisease #tubb4a #leukodystrophy

Miki Haines-Sanger (@miki_hs) 's Twitter Profile Photo

Darren is now half way through his 5 marathons in 50 hours to save 12 year-old Aggie! Read his words here, with a link to donate ⭐️❤️⭐️ H-abc Foundation UK H-abc Foundation UK fundraising #raredisease #extremeendurance #fundraising #leukodystrophy metro.co.uk/2021/04/09/dad… via Metro

H-abc Foundation UK fundraising (@habcfundraising) 's Twitter Profile Photo

Hi @redknapp Please could you share this link for Darren Hardy who is running 5 marathons in 50 hours to support H-abc Foundation UK in the race to find a cure for the kids affected by this terrible disease, finishing in Sandbanks 10am tomorrow. Thanks justgiving.com/fundraising/da…

Miki Haines-Sanger (@miki_hs) 's Twitter Profile Photo

.Josie Griffiths this story you wrote thesun.co.uk/fabulous/12370… inspired Darren Hardy to run 5 marathons in 50 hours this week for Aggie, raising £20k so far with donations still rolling in. Publicity like this can lead to incredible acts of kindness, saving lives 🙌 H-abc Foundation UK

.<a href="/josiegriffiths/">Josie Griffiths</a> this story you wrote thesun.co.uk/fabulous/12370… inspired <a href="/darrenhardy2880/">Darren Hardy</a> to run 5 marathons in 50 hours this week for Aggie, raising £20k so far with donations still rolling in. Publicity like this can lead to incredible acts of kindness, saving lives 🙌 <a href="/habc_uk/">H-abc Foundation UK</a>
Dan Blank (@danblank5) 's Twitter Profile Photo

Darren Hardy from Fleet ran an extraordinary five marathons back-to-back to raise money for H-abc Foundation UK. Story here on InYourArea.co.uk inyourarea.co.uk/news/fleet-man…

World Duchenne Organization (@worldduchenne) 's Twitter Profile Photo

Today marks the First International Neonatal Screening Day 👣 Early diagnosis is important for everybody with medical problems. For people living with a #RareDisease, newborn screening is often the only option to avoid damaging diagnostic delays. worldduchenne.org/news/first-int…

Today marks the First International Neonatal Screening Day 👣
Early diagnosis is important for everybody with medical problems. For people living with a #RareDisease, newborn screening is often the only option to avoid damaging diagnostic delays. 
worldduchenne.org/news/first-int…
H-abc Foundation UK (@habc_uk) 's Twitter Profile Photo

September is Leukodystrophy month! Did you know that the frequency of leukodystrophy disease is 1 in 7000 live births? That’s 20,000 babies each year! Support our cause to find viable life saving cures h-abcfoundation.org 👇

Sol Roots (@solroots) 's Twitter Profile Photo

Today SolRoots band @ private outdoor event in Rockville Maryland. HappyBirthday! Also to raise awareness for H-ABC, a rare genetic disorder that progressively damages the nervous system. H-ABC has no known cure, & affects mainly children. Learn more & donate: h-abc.org

Today SolRoots band @ private outdoor event in <a href="/Rockville_MD/">Rockville Maryland</a>.
HappyBirthday!

Also to raise awareness for H-ABC, a rare genetic disorder that progressively damages the nervous system. H-ABC has no known cure, &amp; affects mainly children.
Learn more &amp; donate: h-abc.org
ITV News Meridian (@itvmeridian) 's Twitter Profile Photo

And he's done it! 👏 Darren Hardy from #Fleet has completed his challenge to pull a one and a half tonne car more than 30 miles for the charity H-abc Foundation UK. He's also broken two world records for the longest car pull in 24 hours, and for the longest car pull ever (53km).

H-abc Foundation UK fundraising (@habcfundraising) 's Twitter Profile Photo

Great news for the H-abc Leukodystrophy community today! one of our H-abc parents, Michelle Teng, has co-founded a Biotech to help fund and push forward ASO gene therapy towards the clinic for Tubb4a Leukodystophy businessinnovationmag.co.uk/oxford-biotech…

H-abc Foundation UK fundraising (@habcfundraising) 's Twitter Profile Photo

Hi This Morning Ex soldier Darren Hardy is doing 10 marathons in 100 hours to support H-abc Foundation UK in the race to find a cure for the kids affected by this disease. He would love to come on the show to talk about the challenge! 🏃‍♂️justgiving.com/fundraising/da…

Anna Geary (@annagearytv) 's Twitter Profile Photo

Coming up ITV London Former soldier Darren Hardy reached Hyde Park this afternoon having run 300km in 100 hours. He did it to raise money for Aggie Candy-Waters & others incl Frankie (on the right) who live with H-ABC H-abc Foundation UK

Coming up <a href="/itvlondon/">ITV London</a>  

Former soldier <a href="/darrenhardy2880/">Darren Hardy</a> reached Hyde Park this afternoon having run 300km in 100 hours.
He did it to raise money for Aggie Candy-Waters &amp; others incl Frankie (on the right) who live with H-ABC <a href="/habc_uk/">H-abc Foundation UK</a>