Hooray! My latest #blog is FINALLY here! This is one you’ve been waiting for too... my wedding day! Does having a loved one with #dementia affect your day? Here’s how it went for me 😊❤️ #FTD #EndFTD #Awareness ftdandme.co.uk/post/11-my-wed…

When a parcel arrives with Jelly Drops sticker on the front 🙌🏼 SO excited to try these with mum, thanks for the speedy delivery! #Dementia #Hydration #FTD #EndFTD

Feeling so loved it’s unreal 🥰 I have created my own Alzheimer's Society Memory Walk to take place on 20th September 2020. In just 18 hours I’ve got 25 walkers and raised £210! So thankful to those who have supported me so far ❤️ #Dementia #EndDementia justgiving.com/fundraising/mw…

I’m back! My next blog is now published which covers how we received a diagnosis. I’ve had lots of questions about this so hopefully you’ll find it useful. Enjoy and I hope to continue shining a light on #FTD! #Dementia #EndFTD #FrontotemporalDementia ftdandme.co.uk/post/12-how-we…

I love how this chart shows the many different conditions which sit under the umbrella term ‘dementia’. So many need awareness raising! #Dementia #FTD #EndFTD

Morning Twitter! It’s time for another blog 🎉 This story brings back outrageous but hilarious memories for me. Have a read to see how life continued after mums #FTD diagnosis! #Dementia #EndFTD #FrontotemporalDementia #Blogger ow.ly/NK6w30rePGL

Time for #Blog #14. I’m talking about the present and I’ve explained how mums symptoms have changed. I found it hard writing this, it was a complete reality check. I can’t believe how quickly things have changed 😢♥️ #FTD #FrontotemporalDementia #Dementia ftdandme.co.uk/post/14-realit…

Started a new thing 👋 Launching a new group for the young adult children (18 - 35) of those living with young onset dementia. We’re starting small and have a fledgling Instagram account here: instagram.com/tyfd_network/ Please share / RT ❤️

There is one simple aim with this: Connect young adults who support their parents living with dementia, to enable them to learn and support each other and just have a chat with a mate who “gets it” over their preferred drink of choice ☕️🍷🍻

Please help us spread the word so we can build up these vital connections Younger People with Dementia CIO @YoungDementiaUK Young Dementia Network Dementia Carers Count 3Nations Dementia Working Group Chris Roberts. Chris Maddocks Kate Lee FTD & Me tide - together in dementia everyday Dementia UK

Will I inherit FTD? I published a blog about late last night about waiting for the results regarding my own #genetic testing, hopefully it will give those in a similar situation some useful information 💕 #FTD #FrontotemporalDementia ftdandme.co.uk/post/15-always…

Joined AFTDA meeting this afternoon and hoping to learn more and make our voice heard! Thank you AFTD for making this possible! #PFDD_ENDFTD

I visited mum in the care home on Saturday morning. It was the first time I've seen her properly in 2 months and it was hard. Lots had changed and there is so much I wish I had done differently. Tips for the future listed below 👇🏼 #ftd #endftd #dementia #dementiaawareness

♥️♥️♥️ were spreading the word! Thank you Lucy Russell!

Thank you so much Consultant Admiral Nurse Children & Young People for your involvement! You did amazing and provided such insightful info. We were a fab team! #ftd #endftd x.com/hannahdementia…

It’s here! Check out my interview on BBC Humberside speaking all things #ftd and how I’m dealing with my #genetic results. Earlier on in the show, there’s also great info from Lucy Russell and Consultant Admiral Nurse Children & Young People! Check it out at 2:41:00 👇🏼 bbc.co.uk/sounds/play/p0…

FTD & Me FTDtalk BBC Humberside Lucy Russell Consultant Admiral Nurse Children & Young People Thank you FTD & Me for sharing your story so publicly and informing the world about our struggles!

Thank you so much Jean C9orf72 ♥️

It’s #DementiaActionWeek and I’m starting by sharing a podcast I recorded with @JillRennieuk at homecare.co.uk. This explains my own experience with #FTD after my mum was diagnosed, and after I tested positive for the #C9ORF72 mutation. Click to listen! > bit.ly/3w4sPPk

US approves first new #Alzheimer's drug in 20 years... this is absolutely incredible to read! Progress for so many and amazing to see ⁦Prof Cath Mummery⁩ from the very same research centre I was at last week speak about it! Well done to all involved ♥️♥️ bbc.co.uk/news/health-57…