DadsFTD (@ftdstories) 's Twitter Profile
DadsFTD

@ftdstories

Our dad has frontotemporal dementia (FTD) - the behavioural and language variants #YOD He loves music, dancing and high fives! He is a fun-loving soul 🕺🥳

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calendar_today12-04-2020 19:46:47

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DadsFTD (@ftdstories) 's Twitter Profile Photo

Just arrived at Dad’s, he’s fast asleep despite the radio in his room being up quite high 💤 sleeping more and more these days

Lionesses (@lionesses) 's Twitter Profile Photo

History makers 💪 Today, the #Lionesses have achieved their landmark legacy goal: for every girl in England to be given equal access to football and school sport. #LetGirlsPlay | #IWD2023

Debbie Foster RNMH MSc (@debbiefosterrmn) 's Twitter Profile Photo

4 DAYS TO GO!!! Just 4 days until Leeds’ first acute specialist dementia service launches in St James’!!! We are super excited to see you all at our launch 11-2 Monday 3rd April - Gledhow Wing foyer 🙌🎉 Leeds & York Partnership NHS Foundation Trust Leeds Teaching Hospitals LTHT Specialty & Integrated Medicine Dementia UK

4 DAYS TO GO!!! 
Just 4 days until Leeds’ first acute specialist dementia service launches in St James’!!! 
We are super excited to see you all at our launch 11-2 Monday 3rd April - Gledhow Wing foyer 🙌🎉
<a href="/LeedsandYorkPFT/">Leeds & York Partnership NHS Foundation Trust</a> <a href="/LeedsHospitals/">Leeds Teaching Hospitals</a> <a href="/LTHT_SIM/">LTHT Specialty & Integrated Medicine</a> <a href="/DementiaUK/">Dementia UK</a>
DadsFTD (@ftdstories) 's Twitter Profile Photo

The Dementia Crisis team have assessed dad at his current care home and believe he needs to move to a nursing home 😢. Finding it very difficult to find EMI dementia nursing care for under 65s who will accept dad in the Manchester area.

Julie Hayden (she/her) (@julieha59928392) 's Twitter Profile Photo

I attended a Cognitive Stimulation Group for people with dementia last week. They gave us musical bingo to play and one of the songs was Old MacDonald Had A Farm. I am not a child!

DadsFTD (@ftdstories) 's Twitter Profile Photo

Had a nice time with Dad today. Fed him his lunch, and went for a short walk in the care home. He used to speed up and down the corridors and outside in the garden. He’s now very unsteady and weak on his feet. Obvious he’s not getting out of bed much now. Another change :(

DadsFTD (@ftdstories) 's Twitter Profile Photo

We’re still looking for an EMI dementia nursing care home in the Manchester area that will take dad. Proving very difficult. A lot of the ones we’ve approached just don’t think they can meet his needs. What are we supposed to do??

DadsFTD (@ftdstories) 's Twitter Profile Photo

Whenever I help dad eat his lunch, it’s always a lovely moment of connection between us. He looks at me, his face relaxed, sometimes with a slight smile and I smile back at him. To me he’s always Dad.

DadsFTD (@ftdstories) 's Twitter Profile Photo

1) Dad’s always been into music, his whole life, including post diagnosis. Recently whenever I visit him, he’s always got kids cartoons on in his room. He doesn’t work the tv himself and there’s never a remote in his room. So who decides that he wants to watch cartoons?

DadsFTD (@ftdstories) 's Twitter Profile Photo

2) He’s non verbal so he wouldn’t say that he wants to watch the cartoons. He also doesn’t express “yes” or “no” through non-verbal communication when asked questions.I just wonder why kids cartoons?Why not music or programmes not aimed at kids?Is it part of the infantilisation?

DrDr (😊)Wendy Mitchell (@wendypmitchell) 's Twitter Profile Photo

All pink haired and heading down to London ready for our epic challenge with TERESA DAVIES and Rachel from Innovations in Dementia but via Essex as ive been invited to visit a day centre in Basildon for people with Young Onset Dementia

All pink haired and heading down to London ready for our epic challenge with <a href="/doryitsme/">TERESA DAVIES</a> and Rachel from <a href="/Innov_Dementia/">Innovations in Dementia</a>  but via Essex as ive been invited to visit a day centre in Basildon for people with Young Onset Dementia
DrDr (😊)Wendy Mitchell (@wendypmitchell) 's Twitter Profile Photo

Well my epic day has arrived! Today at 16.45 I’ll be jumping off the top of the Cheesegrater building. To say I’m excited is a total understatement 😂 whichmeamitoday.wordpress.com/2023/09/09/wac…

DadsFTD (@ftdstories) 's Twitter Profile Photo

Saw the advert released by Alzheimer’s Society. Wow. See not much has changed when it comes to language used in public awareness campaigns - “…devastation…” Was left feeling v sad and deflated after watching. Is that really the lasting effect they want the campaign to have??!