GLOW: Global nLPHL One Working Group
@glow_nlphl
GLOW is the Global nLPHL One Working Group, committed to improving outcomes for patients with nodular lymphocyte-predominant Hodgkin lymphoma. #NLPHLsm #lymsm
ID: 1385705120952848384
http://glowconsortium.org 23-04-2021 21:22:48
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The LP-IPS prognostic score for NLPHL, developed through the GLOW: Global nLPHL One Working Group consortium, was just cited in a new review published by Drs. Eichenauer & Borchmann. #lymsm #NLPHLsm tandfonline.com/doi/full/10.10…
Announcing our latest GLOW: Global nLPHL One Working Group study, a qualitative analysis of patient & care partner perspectives on treatment decision-making in NLPHL. This study enables investigators to better align NLPHL research with patient priorities. #lymsm #nlphlsm tandfonline.com/doi/full/10.10…
"A diagnosis of NLPHL is often a long, confusing, and isolating journey." Our GLOW: Global nLPHL One Working Group study of patient & care partner perspectives on NLPHL, and how we can better counsel on management options. Many thanks to our collaborating patient advocates. #lymsm tandfonline.com/doi/full/10.10…
Our GLOW: Global nLPHL One Working Group research roadmap for NLPHL is now published. In this manuscript, we review the historical research challenges in NLPHL research and progress to date of our international GLOW Consortium (glowconsortium.org). #lymsm #nlphlsm onlinelibrary.wiley.com/doi/epdf/10.10…
Read the editorial written about our GLOW: Global nLPHL One Working Group research roadmap manuscript in Pediatric Blood & Cancer: onlinelibrary.wiley.com/doi/10.1002/pb… #lymsm #nlphlsm
NLPHL session at #18ICML. Fascinating work about association of NLPHL with bacterial infections in patients with certain HLA types. #lymsm #NLPHLsm cc GLOW: Global nLPHL One Working Group
Congratulations to all our GLOW: Global nLPHL One Working Group contributing centers on establishing the first prognostic index specifically for NLPHL. #lymsm #18ICML
You can observe advanced-stage NLPHL just like other indolent lymphomas. No compromised PFS2 for patients who are initially observed. And only 1/3 of patients needed treatment. #18ICML #lymsm GLOW: Global nLPHL One Working Group
Congratulations to Dr. Jamie Flerlage on her oral presentation at #18ICML on our GLOW: Global nLPHL One Working Group analysis of radiotherapy in Stage IA NLPHL. #lymsm
Resection + RT improves PFS vs observation alone (90% vs 65%) for NLPHL presented by Jamie Flerlage #ICML18 GLOW: Global nLPHL One Working Group
Outcomes Stage IA NLPHL GLOW: Global nLPHL One Working Group: superior PFS (not OS) for RT after complete resection (vs observation). For unresected patients, best PFS with RT & RT+ABVD, no diff OS. No diff in transformation events. More numerical SPMs after RT. #lymsm #18ICML
Proud to work with this incredible group of investigators and patients GLOW: Global nLPHL One Working Group on studying patient-reported outcomes and the patient experience in this rare disease. #18ICML #lymsm
Congratulations to Dr. Juliana Costa on presenting GLOW: Global nLPHL One Working Group at Congreso ACHOP in Colombia and how to establish NLPHL registries in Latin America. Additional thanks to Drs. Ana Rosa Braz Costa and Adriana Morais for their leadership on this work. #lymsm #NLPHLsm
Our GLOW: Global nLPHL One Working Group lead Dr. Jamie Flerlage spoke about the GLOW multicenter study of radiation therapy outcomes for Stage IA NLPHL which she presented at #18ICML for VJHemOnc. #lymsm #NLPHLsm vjhemonc.com/video/amtyhj8p…
Thrilled our study exploring cell state ecosystems for NLPHL has been published. This represents a multi-year effort and the best collaborators in the world. Thread to follow. rdcu.be/eIkpc GLOW: Global nLPHL One Working Group Jamie Flerlage Ash Alizadeh, MD/PhD 🇺🇸 Everett Moding, MD, PhD Vít Procházka 🇨🇿🇪🇺🇺🇦