GLOW: Global nLPHL One Working Group (@glow_nlphl) 's Twitter Profile
GLOW: Global nLPHL One Working Group

@glow_nlphl

GLOW is the Global nLPHL One Working Group, committed to improving outcomes for patients with nodular lymphocyte-predominant Hodgkin lymphoma. #NLPHLsm #lymsm

ID: 1385705120952848384

linkhttp://glowconsortium.org calendar_today23-04-2021 21:22:48

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123 Following

GLOW: Global nLPHL One Working Group (@glow_nlphl) 's Twitter Profile Photo

The LP-IPS prognostic score for NLPHL, developed through the GLOW: Global nLPHL One Working Group consortium, was just cited in a new review published by Drs. Eichenauer & Borchmann. #lymsm #NLPHLsm tandfonline.com/doi/full/10.10…

The LP-IPS prognostic score for NLPHL, developed through the <a href="/glow_nlphl/">GLOW: Global nLPHL One Working Group</a> consortium, was just cited in a new review published by Drs. Eichenauer &amp; Borchmann. #lymsm #NLPHLsm
tandfonline.com/doi/full/10.10…
GLOW: Global nLPHL One Working Group (@glow_nlphl) 's Twitter Profile Photo

Announcing our latest GLOW: Global nLPHL One Working Group study, a qualitative analysis of patient & care partner perspectives on treatment decision-making in NLPHL. This study enables investigators to better align NLPHL research with patient priorities. #lymsm #nlphlsm tandfonline.com/doi/full/10.10…

Announcing our latest <a href="/glow_nlphl/">GLOW: Global nLPHL One Working Group</a> study, a qualitative analysis of patient &amp; care partner perspectives on treatment decision-making in NLPHL. This study enables investigators to better align NLPHL research with patient priorities. #lymsm #nlphlsm tandfonline.com/doi/full/10.10…
Ajay Major, MD, MBA (@majorajay) 's Twitter Profile Photo

"A diagnosis of NLPHL is often a long, confusing, and isolating journey." Our GLOW: Global nLPHL One Working Group study of patient & care partner perspectives on NLPHL, and how we can better counsel on management options. Many thanks to our collaborating patient advocates. #lymsm tandfonline.com/doi/full/10.10…

"A diagnosis of NLPHL is often a long, confusing, and isolating journey."
Our <a href="/glow_nlphl/">GLOW: Global nLPHL One Working Group</a> study of patient &amp; care partner perspectives on NLPHL, and how we can better counsel on management options.
Many thanks to our collaborating patient advocates. #lymsm tandfonline.com/doi/full/10.10…
GLOW: Global nLPHL One Working Group (@glow_nlphl) 's Twitter Profile Photo

Our GLOW: Global nLPHL One Working Group research roadmap for NLPHL is now published. In this manuscript, we review the historical research challenges in NLPHL research and progress to date of our international GLOW Consortium (glowconsortium.org). #lymsm #nlphlsm onlinelibrary.wiley.com/doi/epdf/10.10…

Our <a href="/glow_nlphl/">GLOW: Global nLPHL One Working Group</a> research roadmap for NLPHL is now published. In this manuscript, we review the historical research challenges in NLPHL research and progress to date of our international GLOW Consortium (glowconsortium.org). #lymsm #nlphlsm onlinelibrary.wiley.com/doi/epdf/10.10…
Ajay Major, MD, MBA (@majorajay) 's Twitter Profile Photo

To my lymphoma colleagues: we are performing a study of patient experiences with bispecific antibodies for relapsed/refractory DLBCL or FL. Please share this flyer with your patient groups and networks. Thank you! #lymsm

To my lymphoma colleagues: we are performing a study of patient experiences with bispecific antibodies for relapsed/refractory DLBCL or FL. Please share this flyer with your patient groups and networks. Thank you! #lymsm
Ajay Major, MD, MBA (@majorajay) 's Twitter Profile Photo

We are seeking patients with relapsed or refractory FL or DLBCL for a compensated study about experiences with bispecific antibody therapies. To my #lymsm & #onctwitter colleagues: please share the attached flyer with your networks. Thank you! #tcellrx

We are seeking patients with relapsed or refractory FL or DLBCL for a compensated study about experiences with bispecific antibody therapies. To my #lymsm &amp; #onctwitter colleagues: please share the attached flyer with your networks. Thank you! #tcellrx
Ajay Major, MD, MBA (@majorajay) 's Twitter Profile Photo

Transformation not uncommon in NLPHL, more common with Pattern E (I always ask hematopathology to identify pattern) and splenic involvement. #18ICML #lymsm #NLPHLsm

Transformation not uncommon in NLPHL, more common with Pattern E (I always ask hematopathology to identify pattern) and splenic involvement. #18ICML #lymsm #NLPHLsm
Ajay Major, MD, MBA (@majorajay) 's Twitter Profile Photo

You can observe advanced-stage NLPHL just like other indolent lymphomas. No compromised PFS2 for patients who are initially observed. And only 1/3 of patients needed treatment. #18ICML #lymsm GLOW: Global nLPHL One Working Group

You can observe advanced-stage NLPHL just like other indolent lymphomas. No compromised PFS2 for patients who are initially observed. And only 1/3 of patients needed treatment. #18ICML #lymsm <a href="/glow_nlphl/">GLOW: Global nLPHL One Working Group</a>
Ajay Major, MD, MBA (@majorajay) 's Twitter Profile Photo

Outcomes Stage IA NLPHL GLOW: Global nLPHL One Working Group: superior PFS (not OS) for RT after complete resection (vs observation). For unresected patients, best PFS with RT & RT+ABVD, no diff OS. No diff in transformation events. More numerical SPMs after RT. #lymsm #18ICML

Outcomes Stage IA NLPHL <a href="/glow_nlphl/">GLOW: Global nLPHL One Working Group</a>: superior PFS (not OS) for RT after complete resection (vs observation). For unresected patients, best PFS with RT &amp; RT+ABVD, no diff OS. No diff in transformation events. More numerical SPMs after RT. #lymsm #18ICML
Ajay Major, MD, MBA (@majorajay) 's Twitter Profile Photo

Proud to work with this incredible group of investigators and patients GLOW: Global nLPHL One Working Group on studying patient-reported outcomes and the patient experience in this rare disease. #18ICML #lymsm

Proud to work with this incredible group of investigators and patients <a href="/glow_nlphl/">GLOW: Global nLPHL One Working Group</a> on studying patient-reported outcomes and the patient experience in this rare disease. #18ICML #lymsm
GLOW: Global nLPHL One Working Group (@glow_nlphl) 's Twitter Profile Photo

Congratulations to Dr. Juliana Costa on presenting GLOW: Global nLPHL One Working Group at Congreso ACHOP in Colombia and how to establish NLPHL registries in Latin America. Additional thanks to Drs. Ana Rosa Braz Costa and Adriana Morais for their leadership on this work. #lymsm #NLPHLsm

Congratulations to Dr. Juliana Costa on presenting <a href="/glow_nlphl/">GLOW: Global nLPHL One Working Group</a> at Congreso <a href="/ACHOP_COL/">ACHOP</a> in Colombia and how to establish NLPHL registries in Latin America. Additional thanks to Drs. Ana Rosa Braz Costa and Adriana Morais for their leadership on this work. #lymsm #NLPHLsm
GLOW: Global nLPHL One Working Group (@glow_nlphl) 's Twitter Profile Photo

Our GLOW: Global nLPHL One Working Group lead Dr. Jamie Flerlage spoke about the GLOW multicenter study of radiation therapy outcomes for Stage IA NLPHL which she presented at #18ICML for VJHemOnc. #lymsm #NLPHLsm vjhemonc.com/video/amtyhj8p…